Ths DIS is a great place to ask Disney Cruise Line questions and share tips.
Dreams Unlimited Travel - The official sponsor of the Disney Cruise Forums Dreams Unlimited Travel - the official sponsor of the Disney Cruise Forums  

Go Back   The DIS Discussion Forums - DISboards.com > Disney Cruise Line > Disney Cruise Line Forum
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read



Closed Thread
 
Thread Tools Rate Thread Display Modes
Old 04-08-2013, 07:41 PM   #91
Mythreeboysandme
Earning My Ears
 
Join Date: Apr 2012
Location: Ontario, Canada
Posts: 69

Quote:
Originally Posted by Dogsambam View Post
Lets all say an extra prayer tonight and also give our kids a couple extra hugs!!!!!
I agree!
Mythreeboysandme is offline  
Old 04-08-2013, 08:35 PM   #92
Itinkso
Faith.Trust.Pixie Dust
 
Itinkso's Avatar
 
Join Date: Jul 2004
Location: California
Posts: 6,578

Candle for Chase occurring now:
http://disboards.com/showthread.php?t=3093362
__________________
WDW 6/14 - Off-site; 2/14 - AoA; 12/13 - Off-site; 1/13 - AKL; 10/12 - Pop; 4/12 - Off-site; 11/10 - BWI CL; 8/10 - POR; 7/09 - POFQ; 4/04 - ASMo; 2/97 - CBR ~ DLP 7/2012 ~ DLR - Mother Ship ~ August 6, 2005 - Magical Cruise of the Mexican Riviera ~ Sept. 29, 2012 Fantasy Western Caribbean
Itinkso is offline  
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-08-2013, 09:02 PM   #93
lae
Earning My Ears
 
Join Date: Apr 2011
Posts: 13

Where we live any pool, beach etc has a rule that children ages 8 and under must be no further than arms length away from an adult. Pretty much means you are in the water. My kids rarely visited the beach until supper hour and once everyone else cleared out. It was much easier to supervise that way. Both sons are now certified lifeguards. I never asked if they wanted to be one. We made it a priority, and didn't leave it open to debate. If we had left it up to them they would have quit like all their friends. We have the saying it's not good enough to know how to swim- you need to know how to swim AND be able to rescue all those who quit halfway through. I know my sons are not very popular with those they try to protect while on the job. . The abuse they put up with for doing their job and trying to enforce safety rules is ridiculous.
lae is offline  
Old 04-09-2013, 12:35 PM   #94
Spodesmom
Earning My Ears
 
Join Date: Apr 2013
Posts: 4

Update on Chase

This was recently posted on his FB page:

"Coming home!!!

We met with the doctors to translate the MRI picture to us about an hour ago. Unfortunately, it was not the news we had been hoping for. I will do my best to translate this in understandable terms. His Basel Ganglia area was damaged. This is the area that controls motor programming, movement, tremors, dystonia- basically the area that controls his arms, legs, fingers and most motor skills. The Internal Cbapsnee was also damaged. this is the are of his bran that controls his temp, heart rate, respiratory rate, thirst, hunger, sweating...ect. This explains what we are seeing medically- with all of the fluctuations. His Reticular Activating System was damaged- the area that effects his sleep/ wake cycle, and is optical lobs....or eye sight. Lets face it, we all knew our Warrior had some damaged up there. But he is a fighter, and he has all of us behind him. Again, The Lord spared his life, and for that I am thankful, very thankful. We are excited to come home and hold our other Children- too of the three most precious gifts The Lord has given us. And yes, we are coming home today! Chaser will continue his fight at the St. Paul Children's. We fly out in a couple hours. We thank you all for you thoughts and prayers. ...........God is Good!"
Spodesmom is offline  
Old 04-09-2013, 01:42 PM   #95
VHFamily
Earning My Ears
 
Join Date: Mar 2013
Location: Wisconsin
Posts: 25

I don't know how they are keeping strong, but I continue to pray for these parents and Chase. I wonder what the MRI results mean medically for him long term. Praying for a safe flight for everyone
__________________
Excited for our first cruise ever - February 2014!
VHFamily is offline  
Old 04-09-2013, 04:41 PM   #96
HLAuburn
DIS Veteran
 
HLAuburn's Avatar
 
Join Date: Apr 2005
Location: Ponte Vedra, FL
Posts: 4,168

Quote:
Originally Posted by VHFamily View Post
I don't know how they are keeping strong, but I continue to pray for these parents and Chase. I wonder what the MRI results mean medically for him long term. Praying for a safe flight for everyone
It doesn't sound good, but with all the prayers going up for this little guy, maybe a miracle is in the works!

