Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read


Reply
 
Thread Tools Rate Thread Display Modes
Old 04-18-2013, 05:34 PM   #31
rewardsinlife
Mouseketeer
 
rewardsinlife's Avatar
 
Join Date: Aug 2012
Posts: 255

13 days and counting till my surgery!

Had another cyst burst Tue. Luckily it was a smaller one so I wasn't in as horrific pain as the previous one that was much larger. Still dealing with horrific bloating and pain though.

Those who have been so nice to share your stories, would you mind telling me ways of how to deal with the pain after the surgery? I went to a pain clinic today that was supposed to offer me pain management therapy but all they wanted to do was give me epidural pain meds....uh ...no thank you. I have found heating pad works. I will be taking some pain meds, but want to find some other ways to deal with it too. ( my body reacts very strongly to meds of any kind..it's a genetic thing. In a previous surgery I had, they gave me the child's dose of anesthesia and I was out for longer than they expected.) So I don't want to stay on whatever opiate they are going to give me for too long because I know I will be knocked out from it. Any tips?
__________________
If your heart is in your dreams, no request is too extreme, when you wish upon a star your dreams come true!


me on the way to DL...every time!
rewardsinlife is offline   Reply With Quote
Old 04-18-2013, 10:43 PM   #32
frostedpink
Mouseketeer
 
frostedpink's Avatar
 
Join Date: Jun 2012
Posts: 176

I don't like taking strong pain meds like Vicodin or Percocet. They make me feel funny.

After my surgery, I took 600mg of ibuprofen every 6 hours. Sometimes I needed Tylenol at the 4 hour mark.

Honestly the worst pain was from the stupid co2 gas that they inflate your tummy with. It goes to your diaphragm and your right shoulder and it was almost unbearable at times. Pain meds didn't seem to help, but ice packs and heat did, and a quick shoulder massage. I just tried to tough it out and after a few days it went away.

Good luck to you!
__________________
2012: Caribbean Beach
2013: Contemporary
2014: Disneyland
frostedpink is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-19-2013, 12:58 AM   #33
mommasita
I am like HELLO IT IS TEN OCLOCK...Anderson is on

Has a sweetie who is Furbilicious
 
mommasita's Avatar
 
Join Date: Aug 2004
Location: Montreal, Canada
Posts: 19,086
DISboards Moderator

I agree about the Gas.. I was THANKFULLY advised to walk it off, otherwise it gets trapped, and this happened to my friend, and she thought she was having a heartache.. I honestly recovered really well, took it slow, and after 2 days was pretty good.

Sorry another burst.. You poor thing.
__________________
It's nice to be important, but it's more important to be nice.
mommasita is offline   Reply With Quote
Old 04-22-2013, 08:17 PM   #34
omalley1118
DIS Veteran
 
omalley1118's Avatar
 
Join Date: Mar 2009
Posts: 653

Quote:
Originally Posted by rewardsinlife View Post
13 days and counting till my surgery!

Had another cyst burst Tue. Luckily it was a smaller one so I wasn't in as horrific pain as the previous one that was much larger. Still dealing with horrific bloating and pain though.

Those who have been so nice to share your stories, would you mind telling me ways of how to deal with the pain after the surgery? I went to a pain clinic today that was supposed to offer me pain management therapy but all they wanted to do was give me epidural pain meds....uh ...no thank you. I have found heating pad works. I will be taking some pain meds, but want to find some other ways to deal with it too. ( my body reacts very strongly to meds of any kind..it's a genetic thing. In a previous surgery I had, they gave me the child's dose of anesthesia and I was out for longer than they expected.) So I don't want to stay on whatever opiate they are going to give me for too long because I know I will be knocked out from it. Any tips?
Wow!! It's is giving me flashbacks... I just read this thread start to hear tonight. I have been through this, and it has been a long road. I had infertility issues and went through treatment for five plus years, resulting in 2 miscarriages. We then went on to adopt our two wonderful kids from Russia. When they were little, I started having the severe pain and other lovely symptoms. I basically went through several years of different treatments etc culminating in a total hysterectomy. That was in 2007, six weeks prior to starting nursing school at age 39!!!

Two weeks ago, I started having the same exact lower abdominal/pelvic pain. Although endo can continue after a hyst, it is very rare. My Gyn thinks this is gi related, and my gi thinks it's Gyn related. the ultrasound was inconclusive and I am having a ct tomorrow. The pain has been awful today...all day. I cannot believe this is happening again...

