Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 02-06-2013, 11:27 AM   #1
Rx774
Mouseketeer
 
Rx774's Avatar
 
Join Date: May 2012
Posts: 116

Annika's Make A Wish Trip.

Good Afternoon, i'll try to keep this Pre-Trip Report brief. I've actually told this story before already on here, but i did it with my son's MAW Trip Report, so i'll try to give you guys the cliff notes version this time around. I have a lovely 11 YO daughter, that means the world to me. She was born in 2001, and shortly afterward diagnosed with a rare metabolic disorder called MSUD. It basically prevents her body from metabolizing high amounts of protein. Too much protein in her system, eventually works its way to the brain, where it can become toxic and starts to damage the brain. In dozens of occasions over the years Annika has lost the ability to hear, walk correctly and even talk correctly, and has even seizure.


Annika and her brother Christian

In a perfect world, just monitoring her protein intake would be a perfect balance. But unfortunately with this condition, other things can set it off like stress, colds, any type of infection that messes with your body's metabolism. She has been given excellent care at Philadelphia's Children's Hospital. About 6 years end, after thinking we'd have to deal with this forever, it was brought to our attention that a liver transplant would make it easier to cope with her disease. While not being a cure genetically, it would offset all the negative effects of MSUD, while allowing her to eat a normal diet. We at first put it off, thinking it was a bit too much for a young child to endure, but after a bad spell with my son Christian (also born with MSUD) which almost lead to his death, we decided to no longer gamble with this disease. MSUD can and has unfortunately taken people out at any age. So if we were going to get it done with 1 child, might as well do both.

Prior to getting ok'd for the transplant list, they have to make sure your body is physically ready. Upon scans, they discovered she had a hole in her heart. To my surprise... it was a day procedure. She was home the next day. Its amazing what our medical science can do. Snaked the tools right up her femoral artery, and closed up the hole from the inside. Anyway, she was ready, and eventually got her transplant. We've even made friends with the parent of the her donor, which is extremely, extremely rare. Even made the local newspaper in doing so.

Anyway, our wish granters came last May and listened to Christian and Annika's Wishes. She wanted to do a Disney Cruise, and no way we could of done it by August, that close, especially since we didn't have passports yet. So we did Disneyland/Universal Studios last year, and this year, Annika gets her special wish .. a Disney Cruise in Mid-August (right after her birthday). We can't wait!!!
__________________
D (39) M (36) Annika - Wish Kid #2 (12) Christian - Wish Kid #1 (7) Dylan (3)
Christian's Make A Wish Trip Report

Annika's Make A Wish Trip Report

Last edited by Rx774; 02-06-2013 at 11:55 AM.
Rx774 is offline   Reply With Quote
Old 02-06-2013, 12:39 PM   #2
Skybabyy
In my Laughing Place
 
Skybabyy's Avatar
 
Join Date: Sep 2012
Location: California!
Posts: 28

<333

Touching and incredible story, I am so excited to read on and hear about your magical time together on a Disney cruise!! Your children are beautiful
Skybabyy is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 02-07-2013, 12:36 AM   #3
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 758

I am so glad Annika gets her wish!

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 7 (wish kiddo) Allie DD 4 Kara DD 4
Lilfoot93 is offline   Reply With Quote
Old 02-07-2013, 07:01 AM   #4
Rx774
Mouseketeer
 
Rx774's Avatar
 
Join Date: May 2012
Posts: 116

Thank You both.
__________________
D (39) M (36) Annika - Wish Kid #2 (12) Christian - Wish Kid #1 (7) Dylan (3)
Christian's Make A Wish Trip Report

Annika's Make A Wish Trip Report
Rx774 is offline   Reply With Quote
Old 02-07-2013, 05:12 PM   #5
angel's momma
DIS Veteran
 
angel's momma's Avatar
 
Join Date: Jan 2004
Location: Central Illinois
Posts: 4,014

So sorry that Annika & Christian have been through so much. So glad Christian got his wish, and that Annika will be getting hers. When someone posted on the Wish Trippers thread a few weeks ago about going to DL instead of WDW, I was curious about how it was handled there, and read part of Christian's TR.

Is everything set for Annika's cruise? Like dates, excursions, accomodations, etc?

With Angel's cruise potentially in April, I'm stressing out over passports, etc.
__________________
Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM

Last edited by angel's momma; 02-08-2013 at 11:56 PM.
angel's momma is offline   Reply With Quote
Old 02-08-2013, 11:35 AM   #6
Rx774
Mouseketeer
 
Rx774's Avatar
 
Join Date: May 2012
Posts: 116

Quote:
Originally Posted by angel's momma View Post
So sorry that Annika & Christian have been through so much. So glad Christian got his wish, and that Annika will be getting hers. When someone posted on the Wish Trippers thread a few weeks ago about going to DL instead of WDW, I was curious about how it was handled there, and read part of Christian's TR.

Is everything set for Annika's cruise? Like dates, excursions, accomodations, etc?

With Angel's cruise potentially in May, I'm stressing out over passports, etc.
Yes, indeed. We sail off on the 18th of August. Don't know anything else yet, that's why i try to pay attention to those families who also have cruise's. We were told last year, that MAW tries to plan other events to make up the remainder of the days. So we'll see. To me... the cruise is enough.

