Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney for Families > DIS Dads
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read


Reply
 
Thread Tools Rate Thread Display Modes
Old 10-01-2012, 02:52 PM   #436
AirGoofy
DIS Dad#341
Savvy!
I have yet to snag one of those recliner seats right in front of the big screen TV
 
AirGoofy's Avatar
 
Join Date: Jul 2009
Location: Kentucky
Posts: 14,120

Quote:
Originally Posted by wasnotafan View Post
Good news for a change...SWMBO has been on some new diabetes meds for the last couple of months and they are $$$ compared to the generic that she had been using. Her numbers are better though so we need to keep it up. Just found out this AM that we may qualify for a coupon through the company that will save us over $50/month at least for a few months.
That is good news.
__________________
DIS Dad #341
WDW Commando #187
Disneytopia LIVE! DVC Trip Reports
2014 DDC Disney World Series Champion
2011 Dis Dads Pro Football Pick'em Champion
AirGoofy is online now   Reply With Quote
Old 10-02-2012, 08:44 AM   #437
NWDAD
DIS Veteran
 
NWDAD's Avatar
 
Join Date: Apr 2011
Location: WA
Posts: 588

Thank you all for your prayers. My wife and I appreciate them. Will keep you all updated.

Kevin
NWDAD is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 10-12-2012, 04:56 PM   #438
jbschafer
Mouseketeer
 
Join Date: Sep 2011
Location: Cedar Falls, IA
Posts: 177

We finally have a diagnosis

Gentlemen,

I don't post much here anymore, spending more time on the Facebook side of things, but I still follow this thread on a regular basis. I've offered up my prayers in support of you all, and now it's my turn to ask for the return of the favor.

DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
__________________
Me - Ben (DISDad #662) , DW , DD14 , DD10 , and DS7

12/1974, 12/1977, 12/1980, 12/1983, 12/1986, 10/1994, 7/1999 - Off Property, 6/2008 - POP and OP, 8/2010 - POP, 12/2011 - POP, 12/2012 - POP, 6/2013 - DLR(OP), 8/2014 - DLR(OP)
jbschafer is offline   Reply With Quote
Old 10-12-2012, 05:18 PM   #439
wasnotafan
DIS Dad #481
Unfortunately my smartphone is smatter than I am
All that fresh air over the years has done me good
 
wasnotafan's Avatar
 
Join Date: Jul 2010
Location: Kentucky
Posts: 3,432

Quote:
Originally Posted by jbschafer View Post
Gentlemen,

I don't post much here anymore, spending more time on the Facebook side of things, but I still follow this thread on a regular basis. I've offered up my prayers in support of you all, and now it's my turn to ask for the return of the favor.

DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
We will be praying. Glad you finally have a diagnosis.
__________________
May/June 98 - All Star Music Calypso
July 03 - All Star Music Rock
Sept/Oct 05 - POP Century 50's
Sept/Oct 06 - POR Riverside Alligator Bayou
July 08 - POR Riverside Magnolia Bend
wasnotafan is offline   Reply With Quote
Old 10-12-2012, 05:31 PM   #440
Cinderella's Fella
DIS Dad #215
Carpe Bacon
And no more candy and caffeine for the rest of you
 
Cinderella's Fella's Avatar
 
Join Date: Aug 2008
Location: Maryland, Land of Merry!
Posts: 13,216

Ben will keep your DD, you and your family in our prayers!
__________________
DW Jodi Me Randall DISDads Chief Bacon Officer!



Cinderella's Fella is offline   Reply With Quote
Old 10-12-2012, 06:40 PM   #441
AirGoofy
DIS Dad#341
Savvy!
I have yet to snag one of those recliner seats right in front of the big screen TV
 
AirGoofy's Avatar
 
Join Date: Jul 2009
Location: Kentucky
Posts: 14,120

Quote:
Originally Posted by jbschafer View Post
DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
Prayers for her and your family.
__________________
DIS Dad #341
WDW Commando #187
Disneytopia LIVE! DVC Trip Reports
2014 DDC Disney World Series Champion
2011 Dis Dads Pro Football Pick'em Champion
AirGoofy is online now   Reply With Quote
Old 10-12-2012, 07:19 PM   #442
scott2997
DIS Dad#543
You trying for ownage?!
I'm not sure what I'll be tied up in at home tonight
 
scott2997's Avatar
 
Join Date: Nov 2010
Location: Ohio
Posts: 2,774

Quote:
Originally Posted by jbschafer View Post
Gentlemen,

I don't post much here anymore, spending more time on the Facebook side of things, but I still follow this thread on a regular basis. I've offered up my prayers in support of you all, and now it's my turn to ask for the return of the favor.

DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
Ben, good to hear that they can finally label it so they can properly treat it.

Will pray not only for you and your DD but also that the insurance company cooperates!
__________________
Me DW DD7 DD5




Dis Dads Member #543

April 2012 Spring Break TR

Trips:April 2014 (BLT), January 2014 (CBR), January 2013 (OKW), April 2012 (BLT)
MK Only (1 day visits) - 2013, 2011, 2010, 2009, 2008
Offsite - 2013, 2005, 1990
scott2997 is offline   Reply With Quote
Old 10-12-2012, 08:51 PM   #443
that's nice
DDC #330

Maybe the entire internet is slowing down because of this thread
 
that's nice's Avatar
 
Join Date: Nov 2008
Location: CT
Posts: 13,078

Ben, I'm glad they were finally able to give you a diagnosis.

Sending out thoughts & prayers to your family.
that's nice is offline   Reply With Quote
Old 10-13-2012, 06:59 AM   #444
Cinderella's Fella
DIS Dad #215
Carpe Bacon
And no more candy and caffeine for the rest of you
 
Cinderella's Fella's Avatar
 
Join Date: Aug 2008
Location: Maryland, Land of Merry!
Posts: 13,216

Ben, with my Rheumatoid Arthritis I do remicade. I was offered humira, which is self injected, but liked the idea of the remicade because it was a infusion under a Doctors care. It takes about two hours every 8 weeks, and works great. I've never had trouble with my insurance to pay for it. Again prayers for your DD for a Long and Full Life!
__________________
DW Jodi Me Randall DISDads Chief Bacon Officer!



Cinderella's Fella is offline   Reply With Quote
Old 10-13-2012, 07:18 AM   #445
theduck619
DDC 188
I love that middle crease between the two straight sections
It's a secret passge to a man cave
 
theduck619's Avatar
 
Join Date: Jul 2007
Location: Central Indiana
Posts: 9,285

Quote:
Originally Posted by jbschafer View Post
Gentlemen,

I don't post much here anymore, spending more time on the Facebook side of things, but I still follow this thread on a regular basis. I've offered up my prayers in support of you all, and now it's my turn to ask for the return of the favor.

DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
Ben, our prayers are with DD and your family
__________________
(me - David) (DW) DS 10 & = 9 (twins) DS 9 DD 7 DD 5

DisDad Member #188

We are home!- 12/9/14 Follow the adventure at:
http://nicelyfamilyadoptionadventure.blogspot.com
theduck619 is offline   Reply With Quote
Old 10-13-2012, 06:08 PM   #446
GoHerd1028
DDC 172
"Insert clever tag fairy saying here"
You really think I'm clever?
 
GoHerd1028's Avatar
 
Join Date: Oct 2007
Location: Southern Ohio
Posts: 3,629

Quote:
Originally Posted by jbschafer View Post
Gentlemen,

I don't post much here anymore, spending more time on the Facebook side of things, but I still follow this thread on a regular basis. I've offered up my prayers in support of you all, and now it's my turn to ask for the return of the favor.

DD12 has been "sick" for almost a year now. It really got bad last year at Christmas (while we were at WDW no less) and we have had a dozen trips to the Children's Hospital at the University of Iowa over the last 10 months. It's been a long process of eliminating things and running tests, but they finally gave her a diagnosis yesterday.

She has a fairly rare disorder known as Takayasu's Arteritis. (I have always said she is 1 in a million and now I have medical documentation to prove it). It isn't life threatening at this time, and shouldn't become so if they stay on top of the condition, but she is in for a lifetime of medical treatments and routine testing to make sure things are under control. On one hand I am glad to finally have a name to what has been going on, but on the other hand that name finally shows our fears - that this isn't something that is going to go away.

Fortunately, we have good insurance that SHOULD pay for most of this (we have to fight an "unauthorized drug" battle since the FDA hasn't approved humira to treat this disease since it is so rare). Even MORE fortunately, we have good family and friends (you gentlemen included) to help us keep grounded.

