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#1561 |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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I posted a response last night, but it's gone today?
Have a great trip! Was she completely surprised or did she suspect you were up to something? I know she asked if you had any suprises the other day, but you told her no. |
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#1562 | |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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#1563 | |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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I loved how small FQ is. When we were doing things just at FQ, we didn't need to bring the wheel chair. Only needed that when we walked over to riverside, though we drove from FQ to Riverside twice. Our building was the furthest away from Riverside. |
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#1564 | |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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Thanks for coming over here, nice to have you here!You bring up a great point. He does have ear muffs to reduce sound. Maybe we'll have to buy an extra pair and leave them in the bathroom. I never thought about the feeling vibration. Our glass sliding door sometimes vibrates from the helicopters and air planes. Maybe he does pick up the vibration in advance too? I do know that loud noises are painful to him. He also seems more sensitive to sounds after seizures. His last seizure was 8 days ago. He hasn't been running from sounds, though he does put his hands over his ears from time to time. |
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#1565 | |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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Now that the 48 hour video EEG was ordered, he hasn't had any of these episodes. The last one was a week ago Thursday and it lasted about 5 minutes. We had the key thing happen to us the first time we stayed at CBR. That happened after driving 18 hours straight from PA to FL on Thanksgiving day. We were so tired and it took us hours to get it straightened out, and we were stuck outside in the hallway. So this time it went much smoother. At least we were in a room and able to unpack the car. Thanks for the prayers, we appreciate it! Anakin went for basketball evaluation today for the non-competitive league. He did ok last year, but I think this may be his last year. The other children are not special needs and they all run circles around him. Hoping to find somewhere else for next year. We found a special needs baseball league, looking into that for the fall. |
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#1566 |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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Once we got our room keys, the guys headed out to go fishing at POR. I was a bit behind them because I went back to the room to get the bag with our swim suits.
I got a text from them that the last fishing rod rental is at 1:30pm. I think when we visited Lisa there in Oct. it closed at 4:30pm. The boys were disappointed, and made sure we planned on fishing the next day for sure. It was suppose to rain on Saturday, so I added weather permitting. Even though I had the swim gear with me, we headed back to the room to change. With the room set up, the guys changed in the bedroom and I changed in the bathroom. Getting ready in the morning, changing into swim suits in the daytime, and pjs at night were the only time we missed not having that separate changing area. Grumpy didn't want to swim, so just the three of us went swimming. The pool is so cute. Just perfect for Anakin who loves swimming. The pool water was FREEZING!!!! You know it's cold when you have an entire pool to yourself!! There were people lounging on the deck, but very few swimmers. I asked if the heater was broken, and the life guard insisted it's working. The air temp was 74 degrees and the water felt sooooooo much colder than the air. The pool actitivities were going on while we were in the pool. Anakin wasn't interested in participating until after he swam. He donned his goggles and swam all around the pool. He loved the water slide, but said he likes the jaguar slide better because it's longer. It was so nice not having people around the slide. He could take his time going up the stairs. ![]() ![]() ![]() ![]() We met friends, who are snow birds, at the food court for supper. We had a nice time hanging with them. They brought a birthday card with a gift certificate to Bass Pro for Grumpy. It was burning a hole in his pocket the whole time we ate. Our dinner bill was only $23.09 for all 4 of us with our Tables in Wonderland discount. Grumpy and I were still full from lunch. We each just got a cup of clam chowder. Anakin got a kid's pizza meal. Goofy got a quesadilla. Grumpy and I got dessert. He got a double scoop of icecream and I got 3 beignets which I shared with Goofy. Our friends wanted to see our room. We showed it to them. They wanted to head over to the Poly for a dole whip and they were hoping to catch Wishes from the beach. After they left, Grumpy and Goofy headed to Bass Pro while Anakin and I hung out in the room. |
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#1567 |
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Prayers and pixie dust from your friends on the DIS
Hugs I have been flipping all around the internet Join Date: Aug 2006
Location: Fairfield, CA
Posts: 29,910
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I am thrilled to hear that Anakin hasn't had a seizure recently.
That pool area is so cute. I was looking at pictures of the new pool area at the Disneyland Hotel and it makes me really want to stay there. There is nothing like cute pool theming to bring out the kid in me.
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#1568 | |
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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I bet it's a great pool! But the Disneyland Hotel can't come close to the deal you got at your hotel!! Pools are important for us. Grumpy learned to swim without floaties at All Star Movies years and years ago. My parents were watching him while Goofy and I went to the DVC presentation at the Boardwalk. We came back from that to learn he could swim on his own completely! He was playing tag with another child. That child could swim and he just kept up! |
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#1569 |
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DIS Veteran
Join Date: Aug 2007
Location: Carol Stream, IL
Posts: 35,067
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Anakin looks like he is having a great time on the slide.
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#1570 | |
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Prayers and pixie dust from your friends on the DIS
Hugs I have been flipping all around the internet Join Date: Aug 2006
Location: Fairfield, CA
Posts: 29,910
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No you're right about that but I did get a stellar offer for the resort hotels. I got a pin in the mail the other day for 35% off. It kind of makes me wonder what kind of deals I could get with an AP. But free still beats it. ![]() How fun that Grumpy learned at All Star Movies. That is a fun memory to have.
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#1571 |
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Proud OCD Disney Princess Planner
Join Date: Dec 2010
Location: Texas Panhandle
Posts: 3,276
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Brrr...but that gives me hope seeing you in the pool that we may get some pool time at BWV next week!
Goo saw the picture of the slide and now wants to stay there when we go...UGH I can't win...everything else I am doing on this trip is for them...the only thing I am doing is staying at the BW! I remembered when I stayed at POR there was not a lot of "vanity" area space to store luggage or anything. I think I stored my suitcase right where you stored the wheelchair. |
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#1572 |
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WE BELIEVE IN MIRACLES! ~~~~~~~~ Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
Join Date: Apr 2010
Location: Charlotte, NC
Posts: 6,689
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Thinking about and praying for you!~ I am happy JJ is doing well; however WHY is it when the monitors are on that nothing happens...so frustrating, I know!
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#1573 | ||
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DIS Veteran
Join Date: Sep 2004
Posts: 11,527
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He had a blast and didn't mind the cold water at all!
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Thanks for the prayers. No monitors til after Christmas. Dec 27-29. |
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#1574 | |
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Prayers and pixie dust from your friends on the DIS
Hugs I have been flipping all around the internet Join Date: Aug 2006
Location: Fairfield, CA
Posts: 29,910
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I am still considering the AP. I figure that they are that much cheaper for me. It's a win-win!
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#1575 |
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WE BELIEVE IN MIRACLES! ~~~~~~~~ Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
Join Date: Apr 2010
Location: Charlotte, NC
Posts: 6,689
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