Glad they get to go home now - as if having this happen isn't horrific enough, and then you have to go through it in a place far from home without family nearby. I hope they have a safe trip home...
__________________

HLAuburn is offline  
Old 04-09-2013, 04:49 PM   #97
LimoFam5
DIS Veteran
 
Join Date: Jun 2009
Location: Los Alamitos (Rossmoor), but most of the time we are at Disneyland.
Posts: 566

Wishing them the best.... Prayers go out to the family.
LimoFam5 is offline  
Old 04-09-2013, 05:35 PM   #98
OrangeCountyCommuter
DIS Veteran
 
Join Date: Jul 2010
Posts: 4,630

I added a prayer for his siblings. This is going to change their lives also in more ways then we can imagine.
OrangeCountyCommuter is offline  
Old 04-09-2013, 05:37 PM   #99
OrangeCountyCommuter
DIS Veteran
 
Join Date: Jul 2010
Posts: 4,630

Quote:
Originally Posted by VHFamily View Post
I don't know how they are keeping strong, but I continue to pray for these parents and Chase. I wonder what the MRI results mean medically for him long term. Praying for a safe flight for everyone
I showed the post to my coworker, an experienced medical professional and her view was grim based on what they posted
OrangeCountyCommuter is offline  
Old 04-09-2013, 06:30 PM   #100
SapphireMind
Mouseketeer
 
Join Date: Mar 2013
Posts: 179

I am a neonatal nurse practitioner and we deal with asphyxia frequently unfortunately.

What they posted is very grim, sadly Chase may need a tracheostomy if he cannot keep his own airway protected from secretions and his autonomic dysfunction will make him prone to stroke, which will only damage things more. The only "bright side" (which is a very dismal side indeed) is that likely the personality and sentience that was the little boy has likely gone. Hopefully he will not have enough consciousness to be uncomfortable from contractures and other issues.

This is the hardest to see in patients.....their personality/soul/essence/etc has left the building, but their brain stem is intact. Parents are left caring for a shell that will keep on for a long time

I so wish his family didn't have to go through this.
__________________
RCI Independence of the Seas JoCo Cruise Crazy 4
Disney Wonder Feb 8-12 2009 // Carnival Magic May 6-13 2012 // RCI Freedom of the Seas Feb 10-17 2013 // Disney Magic May 10-18 2013
SapphireMind is offline  
Old 04-09-2013, 06:38 PM   #101
Aggiefan92
Earning My Ears
 
Join Date: Mar 2013
Posts: 54

Breaks my heart to hear this. What a strong family to be staying positive about going home. Will continue to pray hard.
Aggiefan92 is offline  
Old 04-09-2013, 06:50 PM   #102
4DisneyNUTS
Mouseketeer
 
Join Date: Jul 2008
Posts: 86

Quote:
Originally Posted by SapphireMind View Post
I am a neonatal nurse practitioner and we deal with asphyxia frequently unfortunately.

What they posted is very grim, sadly Chase may need a tracheostomy if he cannot keep his own airway protected from secretions and his autonomic dysfunction will make him prone to stroke, which will only damage things more. The only "bright side" (which is a very dismal side indeed) is that likely the personality and sentience that was the little boy has likely gone. Hopefully he will not have enough consciousness to be uncomfortable from contractures and other issues.

This is the hardest to see in patients.....their personality/soul/essence/etc has left the building, but their brain stem is intact. Parents are left caring for a shell that will keep on for a long time

I so wish his family didn't have to go through this.

As a mother of a child with special needs from a stroke and being around a TON of kids like him I have to tell you their soul NEVER leaves. They may have a new way of speaking and navigating their brain but they always have their essence and their soul. I hope that other parents who are going through a new brain injury know this. It is really not true that they lose their soul just how they express themselves is different than before, sometimes drastically, but they are always the same kid.

