In need of prayers/support - Page 4 - The DIS Discussion Forums

figmentswife · 03-02-2013, 04:12 PM

DH has had a good day. Today was bag change day, to change the small wound beside his stoma. However, there was no packing in the small wound. I was a little freaked out even though I am sure it fell out in the bag, so I called the nurse...... 5 hours later I called again, because no one ever called me back.

My dad and one of my brothers are coming over tonight to watch a game, so I just may go hang out with my mom to get away.

I have been in my jammies all day, but I am still so tired.

dsneprincess · 03-02-2013, 04:29 PM

Sending more prayers & pixie dust as you deal with this. Best wishes for your whole family. Try to let some things go, there is plenty of time to do the unneccassary things, like dishes & laundry. It doesn't all need to get done everyday, that's what paper plates are for! Easier said than done, I know, but try to let some things go for your health. You must have a super supportive boss! Sending prayers for your family & the other poster who mentioned her husband has been struggling to recover.

Sheree Bobbins · 03-02-2013, 04:32 PM

I hope things get better each successive day. Remember to take care of the caregiver, too! Take it easy on yourself. I'm praying for support for the both of you.

Dan Murphy · 03-02-2013, 05:00 PM

Glad to hear things are progressing in the right direction. Prayers for you hubby, and certainly you also.

's

charming23 · 03-02-2013, 07:53 PM

Sending good thoughts your way. Being a caretaker is a tough job. Do not feel bad about asking for help and taking time for yourself.

mickeysgal · 03-02-2013, 07:57 PM

Aww...hope he gets better soon and that you get some well deserved rest.

roseneumann1 · 03-02-2013, 08:53 PM

Good thoughts and comfort headed your way. Sometimes life can be a little overwhelming. Special prayers for your husbands quick recovery.

figmentswife · 03-04-2013, 11:17 AM

We just got back from our PCP and she says that things look great. She was impressed with my ability to unpack and re-pack DH's wounds, and how well I was handling it. I told it wasn't so easy the first couple of times, but now, it's nothing.

He is feeling good and eating good. Wednesday will be his last day of antibiotics, and today they took him off his blood pressure med's.

He still has weeks of recovery for the wounds, but it looks like he is on the right road to get there. We see the surgeon on Friday, we are hoping she gets the drains out then.

figmentswife · 03-31-2013, 04:57 PM

DH went for a scope test Friday - the results were NOT what we were expecting.

The j pouch is infected and they found a separation beside the pouch. Also, the pouch is inflamed. They put him on 2 antibiotics for 2 weeks.

Dr said, no way he can have the take-down surgery any time soon, they may have to go put another drain in (the separation area is infected) when they recheck in a couple of weeks, and he may actually have crohns, not UC. She took biopsies and we should now more in a couple of weeks.

DisneyFan32WI · 03-31-2013, 05:03 PM

Quote:

Originally Posted by figmentswife

DH went for a scope test Friday - the results were NOT what we were expecting.

The j pouch is infected and they found a separation beside the pouch. Also, the pouch is inflamed. They put him on 2 antibiotics for 2 weeks.

Dr said, no way he can have the take-down surgery any time soon, they may have to go put another drain in (the separation area is infected) when they recheck in a couple of weeks, and he may actually have crohns, not UC. She took biopsies and we should now more in a couple of weeks.

I'm so sorry you keep getting setbacks.

mckryan · 03-31-2013, 05:04 PM

Prayers for your husband and you. Being a caretaker has to be tough, and knowing that you still have drains and such to still deal with has to be overwhelming. Hang in there!

figmentswife · 03-31-2013, 05:10 PM

I think it was much harder when he was in the hospital. Yes, I have to take care of him here at home...change wounds, change bag and such, but being home has made it a little easier.

I lost my job a week ago, and to be honest, it is easier not working right now.

mckryan · 03-31-2013, 05:12 PM

When my dad was in ICU for 5 weeks, I know how emotionally and mentally exhausting that was, so I can understand how it's easier at home. No beeping, no nurses waking you up all night long, etc.

I'm so sorry to hear about your job.

figmentswife · 03-31-2013, 05:19 PM

Quote:

Originally Posted by mckryan

When my dad was in ICU for 5 weeks, I know how emotionally and mentally exhausting that was, so I can understand how it's easier at home. No beeping, no nurses waking you up all night long, etc.

I'm so sorry to hear about your job.

How in the world did you get through 5 weeks???? The 2 weeks was hard enough.

mckryan · 03-31-2013, 05:23 PM

It was a total of 6 weeks in the hospital. It was tough - really tough. He was sedated through a lot of it after lung surgery. They had trouble bringing him out of sedation in ICU and finally had to do it cold turkey, and that was a really scary day. He was never really quite right after that hospitalization, although he lived another 12 years. I learned pretty quickly what all the numbers were on the machines and could gauge his condition in a couple of minutes after I looked at everything. Luckily he was done with his drains by the time he finally came home.

03-02-2013, 05:00 PM	#49
Dan Murphy We are family. Join Date: Apr 2000 Location: Chicago area, IL Posts: 75,160	Glad to hear things are progressing in the right direction. Prayers for you hubby, and certainly you also. 's __________________ *Dan-'Let's Celebrate the Future Hand in Hand'--We are Family* Why she runs..... Random acts of kindness, no matter how small, are never really lost. They live forever in the hearts of those who are fortunate enough to be on the receiving end of them----Lady M *Link to picture threads, many pictures ///Are You a DIS Oldtimer (or New)? ///LOTS of Resort Photos* 12/4-12/11..Hope to see you there dmurphydis@sbcglobal.net .

