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Old 02-28-2013, 03:05 PM   #3421
Jakentysmom
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Christi- woohoo for dates!!! We will be there the same time!!! Where are you guys staying? Also, we heard from our wish granters one time when they came over. Then we are going to a hockey game with them next weekend. But that was decided when they came over because Jacob is a big fan and their company just happen to have tickets. I have not heard from them since and that was last month. But I emailed asking for an update and he did not even say a word to me...just forwarded the email convo he had with the wish manager.

Dana- those shirts are AWESOME!! Turned out very nice!
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Old 02-28-2013, 06:00 PM   #3422
NEmel
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So happy for you and Angel Christi!!!

We have had a lot of contact with our wish granters. One did a photo shoot for the boys and the other and I talk quite a bit. Everytime I have a question I usually email them. A couple of times I have emailed the MAW coordinator. Both are young so they are a lot of fun, plus it it one of their first wishes so pretty special for her. They have both been great and I plan on staying in contact with them.
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Old 02-28-2013, 10:47 PM   #3423
angel's momma
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Quote:
Originally Posted by LittleEsmom View Post
so HAPPY for your dates
Thank you

Quote:
Originally Posted by uk mum View Post
Thanks...we r so excited....93 days till we leave !! We r still trying to sort some bits out as our daughter is tpn dependant and can't eat or drink so charecter meals etc aren't really a good idea but I'm sure we will have an amaxing time...
Yes, you will

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Originally Posted by Mom2M07 View Post
Ok ... I'm jealous! Happy for you guys, since I know you've been waiting awhile for dates and had crazy complications. But jealous b/c I want our dates SO badly
Thank you I totally understand Hope you get your dates soon

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Originally Posted by Jakentysmom View Post
Christi- woohoo for dates!!! We will be there the same time!!! Where are you guys staying? Also, we heard from our wish granters one time when they came over. Then we are going to a hockey game with them next weekend. But that was decided when they came over because Jacob is a big fan and their company just happen to have tickets. I have not heard from them since and that was last month. But I emailed asking for an update and he did not even say a word to me...just forwarded the email convo he had with the wish manager.
Thank you I noticed that we overlap We're staying at Pop, that's where we've always stayed. Have a great time at the hockey game

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So happy for you and Angel Christi!!!

We have had a lot of contact with our wish granters. One did a photo shoot for the boys and the other and I talk quite a bit. Everytime I have a question I usually email them. A couple of times I have emailed the MAW coordinator. Both are young so they are a lot of fun, plus it it one of their first wishes so pretty special for her. They have both been great and I plan on staying in contact with them.
Thank you I knew that you've had a lot of contact with yours, and with your chapter, which is so wonderful.

I just thought that our wish coordinator is doing things that I thought the wish granter usually took care of.
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Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 03-01-2013, 12:40 AM   #3424
momma31
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what to expect