Please pray for energy to keep positive in this whole ordeal.
Ben your daughter and your entire fmaily will be in our prayers. I am thankful that a resolution has been found for her health situation. Not knowing what the problem is so scary in and of itself. Please keep us posted as she fights this!!!
__________________
We Are.....Marshall!!!:
DisDads Club Member #172
DH Steve (47) DW Shari (47) DS Ethan (9) DD Lauren (8)
GoHerd1028 is offline   Reply With Quote
Old 10-14-2012, 10:24 PM   #447
NWDAD
DIS Veteran
 
NWDAD's Avatar
 
Join Date: Apr 2011
Location: WA
Posts: 588

Ben, you and your DD and your family are in our prayers.

Kevin
__________________
DVC since 1997 - OKW, 2010 - BLT, 2012 - VGF
1st DCL Cruise Alaska Disney Wonder 5/24/2010
Fantasy 12/8/2012-Western, 12/15/2012-Eastern
Wonder 5/27/2013-Alaska
Magic 1/27/2014-Bahamas
Magic 11/12/2014-Southern, 11/18/2014- SJ to PC repo
Magic EBTA
DIS Dad's Club Member 685
NWDAD is offline   Reply With Quote
Old 10-14-2012, 11:44 PM   #448
papamouse1
Papa Moo Moo Boo Boo
 
papamouse1's Avatar
 
Join Date: Jan 2011
Location: Carlsbad, NM
Posts: 1,283

Ben.. your daughter and your family will be in our prayers. I am living proof that a "lifetime diagnosis" does not have define our lives. Crippled at a young age from an incurable spinal disease, I have lived a pain-free life due to the grace and mercy of God.

Hang in there, and cherish every moment. Life can be tough, but experiencing it with the ones you love is truly priceless
__________________

1999-2005 yearly DLC trips - various non-Disney hotels 2006 - DLC - Paradise Pier Hotel *Joined DVC! 2007 - Disney Cruise & WDW for our 20th wedding anniversary 2008 - DLC - Grand Californian 2009 - WDW- Old Key West & Animal Kingdom-Kidani 2010 - WDW- Beach Club & Animal Kingdom 2011 - Disney Cruise - the new Disney Dream & Holidays @ WDW! BCV & AKV Concierge April 2012 - MR Anniversary Cruise Nov 2012 - DLC to see Holidays & "WoC" May 2013 - Aulani! Aug2013 WDW & Universal Studios March 2013 Travel Agent AEP DCL/WDW
papamouse1 is offline   Reply With Quote
Old 10-15-2012, 12:10 PM   #449
jbschafer
Mouseketeer
 
Join Date: Sep 2011
Location: Cedar Falls, IA
Posts: 177

Quote:
Originally Posted by papamouse1 View Post
Ben.. your daughter and your family will be in our prayers. I am living proof that a "lifetime diagnosis" does not have define our lives. Crippled at a young age from an incurable spinal disease, I have lived a pain-free life due to the grace and mercy of God.

Hang in there, and cherish every moment. Life can be tough, but experiencing it with the ones you love is truly priceless
Thank you EVERYONE. You don't know (or maybe you do) how much better it can make someone feel just to know that there are some folks out there listening to your troubles and feeling your pain even if for just a little bit. DD is a rockstar. When we sat her down to talk to her on Friday night there were tears obviously (from all of us). But Saturday afternoon she and my wife did a little bit of reading on the internet and when they were done she turned to my wife and said "Don't worry mom. I'm going to be just fine."

We will learn from her strength.
__________________
Me - Ben (DISDad #662) , DW , DD14 , DD10 , and DS7

12/1974, 12/1977, 12/1980, 12/1983, 12/1986, 10/1994, 7/1999 - Off Property, 6/2008 - POP and OP, 8/2010 - POP, 12/2011 - POP, 12/2012 - POP, 6/2013 - DLR(OP), 8/2014 - DLR(OP)
jbschafer is offline   Reply With Quote
Old 10-15-2012, 03:31 PM   #450
Goofy + 3
DDC 400
Remember, it's ok to cry a little. Not too much, just a little
 
Goofy + 3's Avatar
 
Join Date: Feb 2008
Location: Richmond, VA
Posts: 1,986

Quote:
Originally Posted by jbschafer View Post
But Saturday afternoon she and my wife did a little bit of reading on the internet and when they were done she turned to my wife and said "Don't worry mom. I'm going to be just fine."

We will learn from her strength.
This made me smile. Good for her.
__________________
me Chris (40) DW (38) DD (9) DS(7) DD(5)
DIS Dad #400
Goofy + 3 is offline   Reply With Quote
Reply

Tags
faith, praise, prayer, request



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 09:31 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: