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Old 02-23-2013, 02:23 PM   #166
Kktraylor
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Originally Posted by Kktraylor

They sent us some wrist bands and said Ava doesn't qualify for a joy jar. :-(
It's ok though. Ava's is rare and not many people know about it. And most that have it don't have a life threatening form. What kind of things do they put in there? I may make her one myself.
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Old 02-23-2013, 03:20 PM   #167
angel's momma
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Aw Kristy, I'm sorry they said she doesn't qualify. It was just little trinkets - Angel's had the giraffe scarf, 2 tiny little princess pens, princess notepad, NEGU bracelet, NEGU playing cards, valentine socks, tiny valentine activity booklet, knitted hat, rubber giraffe, 2 small playdohs, a tiny flower pot kit, and a NEGU shoulder buddy (never seen anything like it, a tiny figure that has a magnet that slides in your sleeve so you can wear the figure on your shoulder).
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 02-23-2013, 03:34 PM   #168
Jakentysmom
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They sent us some wrist bands and said Ava doesn't qualify for a joy jar. :-(
Aww boo!! Thats too bad. They sent me an email shortly after saying that Jacobs will be stuffed at their factory this week! woohoo!! He LOOOVES getting packages/letters in the mail!
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Old 02-23-2013, 03:37 PM   #169
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Aww boo!! Thats too bad. They sent me an email shortly after saying that Jacobs will be stuffed at their factory this week! woohoo!! He LOOOVES getting packages/letters in the mail!
They had sent me one saying that too.
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Old 02-23-2013, 03:56 PM   #170
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Here's the shirt, and cute little shoulder buddy.


Close up of shoulder buddy

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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 02-23-2013, 04:01 PM   #171
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Tom & Angel's passports came today. Still no BC.
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 02-23-2013, 04:03 PM   #172
Kktraylor
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Tom & Angel's passports came today. Still no BC.
Yay!!! Hopefully your bc comes soon.
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Old 02-23-2013, 04:23 PM   #173
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Here's the shirt, and cute little shoulder buddy.

Close up of shoulder buddy
That is so cute!!
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Old 02-23-2013, 04:24 PM   #174
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Originally Posted by angel's momma
Tom & Angel's passports came today. Still no BC.
Yea!!!!! I hope you will get your bc soon!
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Old 02-24-2013, 12:49 AM   #175
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Thanks Kristy & Melissa
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 02-24-2013, 10:42 AM   #176
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They had sent me one saying that too.
And they still ended up denying you?!? Thats not cool. Now it makes me wonder about us haha. Jacobs mitochondrial disease is pretty rare too. Not to many people have ever heard of it.
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Old 02-24-2013, 10:44 AM   #177
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Here's the shirt, and cute little shoulder buddy.


Close up of shoulder buddy

That shoulder buddy is so dang cute!!! So is the shirt. YAY for passports. Sorry no BC tho =(
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Old 02-24-2013, 01:18 PM   #178
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Thanks Britney
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
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Old 02-25-2013, 01:58 AM   #179
Lilfoot93
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So glad the passports have finally arrived!! I hope your BC gets here soon and you can get your dates for this spring.

Jackie
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Old 02-25-2013, 02:31 PM   #180
angel's momma
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Thanks Jackie


I was so very excited that my BC finally arrived today - until I opened it. I ordered a certified copy, but they sent a certified informational copy. I double checked my copy of the application, and it's correct - they messed up on their end. I called, and was told they'll investigate & get back to me. I politely said that it needs to be taken care of today, but the best I could get was that a supervisor will call me back today. I'm not holding my breath. The BC was actually completed 2/13, but wasn't mailed until 2/19.

I drove to town & took the certificate to show the passport application processor, and they called the Chicago office for me (the applications are processed in PA though). The person they spoke to said that since it's certified, it will work, but the fact that it's stamped "not for identification purposes" makes that very doubtful. The earliest application appt. available was for Wed.

The wish coordinator emailed again to see if it had come yet. I didn't tell her yet that there's a problem with it. She said that the cruise is only on hold until the end of the week. If I apply for my passport on Wed., she can approve the cruise. But what happens if my BC doesn't work after all? Our wdw portion has to be paid in full this weekend also, and if it's cancelled after that, we'll lose the deposit.
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Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM

Last edited by angel's momma; 03-05-2013 at 03:10 AM.
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