Fibromyalgia Thread

[SeaSpray]

Hello from the blizzard in Massachusetts

We're in the area that is forecasted to get up to 30" of snow

Lights are flickering and I hope that we don't lose power.

I hope everyone is doing ok.

Originally Posted by mommasita

Tooth aches are just hard to deal. Happy you have no cavity, but totally get you on that other point.

Rough appointment yesterday due to the fact that I forgot what floor the Neuro was on THREE TIMES. I went down they told me, I tried again, and so on. They found me roaming around looking like an in patient... Time for some medical alert bracelets. Or a sticky saying, " HI, I AM MOMMA, IF FOUND PLEASE RETURN". . Just kidding today about it, yesterday I wasn't.

Hope you are all doing ok, and fairing as well as you can in the storm. Snowing here, but seems we are getting off easy for once..

Sorry to hear about your confusion yesterday Thats scary when it happens.

Originally Posted by tiggspring

Well my tooth ache has had babies! LOL. Now three teeth feel that zing. Meanwhile a tooth on other side with a real cavity feels fine . At least here in Western PA we are just getting a smattering of ice.

For my fibro friends in NE stock up on the pain killers and man the shovels! Snowmagedden is comming! Looks like one like we had up there in 1978. That year the house across from us had snow over the roof! Snowed in for more than a week.

Stay warm and pain free.

Pixie dust coming your way from pa and (((HUGS))) too

Ugh, I hate tooth pain, and I can relate to the tooth sensativity.

I am all stocked up here with my meds. lol

[mommasita]

Bunker down, and pray like crazy for no loss of power.

We got some major snow, not as much as December, that seems to be what you all are getting. but I think we don't react the same. Stay safe friends..XO check in when you can..

[tiggspring]

Originally Posted by mommasita

Bunker down, and pray like crazy for no loss of power.

We got some major snow, not as much as December, that seems to be what you all are getting. but I think we don't react the same. Stay safe friends..XO check in when you can..

Its not so much the snow its the type of snow (very wet/icy) and the hurricain force winds that are the problem. Add to that New Englanders think they can live through and should work through anything and you have recipient for disaster. We got just as much snow here two years ago but its light enough to take a broom to. Snow blowers have a tough time on the coast then you throw whole ocean tide thing and you have a mess. New England +Nova scocia really have very unique weather. Makes me Love W.Pa snow pretty and easy to handle. All my frends and family live in the major snow belt and all kept their power. Those right on shore got less snow but now no power

I'm up/down today.

Hope all is well with you all.

Pain free vibes and pixie dust from PA!

[tiggspring]

Seaspray

I just realized your home town is the Jersey shore. So sorry for what happened down there!!! We may leave but a little piece of are hearts always stays behind doesn't it? Hope your family and friends down there did ok.,

[tiggspring]

Well its Monday again. I think i'm feeling better. Trying to decide whether to enjoy my quiet time without the kids on one of only two days kids don't have activities or get up and get things done. Cant quite figure out if that will trigger a increase in symptoms...mmmmm

How are you all today?

[mommasita]

Hi there.

Spent a good part of the night up with a vomiting 13 year old. No matter the age, they want their Mom's. She is better now, and I went to get groceries in this crapstastic weather. Ick. Snow, rain, ice, sleet. .. I am a little tired.

My step-father just called that my mother fell again, and is gone by ambulance. I am waiting to see. I am not wanting to go with the germs I am probably carrying you know? The usual is her wanting more morphine, so I will ride this out for now, and see if it is the same situation.

I am doing ok except for one arm. It is about 2 days now I can't lift it at all. VERY sore. Hoping it gets better. Tomorrow I am off to the gyno for a talk about what to do about this nonsense. That is early (for me) 8:15. We did a check up in November, so this is a discussion on surgery. Then I have pysio Wednesday... Then nothing WOOHOO!

I hope your head remained calm, and a wishing everyone a nice day.

[tiggspring]

Originally Posted by mommasita

Hi there.

Spent a good part of the night up with a vomiting 13 year old. No matter the age, they want their Mom's. She is better now, and I went to get groceries in this crapstastic weather. Ick. Snow, rain, ice, sleet. .. I am a little tired.

My step-father just called that my mother fell again, and is gone by ambulance. I am waiting to see. I am not wanting to go with the germs I am probably carrying you know? The usual is her wanting more morphine, so I will ride this out for now, and see if it is the same situation.

I am doing ok except for one arm. It is about 2 days now I can't lift it at all. VERY sore. Hoping it gets better. Tomorrow I am off to the gyno for a talk about what to do about this nonsense. That is early (for me) 8:15. We did a check up in November, so this is a discussion on surgery. Then I have pysio Wednesday... Then nothing WOOHOO!

I hope your head remained calm, and a wishing everyone a nice day.

