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Old 05-15-2013, 09:56 PM   #1
Lees3rwe
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12 year old with SEVERE Osgood-Schlatters

Not sure if I posted this here or on another board... it's been a crazy few weeks!

My 12 (soon to be 13) year old was recently diagnosed with Osgood-Schlatters Disease in both knees (this is a defect in the growth plate that causes severe tendonitis type pain in the knee, specifically during the "growing years" when the bones are growing at a faster rate than the tendons).

He has had to quit soccer and is unable to participate very much during PE at school because his case is so severe. Ice, Advil, Rest and Physical Therapy is about all that you can do for it. The blessing is that they DO grow out of it (literally, when they stop growing!).

We had originally planned a Universal/LEGOLAND vacation for this summer, but he said he just knows he couldn't do all of that walking and that he would be miserable. We have never been to Universal or LEGOLAND, but we are Disney pros...

We are toying with the idea of renting a jr. wheelchair for him and using it as needed. I know that we would need to get the special card and everything too.

Just curious if anyone has dealt with Osgood-Schlatter at Disney and did you find a wheelchair rental to be the way to go.

Thanks for any advice!
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Old 05-15-2013, 11:02 PM   #2
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I don't have any experience with that particular disorder - but a wheelchair seems like a good answer. You can use a wheelchair at Legoland/Universal if you wanted, too! No special card needed at any of the three.
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Old 05-15-2013, 11:26 PM   #3
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Quote:
Originally Posted by dawnball View Post
I don't have any experience with that particular disorder - but a wheelchair seems like a good answer. You can use a wheelchair at Legoland/Universal if you wanted, too! No special card needed at any of the three.
As dawn all posted, you don't need any card to bring the wheelchair into lines with you.
Most lines are Mainstreamed, which means the regular line is accessible.
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Old 05-15-2013, 11:32 PM   #4
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Have you thought of a electric scooter?

Those are fantastic for moving about and none of you will get overheated pushing the wheelchair.
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Old 05-15-2013, 11:36 PM   #5
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Quote:
Originally Posted by Lees3rwe View Post
Not sure if I posted this here or on another board... it's been a crazy few weeks!

My 12 (soon to be 13) year old was recently diagnosed with Osgood-Schlatters Disease in both knees (this is a defect in the growth plate that causes severe tendonitis type pain in the knee, specifically during the "growing years" when the bones are growing at a faster rate than the tendons).

He has had to quit soccer and is unable to participate very much during PE at school because his case is so severe. Ice, Advil, Rest and Physical Therapy is about all that you can do for it. The blessing is that they DO grow out of it (literally, when they stop growing!).

We had originally planned a Universal/LEGOLAND vacation for this summer, but he said he just knows he couldn't do all of that walking and that he would be miserable. We have never been to Universal or LEGOLAND, but we are Disney pros...

We are toying with the idea of renting a jr. wheelchair for him and using it as needed. I know that we would need to get the special card and everything too.

Just curious if anyone has dealt with Osgood-Schlatter at Disney and did you find a wheelchair rental to be the way to go.

Thanks for any advice!
Not any direct "been there" advice, but I had it as a child and when the pain was at its worst, I used compression-style knee braces and ice/heat...I would not have wanted to sit in a wheel chair at that age, but I suppose that you could use it as a last resort. Have you talked to your son about how he would feel about it? Maybe just some light days of touring instead and work around his comfort level? I would talk to him about what he thinks would be best. It does improve - I had good stretches and bad stretches through the teen years. It's tough at times though and I really feel for your DS. Swimming in the evenings will help ease the discomfort some too.

Good luck deciding and hang in there!
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Old 05-16-2013, 02:06 AM   #6
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Just wanted to say that a 12 yr old would not be allowed to rent an electric scooter. Also, you would need to look at his size when renting a wheelchair - I know a lot of 12 yr old boys who do not need a jr wheelchair - the regular 16 inchers would be just fine. Whatever company you rent from should be able to give advice given his height.
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Old 05-16-2013, 05:49 AM   #7
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Thanks for all of the replies, and Neesy- he does wear the compression bands on bad days (which, unfortunately, he has been having a lot of).

Maybe I'll check into a Disney Cruise instead!
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Old 05-16-2013, 06:12 AM   #8
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Quote:
Originally Posted by Lees3rwe
Thanks for all of the replies, and Neesy- he does wear the compression bands on bad days (which, unfortunately, he has been having a lot of).

Maybe I'll check into a Disney Cruise instead!
Getting a kid to use a wheelchair can be hard, but if you have it there, if he is in enough pain he may be more open to using it.

