Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES!
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 10-17-2010, 10:12 AM   #61
rondesj
Earning My Ears
 
Join Date: May 2008
Posts: 63

Sometimes things need to be said. To you who she ticked off, somethings just need to be heard
rondesj is offline   Reply With Quote
Old 10-17-2010, 12:09 PM   #62
KPeveler
Moderator
 
Join Date: Dec 2006
Location: 6 miles from Disneyland
Posts: 4,024
DISboards Moderator

Ronde - I don't understand what your post means...
__________________
~Katy~

"Its kind of fun to do the impossible" ~Walt Disney

Married in Disney World 10/26/2009!
KPeveler is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 01-13-2011, 11:18 AM   #63
physicalt104
Princess since the '50s
 
physicalt104's Avatar
 
Join Date: Sep 2009
Location: Part-time Long Island, NY; part-time Killington, VT
Posts: 231

Hi Sue-
I must say, especially in the past several months, I have witnessed decidely "UNDISNEY" behavior on various threads. I, too, come to the Dis to learn, share and escape; Disney folks see the world from a different point of view, right?!
Thank you, Sue, for setting the World right...
physicalt104 is offline   Reply With Quote
Old 07-23-2011, 04:27 PM   #64
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,547
DISboards Moderator

I was cleaning out some PMs because my box was full (if anyone tried to PM me lately and got a “This mailbox is full” message, I apologize) and I found one where someone thanked me for posting on a thread a long time ago. The OP on the thread was very bitter and angry because she felt no one had it as ‘bad’ as she did and she felt people on this board needed to “learn what real disabilities are, since you obviously don’t know.” That bitter poster wrote on several thread, some of which were actually part of the reason I wrote this Open Letter thread.
The person who PM’d me wrote that what I wrote on that thread in response to the OP helped her, so I thought I would re-post it here:


My daughter doesn't walk or talk and never will and I do have to get up during the night to turn her or sit with her when she has a seizure during the night. I know what it is like to lift her out of bed each morning, dress her, feed her, bathe her, lift her in and out of her wheelchair and at the end of the day, lift her back into bed to start a new cycle.
I know what it is like to be worried about what will happen if she has a seizure or a nosebleed during the night and I don't wake up.
I know what it is like to have a child in liver failure from medications that I agreed to give her to control her seizures. Thank God, she recovered from liver failure and didn't need a transplant, but that was the road we were on. And, I worry each day about whether any of the medications she is on is going to tip the balance between helping and harming her. I know what it's like to dread the passage of time because each day brings me one day closer to no longer being able to care for her. I know what it's like to worry about whether my older daughter will be able to bear the burden of her younger sister after I'm gone. I know what it's like to wonder "what if" and to cry for things my child will never do, but I thank God each day that I am blessed enough to have her, no matter what she is able or not able to do.

I know there are people who have a heavier load than I have, and others who have a lighter load.
I know what it's like to have a friend whose child could walk and talk, but the family was told to value each day because he was likely to not live past 12 years because his heart was a ticking time bomb in his chest. I know what it's like to sit in her living room, guarding her house from a break-in during his funeral, knowing that she found his dead body in the bedroom when he was 18 down the hall from where I sat during the funeral. And, I have the memory of my thoughts at that time about how heavy her burden was and whether I would have broken under it.

I know what it is like to sometimes envy someone's apparently lighter load, but the person carrying the load is the only one who feels how heavy it actually is and their load may be just as heavy to them as my load is to me. I would never be angry at someone just because their load seems to be lighter than mine; I can do nothing about anyone else's load, only my own and how I carry it.
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is online now   Reply With Quote
Old 10-14-2011, 12:30 PM   #65
klmall
DIS Veteran
 
klmall's Avatar
 
Join Date: Oct 1999
Location: Maryland
Posts: 137,151

I just finished reading this thread from the beginning and I also wanted to say "Thanks Sue!" for all your work with this forum. The last few years I would lurk on this board hunting for hints about how to support DH who has severe scoliosis and difficulty traveling in general and I found them.

In my mind, I just couldn't comprehend how anyone who could do something to make his life a little easier and enjoy traveling with his family wouldn't do so. It drove me nuts when DH wouldn't even rent an ECV at Disney. Since he didn't want to talk about how he felt, it helped me to read posts on this board. In 2007 we talked him into renting an ECV for a couple days and though he said it bothered him to have people think it was his weight that caused him to ride, he did enjoy EPCOT so much more! Finally in 2010 I asked our ortho specialist for a Disabled parking pass and surprised DH! He loves it!

Now for our trip in two months he is finally comfortable with the idea of using an ECV the entire time and we will be renting one from outside Disney. Yes, DH is overweight and has been most of his life but his scoliosis is so bad that he tilts to one side as well as bending forward. When he gets off that scooter he does look disabled but he has been in pain for 20+ years without any accommodation and partially because even some doctors would tell him that his weight was the cause of his pain without looking for a physical cause. And he does use a cane when he walks now which to me, help others recognize his needs.