Hello,
I am new to the board. I came across this board trying to find information about an upcoming disney trip through MAW. My dd was granted a wish for disney world. I am a big planner. Thing only thing i have been told is that my dd trip will be in april. We have never been to disney so I do not know what to expect. What will the weather be like? What do i need to bring with us? How much money should I save? Should i take her wheelchair or her medical stroller? Sorry for alll the questions, I am a person that likes to know about everything and in this I know nothing lol.
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Old 03-01-2013, 02:11 AM   #3425
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momma31 Yay that DD is getting her wish
I'm up way later than I should be, but I'll be back later to try to answer your questions - I'm guessing somone will answer before then though
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Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 03-01-2013, 06:19 AM   #3426
Mom2M07
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Originally Posted by momma31 View Post
Hello,
I am new to the board. I came across this board trying to find information about an upcoming disney trip through MAW. My dd was granted a wish for disney world. I am a big planner. Thing only thing i have been told is that my dd trip will be in april. We have never been to disney so I do not know what to expect. What will the weather be like? What do i need to bring with us? How much money should I save? Should i take her wheelchair or her medical stroller? Sorry for alll the questions, I am a person that likes to know about everything and in this I know nothing lol.
We actually haven't gone on our MAW trip yet (we're hoping for late April to mid-May for us) but think I can answer some of your questions. The weather should be nice .... hot (70s to upper 80s), but not terribly so. There will be some rain, as there always is in FL, but nothing that should last long or interrupt your vacation. Are you staying at GKTW? If so, youll have a washer/dryer in your unit. You'll need to bring clothes, toiletries, any and all medical supplies that your daughter requires, extra space to bring home special goodies, etc. MAW will give you spending money. I don't know how much they give (depends on lots of factors, I think) but it should be enough to cover food and expenses and give you all a good time. If you plan lots of character meals or special experiences, you may need more money than they provide, but you should be fine for basic expenses with a few extra treats. As far as medical stroller vs. wheelchair - we are still trying to answer that same question! How old is your daughter? What are her needs, support-wise? I'd bring whatever supports her best and is most comfortable. I know that my daughter fatigues quickly, so we need to plan for the worst and expect the best for her! We'll probably bring our wheelchair, but if your medical stroller gives enough support, you may find that easier to manage.

So happy to hear that your daughter is receiving her wish!
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Old 03-01-2013, 08:10 AM   #3427
Kirlinale
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Quote:
Originally Posted by Mom2M07 View Post
Question for those previous Wish families with wheelchairs ....

Maddie has several different adaptive chairs/strollers, due to her varying needs on any given day. We have a Convaid Cruiser (for her "I'm feeling pretty good, but need some support so that I don't crash" days), a Snug Seat Stingray (large, adaptive stroller/wheelchair with all the supports she needs for her "can't stay awake or lift my head" days) and just got a second-hand Quickie Kidz manual chair that she is beginning to learn how to self-propel. Originally, I assumed that we'd bring the Convaid, since it folds easily and has moderate support for her. But it doesn't recline at all, and she'll have times that she really does need to rest. The Quickie manual chair is out, since it doesn't have enough support to account for her tired days. So then I'm left with with Stingray, which is super supportive, tilts, reclines, and has everything that she needs. It's a bit overkill for her "good days" but perfect for her "low battery days." But it's heavy and huge and cumbersome to handle. We would definitely need to gate check it. So, I guess my question is should we bring the Stingray chair, gate check it, and just deal with the heavy, cumboersome nature of it? Should we bring the Convaid, which is much easier to handle and would be fine for anytime that she doesn't need to fully recline? Or should we rent a regular, reclining, jogging type stroller, which would probably be ok (she's small enough for a regular stroller) but that we wouldn't have available at the airport if we need it and wouldn't have all the supportive features of her adaptive chairs? For those who gate-checked wheelchairs, did they get damaged? That's one of our big concerns, since this is the chair we'll have for the next few years.

Also, I know I shouldn't worry about what people think, but would it be odd to see a child who looks relatively normal and energetic on a "good day" using a chair that obviously has a lot of supports (laterals, harness, etc.)?


Firstly - don't give a hoot what ANYONE thinks..

I've been to WDW and DL 7 times since Kira was born.. She was 4 months old our first trip... Just a quick medical orientation - Kira has a brain tumor, epilepsy (intractible due to unreated cortical dysplasia) Completed 2 1/2 years of chemo when she was three - Crainiotomy (open brain surgery) when she was three when her Brainstem tumor was determined to be inoperable. Has had numerous hosptial stays in ICU for status seizures - some lasting weeks - Has at least one seizure a day to 100's depending on day - takes 4 seizure meds w/ moderate control - is in surgical review for possible removal of the dysplasia - She is also developmentally delayed, has some physical disabilities as well as some behaviour - That's just the short list...

