Angel's Make a Wish DREAM Cruise/extended days at wdw 4/13-25 PTR :)

[girangel]

OhanaDreams - Thank you for the sparkly birthday greeting!

[angel's momma]

When the wish granter called last week, DH called her back & asked for the wish coordinator's number. He left a message for the wish coordinator because she was on vacation. She called back tonight, and DH explained to her why Angel asked for that specific cruise. She's going to talk to her supervisor, and call us back in a day or two. We are hopeful that she may still get her specific wish.

[NEmel]

Exciting news!!!

[OhanaDreams]

Originally Posted by angel's momma

When the wish granter called last week, DH called her back & asked for the wish coordinator's number. He left a message for the wish coordinator because she was on vacation. She called back tonight, and DH explained to her why Angel asked for that specific cruise. She's going to talk to her supervisor, and call us back in a day or two. We are hopeful that she may still get her specific wish.

Sending lots of good vibes your way for Angel to get her special cruise.

[angel's momma]

Thanks Melissa & Amy

[Lilfoot93]

I hope you hear back soon! That would be great if she gets the cruise she wished for!

Jackie

[angel's momma]

Thanks Jackie

[NCConch]

Our son is being grated a wish from MAW. He is 12 and has Spina Bifida. He has had 24 surgeries but is otherwise healthy. We thought MAW was for really sick kids but found out it was also for kids and their families that have been through a lot. We originally contacted MAW this past summer when we wanted to get him backstage for the Big Time Rush concert that was coming. We found out it takes much longer than that and went to the show and more or less forgot about MAW. Well, they called recently and we met with them last week. One wish granted is a young professional without kids but the other is the mom of a kid that got a WDW wish trip and she was a big help with what to expect. Our son loves TV and still watches Nick and Disney Channel, so his first wish is to attend the Kids Choice Awards and his 2nd is to go to the taping of the Disney Christmas parade.

I hope Angel is feeling good and all her dreams come true.

[angel's momma]

Thank you Dave Glad your son will be getting a wish. Sorry it wasn't in time for him to go backstage at the Big Time Rush concert, but hope he gets to go to the Kids Choice Awards. Are you familiar with how the Christmas Parade is taped? If not, if you should do a DIS search, because some people don't find it as enjoyable as they thought it would be. Have you seen the Wish Trippers thread? - http://www.disboards.com/showthread.php?t=2807833



After weeks of searching both houses for Angel's birth certificate, we finally found it.

[angel's momma]

Angel returns to school tomorrow. All of the sickness going around has us very concerned. She's also very much feeling like a "new girl" - it's been 3 months since she was in school, and the short time that she attended when school began didn't go very well for her socially.

[angel's momma]

First day back to school didn't last long - there was a gas leak before school even began, so they sent all the kids to the gym while they decided what to do, and ended up sending them home about an hour later.

School is going well for Angel. It's a big physical adjustment though, and she's exhausted.

Tomorrow is clinic (haven't been there in close to a month). Hoping for improvement in her counts. She's very nervous because this is the first time having blood drawn since she had her line removed, and they had problems with the IV that day.

[blessedmom4]

Hijacking your thread Christi...

Originally Posted by NCConch

Our son is being grated a wish from MAW. He is 12 and has Spina Bifida. He has had 24 surgeries but is otherwise healthy. We thought MAW was for really sick kids but found out it was also for kids and their families that have been through a lot. We originally contacted MAW this past summer when we wanted to get him backstage for the Big Time Rush concert that was coming. We found out it takes much longer than that and went to the show and more or less forgot about MAW. Well, they called recently and we met with them last week. One wish granted is a young professional without kids but the other is the mom of a kid that got a WDW wish trip and she was a big help with what to expect. Our son loves TV and still watches Nick and Disney Channel, so his first wish is to attend the Kids Choice Awards and his 2nd is to go to the taping of the Disney Christmas parade.

I hope Angel is feeling good and all her dreams come true.

Actually, Make a Wish is for children with Life threatening conditions and I am jumping in here because we should be part of your chapter and there has recently been a huge stink about this and the chapter not granting wishes to Mito kids. I would love to know if your son's wish is approved and I am very sorry for all you have been through. It is chroniclaed over on the family's PTR. The Mom is Amber Greenawalt. Best of luck to you and your son on getting a wish.

Originally Posted by angel's momma

First day back to school didn't last long - there was a gas leak before school even began, so they sent all the kids to the gym while they decided what to do, and ended up sending them home about an hour later.

School is going well for Angel. It's a big physical adjustment though, and she's exhausted.

Tomorrow is clinic (haven't been there in close to a month). Hoping for improvement in her counts. She's very nervous because this is the first time having blood drawn since she had her line removed, and they had problems with the IV that day.

Christi, I am truly sorry for all Angel continues to endure. It must feel like 2 steps forward and 20 back. I AM happy to read she is adjusting; however, I am positive she is exhausted. Is there any way for her to have a short rest/break in the middle of the day as she builds up her stamina or for her to start with half days?

Give her a hug from me, having labs drawn is never fun, no matter what the age. I just want you to have some peace!

YEA for finding the birth certificate!

Any more news on the cruise?

[NEmel]

Sorry to hear school is a challange I bet she will be doing great in no time. I totally understand the sickness going around. I reminded the boys to wash their hands a bunch!! I hope that the blood draw went good today!

[angel's momma]

Judy, you are welcome to hijack the thread any time The decision to not grant Savannah her wish was one of the first things I read when I found the wish trippers thread. Was so happy that they're getting some help from another source. Thank you always for your support. The Dr. said she could start with half days, but it was complicated with the way her classes are set up, so she really wanted to go back full time. We're hoping it will just take some more time to re-adjust. Haven't heard back from the wish coordinator - her 1 or 2 days has now been 9.


Thank you Melissa I hope your boys stay well.


Clinic brought good news, and disappointing news - her hemoglobin & platelets both increased, but her ANC dropped from 2130 to 840. Grateful the new Dr.'s criteria means she's not back on her many restrictions.

She had been told she could have her blood drawn through her finger, and that is normally correct, but one of her labs requires it be drawn in the arm. She had a lot of pain & bruising, but at least it went better than the IV attempt.

It was hard enough sending her to school knowing her immune system was still low but had improved significantly, but now it's dropped a lot & she doesn't have it checked again for a whole month. Angel came home today & said that 50 kids from her building were either out sick or went home sick today, as well as quite a few teachers. There's only around 200 students in that building. They were waiting for attendance reports from the lower grades, and were discussing possibly shutting down school next week.
Very grateful the school is taking precautions to keep Angel well (like letting her change desks, asking students to stay away from her if they're not feeling well) but I sure would like to just keep her at home.

[angel's momma]

Angel has been coughing all day.

Wish update: Today we got a form letter in the mail from the wish coordinator, with details of the 4 night Dream cruise. She could have at least called DH back, because he had some other questions for her if she said they couldn't grant Angel's specific wish. The form letter says that we can add days at wdw after the cruise at our own expense. DH is going to ask if we could pay the difference from the 4 night Dream to the 7 night Fantasy. It's a significant amount of money though, so I'm not sure how we'll do it, but it means so much to her so we're going to try our best.