To answer your question about pain control, this will make you laugh. Prior to surgery, I used to use my Sheltie as a heating pad. Morgan was such a good sport about it... He was just heavy enough, and he was furry and warm!!!

Endo is very often misdiagnosed, sadly! I also got the old pat on the head from a male surgeon during a consult... When I had they hysterectomy, they found stage 4, with endo pulling my colon and adhering it to the back of my uterus. UGH!!! That explained aloof the lovely bloating and gi symptoms... I thought for sure I had cancer going into that surgery.

Sorry for rambling... Hopefully, you will find your answers soon. I wish you the best of luck!!!
__________________
OMalley1118
Member since 2009
omalley1118 is offline   Reply With Quote
Old 04-22-2013, 08:30 PM   #35
Robbi
DIS Veteran
 
Robbi's Avatar
 
Join Date: Oct 2012
Posts: 3,694

Quote:
Originally Posted by rewardsinlife View Post
13 days and counting till my surgery!

Had another cyst burst Tue. Luckily it was a smaller one so I wasn't in as horrific pain as the previous one that was much larger. Still dealing with horrific bloating and pain though.

Those who have been so nice to share your stories, would you mind telling me ways of how to deal with the pain after the surgery? I went to a pain clinic today that was supposed to offer me pain management therapy but all they wanted to do was give me epidural pain meds....uh ...no thank you. I have found heating pad works. I will be taking some pain meds, but want to find some other ways to deal with it too. ( my body reacts very strongly to meds of any kind..it's a genetic thing. In a previous surgery I had, they gave me the child's dose of anesthesia and I was out for longer than they expected.) So I don't want to stay on whatever opiate they are going to give me for too long because I know I will be knocked out from it. Any tips?
I was on a morphine pump but only used it for the first day. After that I didn't take anything. It hurt but at least I wasn't out of it. This allowed me to read or watch movies which helped to take my mind off of the pain. I recuperated really quickly. Walk as soon as they say it's ok. Baby steps at first but add on as they permit. Lying around too long will make recovery last longer. My mom and women of her age group took weeks to feel better because they were encouraged to lay about and not do much. I'm not saying to push too hard either. Follow your body's lead. Hugs and good luck!
Robbi is offline   Reply With Quote
Old 04-23-2013, 05:53 AM   #36
omalley1118
DIS Veteran
 
omalley1118's Avatar
 
Join Date: Mar 2009
Posts: 653

Quote:
Originally Posted by Robbi View Post

I was on a morphine pump but only used it for the first day. After that I didn't take anything. It hurt but at least I wasn't out of it. This allowed me to read or watch movies which helped to take my mind off of the pain. I recuperated really quickly. Walk as soon as they say it's ok. Baby steps at first but add on as they permit. Lying around too long will make recovery last longer. My mom and women of her age group took weeks to feel better because they were encouraged to lay about and not do much. I'm not saying to push too hard either. Follow your body's lead. Hugs and good luck!
Awesome advice!!! I am a nurse, and you are absolutely right. I had my surgery later in the day due to emergencies bumping me back. I was up and walking first thing in the morning. I also had the pump for the first maybe 12-18 hours. It really was to be able to sleep that first night. It was a blessing, but then I was done with it as I also don't care to feel that way. The pain mess can make you very constipated, so getting up to walk is a way to counteract that. It also helps to keep your lungs clear. Remember to hold a pillow against your abdomen whenever you do anything...cough, laugh, shift your position, etc. it helps with the pain.

Don't try to be a tough guy in the first two days...ask for mess for pain if you need them. The best way to fight pain is to stay ahead of it! Don't wait until the pain is awful. For the first few days, take the pain mess as prescribed, generally every 4-6 hours. O can start to cut back after that. Also take an OTC med for your bowels, such as a stool softener or fiber supplement. This helps to keep them working while you are taking the pain meds...
__________________
OMalley1118
Member since 2009
omalley1118 is offline   Reply With Quote
Old 04-24-2013, 06:01 PM   #37
rewardsinlife
Mouseketeer
 
rewardsinlife's Avatar
 
Join Date: Aug 2012
Posts: 255

All such great advice! Had Pre-op appt.s yesterday and it took 5 hrs! They also put a hospital bracelet on me for my bloodwork that I have to keep on till surgery. Luckily they said I could put it on my ankle so that is where it is. It definitely bugs but I would rather be able to cover it up with pants then have all my students ask me..what's on your arm? Is that your birthday? What are all those numbers?