I have to add.... to describe a child as a shell really??? Come on???
__________________
Stephanie formerly 3DisneyNUTShttp://www.disboards.com/member.php?u=64678 disboards member since 2004

Our trips together since 1996 Dixie Landings.... Carribean Beach....Coronado Springs....Son's first trip.....Pop Century TWICE!...Purchased DVC....Disney Cruise Wonder...Saratoga Springs...Hilton Head...Saratoga Springs February 2005!...Sept 2005 Disney Wonder with Boardwalk Villas
UNIVERSAL May 2006 Stayed @ SSR baby!
1st trip to Disneyland Sept 2006 Grand Californian ...Universal August 2007 stayed at OKW .......Stayed at AKV Jambo House May 2009 baby Jason's first trip!

Last edited by 4DisneyNUTS; 04-09-2013 at 06:59 PM.
4DisneyNUTS is offline  
Old 04-09-2013, 06:57 PM   #103
4DisneyNUTS
Mouseketeer
 
Join Date: Jul 2008
Posts: 86

Sorry I need to address the "grim" posts. Yes he has had a severe injury but it is WAY WAY WAY too early to conclude that his prognosis is grim. We were told our son would never walk, talk, recognize us as his parents, know his name etc... He does WAY more than they ever said (goes rock climbing, swim, talks, knows who we are and much much much more etc...). Doctors MUST give worst case scenario but millions of kids prove them wrong everyday. So please for the sake of Chase's family, who I am sure are scouring the internet right now looking for hope, can we leave out all the "grim' comments? Like I said MILLIONS of kids suffer brain injuries that are catastrophic only to have MIRACULOUS recoveries. A child's brain is plastic and can adapt, adjust and believe it or not REPAIR when injured. So please I beg you guys to stop with the negative posts. I am 12 years out but to a new parent reading these you are making a horrible terrible tragedy worse with these words.
__________________
Stephanie formerly 3DisneyNUTShttp://www.disboards.com/member.php?u=64678 disboards member since 2004

Our trips together since 1996 Dixie Landings.... Carribean Beach....Coronado Springs....Son's first trip.....Pop Century TWICE!...Purchased DVC....Disney Cruise Wonder...Saratoga Springs...Hilton Head...Saratoga Springs February 2005!...Sept 2005 Disney Wonder with Boardwalk Villas
UNIVERSAL May 2006 Stayed @ SSR baby!
1st trip to Disneyland Sept 2006 Grand Californian ...Universal August 2007 stayed at OKW .......Stayed at AKV Jambo House May 2009 baby Jason's first trip!
4DisneyNUTS is offline  
Old 04-09-2013, 07:10 PM   #104
kimgg
DIS Veteran
 
kimgg's Avatar
 
Join Date: Jan 2009
Posts: 584

I agree with not assuming the worst. While there is damage to important areas of the brain, none of us know how severe. God is in control nadir sounds like the family knows this. I know we're it me, if given a choice of losing my child altogether or being given any chance whatsoever of a life w my son, however changed, I would chose to have him w me without hesitation.

I will continue to pray for the whole family.
__________________
August 2009 - Disney Magic

May/June 2010 - WDW - POR French Quarter

July/August 2011 - Disneyland/Legoland (Hotel Menage

2012 - possibly a non-disney year due to circumstances beyond my control

March 2013 - Eastern on the Fantasy!
kimgg is offline  
Old 04-09-2013, 07:17 PM   #105
PizzieDuster
DIS Veteran
 
Join Date: Jul 2003
Location: Orange County, California
Posts: 3,817

Let's not start picking on one another.

Praying for a safe trip home and strength for the family and Chase.
__________________
Disney Wonder - 4/27/03 - 4 Day
Disney Magic - 5/8/04 - Western
Disney Magic - 6/24/05 - Mexican Riviera
Royal Carribean - Explorer of the Seas 4/16/06
Royal Carribean - Freedom of the Seas 4/8/07
Returning to the Magic - 6/29/08 - West Coast
Liberty of the Seas - 4/09
Disney Wonder Mother/DD12 Cruise to Nowhere 1/21/11
Disney Wonder Mexican Riviera 1/29/12 Mother/DD13 Cruise (taking Grandma and Nephew DN5 along)
Disney Wonder - 1/24/14 5 Night Wonder {gift}
Disney Fantasy - 3/29/14 Western
PizzieDuster is offline  
Closed Thread



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 06:37 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.