Thanks for letting me talk!
__________________
Check out my Disney pics here!




~~~~~~~~~Bay Lake Tower, December 2014 !~~~~~~~~~
klmall is offline   Reply With Quote
Old 12-29-2011, 03:46 AM   #66
andrewilley
Port Orleans Addict
 
andrewilley's Avatar
 
Join Date: Oct 2007
Location: Birmingham UK
Posts: 5,136

Quote:
Originally Posted by dustion View Post
Look, surprise!!!!!
Spammer reported.

Andre
__________________
Port Orleans Riverside is my second home - I never get homesick when I'm there, but it does happen the other way around!


For more info on the Port Orleans resorts, please visit www.portorleans.org
Now including a Trip Report forum - any comments on your POR/POFQ stays are welcome

Days Inn Lakeside: Apr/May 89 Disney's Wilderness Lodge: Feb 99Disney's Beach Club: Sep 07, Sep 09
Disney's Dixie Landings: Jul/Aug 95, Oct 96, Sep/Oct 97, Feb 99
Disney's Port Orleans Riverside: Sep/Oct 02, Jun 04, May/Jun 05, May 06, Oct 07, Aug 08, Aug 09, Feb 10, Halloween 10, Aug 11, Aug 12, Feb 13, Aug 13... and coming next, Aug 14
andrewilley is offline   Reply With Quote
Old 12-29-2011, 06:44 AM   #67
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,547
DISboards Moderator

Quote:
Originally Posted by andrewilley View Post
Spammer reported.

Andre
Thank you.

Spammer deleted. And how dare the spammer post on this thread in particular!
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is online now   Reply With Quote
Old 02-21-2012, 08:49 PM   #68
smidgy
dimples
 
smidgy's Avatar
 
Join Date: Aug 2006
Location: chicago area
Posts: 6,657

thank you for all your work, and your help!! never thought I would be using the disabilites board ... hubby still is reticent to use any extra help.

but I am so grateful for the information!!
smidgy is offline   Reply With Quote
Old 02-21-2012, 09:20 PM   #69
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,547
DISboards Moderator

Thank you for the thank you.

Knowing we are helping people is the reward for those of us who post on this board.
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is online now   Reply With Quote
Old 03-02-2012, 03:11 PM   #70
Andianna
Mouseketeer
 
Andianna's Avatar
 
Join Date: Mar 2012
Posts: 117

Thank You Sue!
__________________
SOMEDAY MY PRINCE WILL COME!
Looking forward to Epcot May 2014
Andianna is offline   Reply With Quote
Old 12-15-2012, 09:03 PM   #71
Pooh2
DIS Veteran
 
Pooh2's Avatar
 
Join Date: Jan 2011
Location: NH
Posts: 1,596

Scooter rentals?

Is there a sticky somewhere with the names of companies that will deliver a scooter to the resort?
Pooh2 is offline   Reply With Quote
Old 12-16-2012, 02:01 PM   #72
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,547
DISboards Moderator

Quote:
Originally Posted by Pooh2 View Post
Is there a sticky somewhere with the names of companies that will deliver a scooter to the resort?
Follow the link in my signature to get to the disABILITIES FAQs thread, then go to post 2 for information about renting ECVs.

If you want specific information, it is better to make a new thread asking for that or post on an existing thread about the same subject.
This thread is more general information about the philosophy about this board.
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is online now   Reply With Quote
Old 03-01-2013, 05:15 PM   #73
maggie_sam
Mouseketeer
 
maggie_sam's Avatar
 
Join Date: Sep 2010
Location: Long Island
Posts: 233

Dear SueM in MN,
I have been reading through several threads in the disAbilities forum, and am amazed at the amount of time you have spent posting information that is so helpful and so focused on trying to address the diversity of disability that exists. I found the information I was looking for, and lots of things I hadn't considered, but will make our trip that much easier, and a wonderful experience for my daughter, and less stressful for me. I am writing to say, "Thank you!" It is an incredible gift to all of us who have to plan so carefully to have the benefit of your knowledge, and I wanted to let you know how much I appreciate what you have done and accomplished here.

You are a special person to take so much time to help others ensure that their vacations are as "Magical" as possible. Bless you!
__________________



DisneyWorld 1972, Disneyland 1973, Disneyland 1980, Fort Wilderness 1986, DisneyWorld 1988, 1990, 1992, 1994, 2000, 2004, Disney Wonder October 2010, Contemporary & Saratoga Springs 2010, Disney Magic September 2012, Bay Lake Tower September 2013, Disney Dream September 2013
maggie_sam is offline   Reply With Quote
Old 03-01-2013, 06:27 PM   #74
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,547
DISboards Moderator

Quote:
Originally Posted by maggie_sam View Post
Dear SueM in MN,
I have been reading through several threads in the disAbilities forum, and am amazed at the amount of time you have spent posting information that is so helpful and so focused on trying to address the diversity of disability that exists. I found the information I was looking for, and lots of things I hadn't considered, but will make our trip that much easier, and a wonderful experience for my daughter, and less stressful for me. I am writing to say, "Thank you!" It is an incredible gift to all of us who have to plan so carefully to have the benefit of your knowledge, and I wanted to let you know how much I appreciate what you have done and accomplished here.

You are a special person to take so much time to help others ensure that their vacations are as "Magical" as possible. Bless you!


__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is online now   Reply With Quote
Old 03-01-2013, 10:37 PM   #75
nebo
sharkbait
Uh oh, this conversation isn't going as planned
All of you are welcome to come along
 
nebo's Avatar
 
Join Date: Jul 2006
Location: near Chicago, Il
Posts: 2,511

.
nebo is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 08:48 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: