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Old 03-06-2013, 10:19 PM   #1
rewardsinlife
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Join Date: Aug 2012
Posts: 255

Lost and confused..needing some pixie dust to guide my way

Well, I will try to make this as short as possible. I have been battling an unknown chronic illness for 3.5 years which has caused me to lose muscle mass, become weak and fatigued when even walking a short distance, balance problems, digestive issues, muscle pain, and a progressive foot drop that has left me with a limp. Now, I had about given up all hope on figuring out what it was after seeing multiple neurologists, and been misdiagnosed with ALS, hungintons disease, Gillian barre oh and my favorite...you are young and a woman " it must be all in your head!"

Anyway...out of desperation I went to a gynocologist and complained about the severe pain I was having in addition to all these other symptoms..ESP. Around my time of the month. She ordered an ultrasound and voila. There is the answer. It took the radiologist more than half an hr. to map and copy all the cysts and masses. A week later had MRI for ' bigger picture ' which found a huge complex mass and cyst combos encompassing my entire reproductive system..plus all the other little masses and cysts all over in my stomach and pelvic area. Been referred to a big teaching hospital for abdominal surgery and told there was a likelihood it was ovarian cancer along with severe endometriosis. Pre -op is at the end of this month.

Why am I here? I Am in pain almost 24/7. I have been rapidly losing weight. I am bloated ..and can't even wear regular jeans anymore because of being so swollen. I have been told conflicting things...you must have laprootomy( big incision n stomach..and possibly everything removed) and then told. Only need laparoscopy and nothing should be removed and if it is cancer just have it get shrunk with chemo. What?! My family has a huge history of cancer and this doesn't sound like any of their treatments! I think I would want anything suspect out right? Keep in mind...I am 25...and though I would like to have kids...living obviously is more important at this point and I don't know if I would want to pass on some of these cancer genes anyway. Adoption is always available if and when!

Anyway..if anyone has any thoughts or clarification..I just kind of need to know what I should sign away before surgery and what I should try to hold on to...if that makes sense. Thank you in advance!
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