03-02-2013, 07:53 PM	#50
charming23 DIS Veteran Join Date: Jul 2009 Location: Cleveland, OH Posts: 5,885	Sending good thoughts your way. Being a caretaker is a tough job. Do not feel bad about asking for help and taking time for yourself. __________________ Me (Elizabeth) DM (Sue) Cleo Caly Forget Edward Cullen, Adam Lambert Dazzles me.

03-02-2013, 08:53 PM	#52
roseneumann1 Earning My Ears Join Date: Dec 2011 Posts: 7	Good thoughts and comfort headed your way. Sometimes life can be a little overwhelming. Special prayers for your husbands quick recovery. __________________

03-04-2013, 11:17 AM	#53
figmentswife One little spark will light your fancy Join Date: Jul 2011 Location: The land of Imagination Posts: 1,794	Update: We just got back from our PCP and she says that things look great. She was impressed with my ability to unpack and re-pack DH's wounds, and how well I was handling it. I told it wasn't so easy the first couple of times, but now, it's nothing. He is feeling good and eating good. Wednesday will be his last day of antibiotics, and today they took him off his blood pressure med's. He still has weeks of recovery for the wounds, but it looks like he is on the right road to get there. We see the surgeon on Friday, we are hoping she gets the drains out then.

03-31-2013, 04:57 PM	#54
figmentswife One little spark will light your fancy Join Date: Jul 2011 Location: The land of Imagination Posts: 1,794	6 week post-op update DH went for a scope test Friday - the results were NOT what we were expecting. The j pouch is infected and they found a separation beside the pouch. Also, the pouch is inflamed. They put him on 2 antibiotics for 2 weeks. Dr said, no way he can have the take-down surgery any time soon, they may have to go put another drain in (the separation area is infected) when they recheck in a couple of weeks, and he may actually have crohns, not UC. She took biopsies and we should now more in a couple of weeks.

03-02-2013, 04:12 PM	#46
figmentswife One little spark will light your fancy Join Date: Jul 2011 Location: The land of Imagination Posts: 1,794	DH has had a good day. Today was bag change day, to change the small wound beside his stoma. However, there was no packing in the small wound. I was a little freaked out even though I am sure it fell out in the bag, so I called the nurse...... 5 hours later I called again, because no one ever called me back. My dad and one of my brothers are coming over tonight to watch a game, so I just may go hang out with my mom to get away. I have been in my jammies all day, but I am still so tired.

03-02-2013, 04:29 PM	#47
dsneprincess DIS Veteran Join Date: Feb 2009 Location: Not in Orlando:( Posts: 662	Sending more prayers & pixie dust as you deal with this. Best wishes for your whole family. Try to let some things go, there is plenty of time to do the unneccassary things, like dishes & laundry. It doesn't all need to get done everyday, that's what paper plates are for! Easier said than done, I know, but try to let some things go for your health. You must have a super supportive boss! Sending prayers for your family & the other poster who mentioned her husband has been struggling to recover.

\|
The DIS Register to remove Join Date: 1997 Location: Orlando, FL Posts: 1,000,000

03-02-2013, 04:32 PM	#48
Sheree Bobbins DIS Veteran Join Date: Sep 2000 Location: Planet Earth Posts: 7,362	I hope things get better each successive day. Remember to take care of the caregiver, too! Take it easy on yourself. I'm praying for support for the both of you.

03-02-2013, 07:57 PM	#51
mickeysgal Orange you glad I like Knock Knock jokes? "I am Mrs. Nesbitt" - Buzz Lightyear Join Date: Feb 2001 Posts: 6,635	Aww...hope he gets better soon and that you get some well deserved rest.

03-31-2013, 05:04 PM	#56
mckryan DIS Veteran Join Date: Jul 2003 Posts: 2,028	Prayers for your husband and you. Being a caretaker has to be tough, and knowing that you still have drains and such to still deal with has to be overwhelming. Hang in there!

03-31-2013, 05:10 PM	#57
figmentswife One little spark will light your fancy Join Date: Jul 2011 Location: The land of Imagination Posts: 1,794	I think it was much harder when he was in the hospital. Yes, I have to take care of him here at home...change wounds, change bag and such, but being home has made it a little easier. I lost my job a week ago, and to be honest, it is easier not working right now.

03-31-2013, 05:12 PM	#58
mckryan DIS Veteran Join Date: Jul 2003 Posts: 2,028	When my dad was in ICU for 5 weeks, I know how emotionally and mentally exhausting that was, so I can understand how it's easier at home. No beeping, no nurses waking you up all night long, etc. I'm so sorry to hear about your job.

03-31-2013, 05:23 PM	#60
mckryan DIS Veteran Join Date: Jul 2003 Posts: 2,028	It was a total of 6 weeks in the hospital. It was tough - really tough. He was sedated through a lot of it after lung surgery. They had trouble bringing him out of sedation in ICU and finally had to do it cold turkey, and that was a really scary day. He was never really quite right after that hospitalization, although he lived another 12 years. I learned pretty quickly what all the numbers were on the machines and could gauge his condition in a couple of minutes after I looked at everything. Luckily he was done with his drains by the time he finally came home.

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