Was supposed to go in today for EKG but woke up completely exhausted and in pain from yesterday. Had to cancel so hopefully I will be able to reschedule before surgery. Luckily, my gp doctor is also the cardiologist specialist so it shouldn't be that difficult I am hoping.

Found out to that I have to do a lovely um 'cleanse' it just kind of amazes me how much they don't tell you of the stuff you have to expect until it happens.oh well.

Here's to hoping I don't get too nervous about this surgery. Now I just wait
__________________
If your heart is in your dreams, no request is too extreme, when you wish upon a star your dreams come true!


me on the way to DL...every time!
rewardsinlife is offline   Reply With Quote
Old 04-24-2013, 06:19 PM   #38
omalley1118
DIS Veteran
 
omalley1118's Avatar
 
Join Date: Mar 2009
Posts: 653

Quote:
Originally Posted by rewardsinlife View Post
All such great advice! Had Pre-op appt.s yesterday and it took 5 hrs! They also put a hospital bracelet on me for my bloodwork that I have to keep on till surgery. Luckily they said I could put it on my ankle so that is where it is. It definitely bugs but I would rather be able to cover it up with pants then have all my students ask me..what's on your arm? Is that your birthday? What are all those numbers?

Was supposed to go in today for EKG but woke up completely exhausted and in pain from yesterday. Had to cancel so hopefully I will be able to reschedule before surgery. Luckily, my gp doctor is also the cardiologist specialist so it shouldn't be that difficult I am hoping.

Found out to that I have to do a lovely um 'cleanse' it just kind of amazes me how much they don't tell you of the stuff you have to expect until it happens.oh well.

Here's to hoping I don't get too nervous about this surgery. Now I just wait
I'm so sorry you're going through all of this!!! I know it's a pain... I remember the cleanse... I had to drink the yucky CT contrast yesterday. It made me want to go find every pt from the ER that I made drink it and personally apologize...
__________________
OMalley1118
Member since 2009
omalley1118 is offline   Reply With Quote
Old 04-30-2013, 01:33 PM   #39
rewardsinlife
Mouseketeer
 
rewardsinlife's Avatar
 
Join Date: Aug 2012
Posts: 255

Time is up! Tomorrow is the big day

Looking forward to feeling like this again soon!

Wish me luck..and pixie dust!
__________________
If your heart is in your dreams, no request is too extreme, when you wish upon a star your dreams come true!


me on the way to DL...every time!
rewardsinlife is offline   Reply With Quote
Old 04-30-2013, 01:39 PM   #40
omalley1118
DIS Veteran
 
omalley1118's Avatar
 
Join Date: Mar 2009
Posts: 653

Quote:
Originally Posted by rewardsinlife View Post
Time is up! Tomorrow is the big day

Looking forward to feeling like this again soon!

Wish me luck..and pixie dust!
Wishing you the very best!!! I know the next few days will be tough, but you will pull through!!! Please let us know how you are doing when you can...
__________________
OMalley1118
Member since 2009
omalley1118 is offline   Reply With Quote
Old 05-01-2013, 02:03 AM   #41
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 10,157

Sending prayers for a speedy recovery.

Wishing you all the best and update us when you can
luvmarypoppins is offline   Reply With Quote
Old 05-02-2013, 12:09 AM   #42
mommasita
I am like HELLO IT IS TEN OCLOCK...Anderson is on

Has a sweetie who is Furbilicious
 
mommasita's Avatar
 
Join Date: Aug 2004
Location: Montreal, Canada
Posts: 19,086
DISboards Moderator

Thinking of you
__________________
It's nice to be important, but it's more important to be nice.
mommasita is offline   Reply With Quote
Old 05-03-2013, 03:17 PM   #43
rewardsinlife
Mouseketeer
 
rewardsinlife's Avatar
 
Join Date: Aug 2012
Posts: 255

I made it!