When he is not using it, you can use it to carry all the stuff we all inevitably carry in the parks.

In fact, if he pushes it, it may act like a walker and help take the weight off his legs. It may increase his time walking without pain.

You can always park the wheelchair in stroller parking when you go on rides.

Also speak to his doctor about the trip. He may want to increase, add, or change meds, just for the duration of the trip to make him more comfortable.
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Old 05-16-2013, 07:41 AM   #9
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DD, 10, also has this. She wears knee braces when it is bad. I give her aleve too. It was really painful in the begining. Her poor little knees were so swollen and painful to the touch. She did manage to continue playing softball through the pain. It has calmed down and she is much better right now. I am sure it will flare up again when she hits another growth spurt.

We did go to WDW during the painful period. She wouldn't wear the knee braces. I am guessing she didn't want anyone to see them. Her knees did hurt a bit more, but we took breaks.

Good luck!

Hope his knees feel better soon!
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Old 05-16-2013, 02:57 PM   #10
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Denine- Did her first flare seem to be the worst? I am hoping that it will ease up and each additional episode will not be as bad.

Does she have it in both knees? His look pure red and angry some days... it is awful.
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Old 05-16-2013, 03:05 PM   #11
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Originally Posted by Lees3rwe View Post
Thanks for all of the replies, and Neesy- he does wear the compression bands on bad days (which, unfortunately, he has been having a lot of).

Maybe I'll check into a Disney Cruise instead!

Maybe a land and sea package? I'm sorry, I can offer no real advice. My husband had O-S, but it was before we met.
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Old 05-16-2013, 07:04 PM   #12
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Quote:
Originally Posted by Lees3rwe View Post
Not sure if I posted this here or on another board... it's been a crazy few weeks!

My 12 (soon to be 13) year old was recently diagnosed with Osgood-Schlatters Disease in both knees (this is a defect in the growth plate that causes severe tendonitis type pain in the knee, specifically during the "growing years" when the bones are growing at a faster rate than the tendons).

He has had to quit soccer and is unable to participate very much during PE at school because his case is so severe. Ice, Advil, Rest and Physical Therapy is about all that you can do for it. The blessing is that they DO grow out of it (literally, when they stop growing!).

We had originally planned a Universal/LEGOLAND vacation for this summer, but he said he just knows he couldn't do all of that walking and that he would be miserable. We have never been to Universal or LEGOLAND, but we are Disney pros...

We are toying with the idea of renting a jr. wheelchair for him and using it as needed. I know that we would need to get the special card and everything too.

Just curious if anyone has dealt with Osgood-Schlatter at Disney and did you find a wheelchair rental to be the way to go.

Thanks for any advice!
First of all, my DEEPEST sympathies for your son. My daughter developed OS in the 7th grade and at the age of 17 she is still suffering from it on a daily basis. She had to quit XC and it devastated her. She too wears knee races and does all of the ice/heat and OTC anti-inflammatory. Sadly a lot of kids develop arthritis and other knee/leg problems.

Secondly, I have seen kids under the age of 16 who have used the ECVs. Check into renting one from one of the outside companies for him so he can be comfortable and you guys can avoid getting tired from pushing a wheel chair. I would also suggest allowing him to use one prior to going to get a feel for it. We are returning to Fl in the Fall and just may have to get one for our daughter this round.

Wishing you guys a happy trip!
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Old 05-16-2013, 07:10 PM   #13
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Secondly, I have seen kids under the age of 16 who have used the ECVs. Check into renting one from one of the outside companies

Those may be personal scooters. I know many of the outside agencies alson have a minimum age of 18 or 21.
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Old 05-16-2013, 09:09 PM   #14
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Oh Sharky... I am so sorry that your daughter is still suffering for that long.
I think our Ortho was trying to prepare us that my son has a REALLY bad case.

I had never even heard of this before he was diagnosed and it has really been hard on him.

Thanks again, so much, for all of the feedback and suggestions.
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Old 05-19-2013, 05:58 AM   #15
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Originally Posted by Lees3rwe View Post
Denine- Did her first flare seem to be the worst? I am hoping that it will ease up and each additional episode will not be as bad.

Does she have it in both knees? His look pure red and angry some days... it is awful.
We just figured out she had it in January. So far, it has been her only flare. Yes, it is in both knees. She plays softball and is a pitcher. The knee of her landing leg seems to be worse, and I have a different brace for when she pitches. Both knees are fine right now though. My husband had it when he was a kid. His knees have never been right. I hope DD won't have problems for life with her knees. She already has to deal with having celiac disease.
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