Sorry your family is in such chaos right now. Not easy to get hit from multiple sides and deal with Fibro but somehow we do it.

On a cooking note I tried something in my crockpot that worked really well. I had bottle of drk beer and apple butter in house. Took roast, cup of apple butter, 1 bottle drk beer and 1 chopped onion and threw in some baby carrots for good measure it came out great! Onion added nice flavor to beer/applebutter. If you have some frozen onion you have a meal together in about two minutes. Then 5hr to cook. Yum.

[RNMOM]

I was hoping all of you NEasters survived the snow okay. We in NE Ohio get one of those kinds of storms every decade or so. I kinda like having a heavy snow episode. We used to live in "the snow belt" which is infamous in Ohio. They get 3-4 times as much snow there as the rest of the area and there are still people who live there willingly!

I know from experience to keep pretty well stocked up in the kitchen and bathroom areas in the winter as well as meds. There isn't much you can do but live with it so have fun. Bake cookies while you have power and make sure you have all your things charged up.

I have been feeling better with my autoimmune and fibro stuff. My white count came back up with the lowering dose of methotrexate. The only increase in pain is my hands and toes. Unfortunately my face is a mess. I have very sensitive skin and the psoriasis has been getting on my face too. I think I need to see if my dermatologist will try some low dose steroids for a while. I tried her way with the tetracycline pills and creams. I was a bright red mess and it itched and burned. It is getting about half that bad now. I can't find a moisturizer that doesn't make it worse and my skin is actually flaking off. I have even tried olive oil and vaseline.
I use Cetaphil to clean my skin. I have come to the conclusion that I am allergic to the base they put medicines in, the cream. I seem okay with the ointments but lotions and creams make me react. What a mess. I am tired of looking at it.

[mommasita]

TY Tigg. OH MY, that sounds SOOOO tasty! I am a lousy cook, and need to buy a crockpot for sure. I hope to remember where to find the recipe, or even to ask you.

RNHOM. I have terrible hands and feet. I feel you there. Glad your white is back up, that certainly makes us feel weak and just plain horrible. My skin is sensitive as well. I can only use very few things, a dermo is a great idea for you.


So what a freakinnnng day. I never gave in and went to the hospital for my Mother, and was certainly glad. Last night my back starting aching, and we had 3 hours of freezing rain. FFwd to this morning, and I was not able to move. DH actually left work early and we went to the ER. I have kidney stones, and they didn't waste any time with me. CT scans, etc. They actually tested me in the Triage by saying it was 5 hr wait. Well I crumpled and said NO WAY, thanks but I am going home. They said ok, we see, come in the back. So hours later I am on some pain meds, and hoping these suckers pass. I have had 2 children, brain surgeries, spinal surgery, and quite honestly the pain today was SO much worse.
Mother is home and happy with some morphine . Nothing broken, nothing wrong.

Well wishing you all the best. Excuse anything weird. The pills

[tiggspring]

Originally Posted by RNMOM

I was hoping all of you NEasters survived the snow okay. We in NE Ohio get one of those kinds of storms every decade or so. I kinda like having a heavy snow episode. We used to live in "the snow belt" which is infamous in Ohio. They get 3-4 times as much snow there as the rest of the area and there are still people who live there willingly!

I know from experience to keep pretty well stocked up in the kitchen and bathroom areas in the winter as well as meds. There isn't much you can do but live with it so have fun. Bake cookies while you have power and make sure you have all your things charged up.

I have been feeling better with my autoimmune and fibro stuff. My white count came back up with the lowering dose of methotrexate. The only increase in pain is my hands and toes. Unfortunately my face is a mess. I have very sensitive skin and the psoriasis has been getting on my face too. I think I need to see if my dermatologist will try some low dose steroids for a while. I tried her way with the tetracycline pills and creams. I was a bright red mess and it itched and burned. It is getting about half that bad now. I can't find a moisturizer that doesn't make it worse and my skin is actually flaking off. I have even tried olive oil and vaseline.
I use Cetaphil to clean my skin. I have come to the conclusion that I am allergic to the base they put medicines in, the cream. I seem okay with the ointments but lotions and creams make me react. What a mess. I am tired of looking at it.

I wish I had a good answer for you on the skin irritations. If it was breakouts I would recommend the Tanda Zap . It clears up my blemishes in hrs instead of a week or more.My daughters dance team uses mary kay cosmetics because they haven't had one girl react to it. Have you tired them? I seem to remember they have a moisturizer. Maybe you could get a rep to give you a sample.

I dont know about you but the hardest thing for me to deal with emotionally is how this disease makes me look. I'm tough I can deal with a long migraine run and while I might have a day when I lose it, I'm not discouraged. But the weight (from 8 to 20) the major change in the size of my breasts (36b to 44dd. Larger at times...). These things change how people look at me. They make judgements that are not true and I find that very discouraging. I know beacuse when I lost weight right after the birth of my son I noticed significant difference in how people made eye contact when they talked to me in stores etc proving what I had felt for yrs but had chalked up to me being sensitive.

