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Old 01-23-2013, 02:58 PM   #10
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clanmcculloch's Avatar
Join Date: Feb 2009
Location: New Hampshire
Posts: 5,570

Yes the number will go down to zero when she's gluten free. That's because there's no need for the body to produce antibodies to something the body's not being exposed to. It's like when you've had strep and the bacteria is no longer in your system the strep antibodies will go away.

Unfortunately, it's highly unlikely that she'll outgrow it. Fortunately, the world we live in today, unlike even 10 years ago, is relatively easy to live in gluten free. Once she's been symptom free (and I mean completely symptom free) for several months, you can try a gluten challenge and see how she reacts. Personally, since she had a 10 for the tTg, I think she needs to be gluten free for life because I do consider that to be diagnostic of celiac, but that's just me.

Google Dermatitis Herpetiformus. It's a skin manifestation of celiac. I have a different skin manifestation of gluten intollerance that looks more like psoriasis but it's still gluten (and actually also I believe candida) related. Her dermatitis will likely improve once she's gluten free.

By damage I'm referring to internal damage to the intestines. Think of it like injury to her small intestines from an assault by gluten. This damage is NOT permanent unless the problems have been going on for years. In your daughter's case I'd put money on the fact that once she's been gluten free for a while there will be no trace of this injury. Just remember that experiences like mine are because of doctors NOT recognizing gluten issues when young. It's taken 30 years to end up with permanent damage. Your daughter is young and will be fine.

As far as doctors go, many, many, many do not consider any form of gluten intollerance other than high positive for celiac to be valid while others recognize that even when tests are negative there can still be problems with gluten while most are somewhere on the spectrum in between these stances. My kids' GI doctor is definitely in the camp of tests mean nothing if symptoms show that it makes a difference, but then again he specializes in autistic kids and has seen first hand the impact of non-traditional treatments in autistic kids (my 15yo is autistic). I really don't know what your doctor will think of concepts like "weak positive" or gluten free trials as being diagnostically significant. This is something only your doctor fill you in on. I'm just sharing my experience.
Me DH DD(16) DD(14) DSD(32) DSSil (41) DGD (newborn) DSD(30) DGS(4)

Multi-Allergy & Autism Dining Reviews: February 2014 * DL & LA July 2013 * February 2013 * August 2012 * February 2012 * August 2011 * August 2010

February 2014 AKL: me, DH, DD15, DD13 * July 2013 DL offsite (Tropicana): me, DH, DD15, DD12, DSD30, DSSil * February 2013 WDW Poly: me, DH, DD14, DD12
August 2012 WDW FW Cabin & AoA Nemo: me, DH, DD14, DD12, DD12's BFF11 * February 2012 WDW Poly CL: me, DH, DD14, DD11 * August 2011 WDW YC: me, DH, DD13, DD11
February 2011 WDW Poly CL: me, DH, DD13, DD10, DSD28, DSSil * August 2010 WDW POFQ & Poly CL: me, DH, DD12, DD10 * June 2010 WDW Pop: me, DH, DD12, DD9
December 2009 WDW POFQ: me, DH, DD11, DD9 * February 2009 WDW Pop: me, DH, DD11, DD8 * August 2008 WDW SSR: me, DH, DSD25, DSD24, DD10, DD8
September 2007 WDW Pop: me, DH, DD9, DD7 * April 2002 DLR offsite: me, DH, DSD19, DSD17, DD4, DD1.5 * June 2000 DLR offsite: me(pregnant), DH, DSD17, DSD15, DD2
January 1994 WDW offsite: me, DH, DSD11, DSD9 * January 1992 WDW offsite: me, DH, DSD9, DSD7
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