Surgery was 5 hrs. Long and very extensive. Dr. Was able to do it laproscopily with 4 holes and with robot assistance. Removed all of the cysts and were able to get them off of my ovaries without taking them. My left Fallopian tube is completely matted and shredded from scar tissue from the endomitriosis. Dr. Said it was the most severe case of endomitriosis he had ever seen. It has spread all the way up to my chest, throughout my entire abdomen, attached itself and caused scar tissue to every single organ..including liver, bladder, appendix, colon, intestines, kidneys, uterus, ovaries, tubes, spine and pelvis. The large mass that was found turned out to be a tennis ball sized oozing blood clot that just kept growing bigger and bigger with each period I had.

So surgery was successful in removing the large possibly life threatening cysts and blood clot. Dr. Removed as much as he could of endomitriosis but couldn't take it all as it would just grow back. I will be on lupron now for upto 6 months and on birth control. Also have to take 600 mg of Advil pretty much around the clock when I am on my period to slow down the inflammation.

I was admitted over night and for the majority of the day yesterday. Got home about 7 and fell asleep in the recliner. Stomach is pretty sore from incension sites, though my shoulder had been in the most pain from apparently the gas they inject in during the surgery and from positioning. Have a huge knot there so have been trying to use heat, pain meds, and massaging to get it out. Starting to eat solid foods but going pretty slow as I am not very hungry and hurt.

Still exhausted and looking at a bit longer of a recovery than I first thought because of the extensive nature. I am glad I do not have cancer though! this will be a chronic condition that I will have to deal with carefully for the rest of my life until menopause when it goes away..or I decide to get pregnant. Been quite a journey, and now the healing process begins.
thank you for your thoughts and prayers!
__________________
If your heart is in your dreams, no request is too extreme, when you wish upon a star your dreams come true!


me on the way to DL...every time!
rewardsinlife is offline   Reply With Quote
Old 05-03-2013, 04:27 PM   #44
omalley1118
DIS Veteran
 
omalley1118's Avatar
 
Join Date: Mar 2009
Posts: 653

Wow!!!! That sounds very familiar. I had stage 3 or 4 endo. The surgery was long and intricate. I had great success with Lupron, prior to the surgery. I did 6 months and then had 18 months of living pain free. After that, when the pain cam back, I decided to have a total hysterectomy. At the time I was 39 and starting nursing school. We had adopted two kids and were done on that front... I wish you luck with your recovery!!!
__________________
OMalley1118
Member since 2009
omalley1118 is offline   Reply With Quote
Old 05-03-2013, 07:09 PM   #45
Robbi
DIS Veteran
 
Robbi's Avatar
 
Join Date: Oct 2012
Posts: 3,694

Quote:
Originally Posted by rewardsinlife View Post
I made it!

Surgery was 5 hrs. Long and very extensive. Dr. Was able to do it laproscopily with 4 holes and with robot assistance. Removed all of the cysts and were able to get them off of my ovaries without taking them. My left Fallopian tube is completely matted and shredded from scar tissue from the endomitriosis. Dr. Said it was the most severe case of endomitriosis he had ever seen. It has spread all the way up to my chest, throughout my entire abdomen, attached itself and caused scar tissue to every single organ..including liver, bladder, appendix, colon, intestines, kidneys, uterus, ovaries, tubes, spine and pelvis. The large mass that was found turned out to be a tennis ball sized oozing blood clot that just kept growing bigger and bigger with each period I had.

So surgery was successful in removing the large possibly life threatening cysts and blood clot. Dr. Removed as much as he could of endomitriosis but couldn't take it all as it would just grow back. I will be on lupron now for upto 6 months and on birth control. Also have to take 600 mg of Advil pretty much around the clock when I am on my period to slow down the inflammation.

I was admitted over night and for the majority of the day yesterday. Got home about 7 and fell asleep in the recliner. Stomach is pretty sore from incension sites, though my shoulder had been in the most pain from apparently the gas they inject in during the surgery and from positioning. Have a huge knot there so have been trying to use heat, pain meds, and massaging to get it out. Starting to eat solid foods but going pretty slow as I am not very hungry and hurt.

Still exhausted and looking at a bit longer of a recovery than I first thought because of the extensive nature. I am glad I do not have cancer though! this will be a chronic condition that I will have to deal with carefully for the rest of my life until menopause when it goes away..or I decide to get pregnant. Been quite a journey, and now the healing process begins.
thank you for your thoughts and prayers!
Glad your surgery was successful. I had pain in my shoulder after a laproscopic procedure. That hurt worse than anything else.
Robbi is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 05:43 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.