That being said - Her needs change daily - sometimes she needs a wheelchair , sometimes not, sometimes she looks and appears totally typical and sometimes not... We have had varying issues at WDW w/wheelchairs and strollers so I will try to help you best I can ...

When she was an infant - this was not an issue...

When she was three - we used a regular stoller but got a 'stroller as a Wheelchair' tag for her - we also had an umbrella stroller for those 'good' days and getting around to short trips to downtown disney, dinner, the resort...

Our next trip we took our McClaren Special needs stroller chair - This was good but it did not allow for her to rest a it only had a slight recline. It was light and easy to use - and had no problems with Gate Checking it.. This was the easiest one to use - but at the same time - got a lot of questions from CM's as to whether or not it was a 'Wheel Chair' which got annoying .

The next two trips we took an umbrella stroller for the quick trips around resort , dinner etc.. and her Safari Tilt in Space (my all time favorite chair) - however, the Safari is a pain in the butt to lug around did not fit easy in the trunk of rental cars - and we did not by the carrier case for it so it got banged up gate checking it - BUT having something that FULLY reclined was more valuable - Kira needed to rest , especially after seizures - which with any other chair would require us going back to a room or lounge .. having her able to sleep in the chair allowed us to stay and enjoy our time.. BUT it was a pain to manuveur through the crowds when reclined.. and it was very big to handle... If she was smaller I would have rented a Jogging Stroller which would be easier and give more shade and storage - plus you would not risk the airline issues or having to lug it all over.. I know MAW can help secure rentals ...

Our last is the Convaid Cruiser Meto - Which I have now and I love .. it's light, easy to use , and comfortable - but does not recline.. which I miss... she no longer fits her safari so we donated it and I am now looking at other options...

Kira has had good days and bad at WDW and DL and it was totally necessary to have options...

If I were to do it again -

I would bring the lightest , easiest chair you can .. McClaren type or Convaid ... Rent a Jogging Stroller (two seater if you can so you can put a pillow and some extra stoage ) With the MAW Gac and Stroller as a WC tag you should have no problems.. At the airport having a light stroller a blessing and a cheaper one incase of damage... We have used the accessible in airport transportaion (golf carts) for the bad days - used the light chairs for the good ones..

For our MAW trip ... We are going on the Disney Dream - then a few days a Universal (extention) .. was going t do Disney parks but our older kids want to go to Universal and it's better on my wallet...

I am taking her Metro Chair for the Cruise , airports and light travel. I am looking into renting a reclining chair or larger chair for the universal part of the trip ..

If your child is small enough a Wagon could work out well too...

HAve a great trip!!!
Nicole
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Old 03-01-2013, 11:15 AM   #3428
Kktraylor
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Found out good news today...because Ava's IQ identifies her as "exceptionally gifted", they're sending out a gifted teacher for her. Now I don't have to stress about no doing enough. :-). Other than that...nothing new. We haven't heard anything on our dates, which means we can't really make plans for the rest o our family yet. We haven't figured out how we'll get the money yet anyway. Lol
Kristy
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Old 03-01-2013, 03:04 PM   #3429
esbelcher99
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MAW trip in 3 weeks

We are going on our MAW trip the last week of march. We are staying at the Animal Kingdom Resort, not GKTW. My question is, will we still be eligible for the same perks inside the park as the gktw families. Also, will we be able to visit gktw?
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Old 03-01-2013, 04:03 PM   #3430
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Ja's wish grantor's ears must have been burning, because last night I received an email from her She sent some cute certificates confirming our Akershus, 'Ohana, and BBB reservations. She said there's also something in the mail for Ja's birthday.