I totally get your sensitivity re: Creams. I actually have significant breathing problems with foot lotions that contain Lidocaine yet no problem with Lidocaine injected for my 3 epidurals. I'm not allergic with them separate but together wow!

Hang in there! Hope your face clears up soon.

[tiggspring]

Originally Posted by mommasita

TY Tigg. OH MY, that sounds SOOOO tasty! I am a lousy cook, and need to buy a crockpot for sure. I hope to remember where to find the recipe, or even to ask you.

RNHOM. I have terrible hands and feet. I feel you there. Glad your white is back up, that certainly makes us feel weak and just plain horrible. My skin is sensitive as well. I can only use very few things, a dermo is a great idea for you.


So what a freakinnnng day. I never gave in and went to the hospital for my Mother, and was certainly glad. Last night my back starting aching, and we had 3 hours of freezing rain. FFwd to this morning, and I was not able to move. DH actually left work early and we went to the ER. I have kidney stones, and they didn't waste any time with me. CT scans, etc. They actually tested me in the Triage by saying it was 5 hr wait. Well I crumpled and said NO WAY, thanks but I am going home. They said ok, we see, come in the back. So hours later I am on some pain meds, and hoping these suckers pass. I have had 2 children, brain surgeries, spinal surgery, and quite honestly the pain today was SO much worse.
Mother is home and happy with some morphine . Nothing broken, nothing wrong.

Well wishing you all the best. Excuse anything weird. The pills

I hear kidney stones are terrible! Don't get that break from pain like you do in between contractions and of course no epidural either! Glad you were able to focus on yourself instead of your mothers drama. My brother is an addict and my mo is a DRAMA MAMA so I know how hard that is. Biggest blessing to being 11 hrs away is I cant, so don't respond to the drama. LOTS AND LOTS OF PAIN FREE VIBES.

On the crock pot you really need to get one! I use mine several times a week. I buy roasts when they are BOGO free. Then I freeze them. Unthaw enough so it will cook in 5 hrs. I can throw in a roast or chicken and add half bottle on most salad dressings (asian ones work well) and pow dinner is done. Then I have recipies for 5 flavor chicken and Christmas hams, roasts etc. I love mine

Well I did get a migraine yesterday i think that makes 3 days without one since Christmas break BUT it only lasted a few hrs and around 1pm I was able to start cleaning and cleaned til 7 I was finally able to get my bedroom and bathroom clean. Stuff that had been sitting since we returned from wdw in Dec is finally put away Good thing too because after Presidents day a friend of ours is coming to stay so they can see a Specialist they dont have in WV where they live. I would do anything to have a truely clean house. One with no piles of stuff to "sort" that i know might sit there a yr or more I have things in laundry baskets down in my basement from last winter that I need to sort/toss but when do you do that when your barely can get dinner on the table?. Any day I can clean is a HAPPY DAY.

Well better shut up now.

Sending pain free vibes and pixie dust to all!

[mommasita]

Thank you. It honestly is the worst pain ever. I am feeling better this afternoon, as they told me I might. Still just loafing around..

I will look into that Crock Pot this week. It will help.

I get you on the cleaning. It makes me happy beyond belief when things are done. I "try" to follow a schedule, but like all of us here, that simply isn't always the case. Glad your head cleared up so quickly, and didn't ruin your entire day.

[tiggspring]

When you look at crock pots make sure you get one with removable crock and warm mode. I just throw mine into dishwasher Also consider spending a little more for a meat probe. It will automatically turn crock to warm mode when its done. The lower the heat/longer cook time the better but I'm forever using mine on high for 4 hrs because i don't even feel like taking roast out of package in the am

[mommasita]

Thanks. I will have to come back to this.

Ended up back in the ER. GOING NUTS with pain. JUST NUTS.

It is 4:33 I am just in. The Dr said there is too much blood in my urine, and honestly I haven't slept since Saturday night. I am a walking zombie. So I have to be there for 8 for another scan. The Urologist will be at the ready to go in and get them. I don't know why this freaks me out after everything else, maybe it is just exhaustion, but I am scared..

Please think good thoughts for me everyone.

[tiggspring]

Originally Posted by mommasita

Thanks. I will have to come back to this.

Ended up back in the ER. GOING NUTS with pain. JUST NUTS.

It is 4:33 I am just in. The Dr said there is too much blood in my urine, and honestly I haven't slept since Saturday night. I am a walking zombie. So I have to be there for 8 for another scan. The Urologist will be at the ready to go in and get them. I don't know why this freaks me out after everything else, maybe it is just exhaustion, but I am scared..

Please think good thoughts for me everyone.

Oh Momma hang in there! ((((HUGS))))

Sending pain free, healing thouts your way