Places like here, are the only place were you can discuss MAW, where people can relate. Don't get me wrong, close family and friends understand your plight. But i can recall telling coworkers about my son's upcoming MAW trip, and you can tell by the look on their face was like, "Wow, you are getting all this for free???" Internally, i'm saying, i will trade in 100 free Disney trips for my children, never to have endured what they've gone through so far. My daughter, especially, suffered for years behind her illness.
__________________
D (39) M (36) Annika - Wish Kid #2 (12) Christian - Wish Kid #1 (7) Dylan (3)
Christian's Make A Wish Trip Report

Annika's Make A Wish Trip Report
Rx774 is offline   Reply With Quote
Old 02-09-2013, 12:16 AM   #7
angel's momma
DIS Veteran
 
angel's momma's Avatar
 
Join Date: Jan 2004
Location: Central Illinois
Posts: 4,014

We read all the MAW cruise trip reports too, and they seemed to be consistent in the details, so we thought we had a pretty good idea what to expect, but so far our experience has been very different.

Too often we've had comments made about how "lucky" Angel is - getting a cruise, not having to go to school (though she was heartbroken over it), that she doesn't have cancer. People simply don't understand what our kids (and families) have to go through.
__________________
Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
angel's momma is offline   Reply With Quote
Old 02-09-2013, 09:52 PM   #8
pinkorange
Earning My Ears
 
Join Date: Nov 2012
Location: South Jersey
Posts: 17

Thank you for the msg on Helena's PTR. We are also a CHOP family.

I completely agree with you that it is nice to find people who can relate a bit to what your are going through. These MAW trips give our children so much to look forward to and help them to feel like regular kids for a little while. I don't think anyone who hasn't been touched by a serious illness can truly understand what it is like. It's like the people who say that they have pets (but no children) and think that their pets are exactly the same as children. I don't quite think they really get it. I love my pets, but I LOVE my children in a much, much deeper way.
pinkorange is offline   Reply With Quote
Old 02-13-2013, 11:52 PM   #9
angel's momma
DIS Veteran
 
angel's momma's Avatar
 
Join Date: Jan 2004
Location: Central Illinois
Posts: 4,014

__________________
Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
angel's momma is offline   Reply With Quote
Old 02-28-2013, 06:51 AM   #10
NEmel
Mouseketeer
 
Join Date: Oct 2012
Location: Nebraska
Posts: 381

Hi! Sounds like your kiddos have been through so much. I'm so glad Annika is getting her cruise wish. What cabin do you all have? Have you decided on any excursions yet?
NEmel is offline   Reply With Quote
Old 03-21-2013, 04:45 PM   #11
Tink-erin-belle
DIS Veteran
 
Tink-erin-belle's Avatar
 
Join Date: Aug 2010
Location: Northern Virginia
Posts: 1,091

What a touching story about your kids! I am glad that Annika and the rest of your family will get to experience this cruise! And right after her birthday! That is fantastic. I have always been interested in Disney Cruises. Where are you guys going?
__________________
Erin - 41 - Single Mom of: DS - 15 and DD - 11

Disney Every Day - An October 2014 PTR
Tink-erin-belle is offline   Reply With Quote
Old 03-21-2013, 04:49 PM   #12
wiigirl
DIS Veteran
 
Join Date: Oct 2012
Posts: 15,974

I am so glad Annika gets her wish!
__________________
For the love of Disney...
wiigirl is offline   Reply With Quote
Old 03-21-2013, 04:55 PM   #13
lennymore
Earning My Ears
 
Join Date: Feb 2013
Posts: 18

Your children are just beautiful. Can't wait to read the TR - I'm a wish visitor here in the UK for Make A Wish and have the privilege of visiting these wonderful children and their families to find out what their wishes are. It's fab to hear the stories and memories after the wishes have been granted!!
lennymore is offline   Reply With Quote
Old 03-30-2013, 03:05 AM   #14
angel's momma
DIS Veteran
 
angel's momma's Avatar
 
Join Date: Jan 2004
Location: Central Illinois
Posts: 4,014

__________________
Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
angel's momma is offline   Reply With Quote
Old 04-11-2013, 12:44 PM   #15
Rx774
Mouseketeer
 
Rx774's Avatar
 
Join Date: May 2012
Posts: 116

Quote:
Originally Posted by Tink-erin-belle View Post
What a touching story about your kids! I am glad that Annika and the rest of your family will get to experience this cruise! And right after her birthday! That is fantastic. I have always been interested in Disney Cruises. Where are you guys going?

We are boarding the Disney Dream and going down to the Bahamas. We are soooooo looking forward to this. With it being 4 months away soon, we didn't get an official itinerary yet, so we don't have room info. But that should be coming in the mail in a couple months.
__________________
D (39) M (36) Annika - Wish Kid #2 (12) Christian - Wish Kid #1 (7) Dylan (3)
Christian's Make A Wish Trip Report

Annika's Make A Wish Trip Report
Rx774 is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 05:43 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.