Quote:
Originally Posted by momma31 View Post
Hello,
I am new to the board. I came across this board trying to find information about an upcoming disney trip through MAW. My dd was granted a wish for disney world. I am a big planner. Thing only thing i have been told is that my dd trip will be in april. We have never been to disney so I do not know what to expect. What will the weather be like? What do i need to bring with us? How much money should I save? Should i take her wheelchair or her medical stroller? Sorry for alll the questions, I am a person that likes to know about everything and in this I know nothing lol.
Yay for a wish! We'll be there April 27 - May 4 The weather better be nice, because I want to go to the beach, darnnit!!
I've found that reading people's trip reports have really helped with figuring out what to expect.


Quote:
Originally Posted by Kktraylor View Post
Found out good news today...because Ava's IQ identifies her as "exceptionally gifted", they're sending out a gifted teacher for her. Now I don't have to stress about no doing enough. :-). Other than that...nothing new. We haven't heard anything on our dates, which means we can't really make plans for the rest o our family yet. We haven't figured out how we'll get the money yet anyway. Lol
Kristy
That is spectacular about the gifted teacher!
Hope you get dates soon so you can figure things out.


Quote:
Originally Posted by esbelcher99 View Post
We are going on our MAW trip the last week of march. We are staying at the Animal Kingdom Resort, not GKTW. My question is, will we still be eligible for the same perks inside the park as the gktw families. Also, will we be able to visit gktw?
Yes, you'll be able to visit GKTW. If we weren't at the village, AKR is where I would have loved to stay. You must be getting excited with the trip so close!
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Old 03-01-2013, 04:06 PM   #3431
esbelcher99
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Quote:
Originally Posted by JWCJ View Post
Ja's wish grantor's ears must have been burning, because last night I received an email from her She sent some cute certificates confirming our Akershus, 'Ohana, and BBB reservations. She said there's also something in the mail for Ja's birthday.




Yay for a wish! We'll be there April 27 - May 4 The weather better be nice, because I want to go to the beach, darnnit!!
I've found that reading people's trip reports have really helped with figuring out what to expect.




That is spectacular about the gifted teacher!
Hope you get dates soon so you can figure things out.




Yes, you'll be able to visit GKTW. If we weren't at the village, AKR is where I would have loved to stay. You must be getting excited with the trip so close!
We are very excited! Just found out today when we are going so we are trying to start planning
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Old 03-01-2013, 08:46 PM   #3432
kalimom6
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Quote:
Originally Posted by esbelcher99 View Post
We are going on our MAW trip the last week of march. We are staying at the Animal Kingdom Resort, not GKTW. My question is, will we still be eligible for the same perks inside the park as the gktw families. Also, will we be able to visit gktw?
I think I read a trip report recently where they stayed on wdw property but went to GKTW for their orientation/tickets. If GKTW is full people do have to stay elsewhere. Beings your trip is coming up I would contact GKTW with your questions.
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Old 03-01-2013, 09:19 PM   #3433
LittleEsmom
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Quote:
Originally Posted by esbelcher99 View Post
We are going on our MAW trip the last week of march. We are staying at the Animal Kingdom Resort, not GKTW. My question is, will we still be eligible for the same perks inside the park as the gktw families. Also, will we be able to visit gktw?
We will be there March 23-29!
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Old 03-01-2013, 09:21 PM   #3434
LittleEsmom
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Quote:
Originally Posted by Kktraylor View Post
Found out good news today...because Ava's IQ identifies her as "exceptionally gifted", they're sending out a gifted teacher for her. Now I don't have to stress about no doing enough. :-). Other than that...nothing new. We haven't heard anything on our dates, which means we can't really make plans for the rest o our family yet. We haven't figured out how we'll get the money yet anyway. Lol
Kristy
YAY for the gifted teacher
Praying you find out your dates really soon
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Old 03-02-2013, 05:28 AM   #3435
angel's momma
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esbelcher99

Quote:
Originally Posted by JWCJ View Post
Ja's wish grantor's ears must have been burning, because last night I received an email from her She sent some cute certificates confirming our Akershus, 'Ohana, and BBB reservations. She said there's also something in the mail for Ja's birthday.
Yay! I especially love Ohana
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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