Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[tehanig1974]

Thanks for supplying all this great information!

[kimmg]

I need some advice.

MAW approved us and we were waiting until September to call to get dates in early Dec. from MAW. We called and they suggested Dec. 5-11. We've been waiting and waiting and come to find out our Doctors won't sign off of it because he is a state insurance patient. I guess they had a family use services out of state, it wasn't covered so they sued the hospital. Now it's our hospitals policy not to sign for out of state wishes. The kicker is we called our state and they said we are covered for emergency services out of state but the hospital doesn't care.

MAW is trying to find temporary insurance for our family since the hospital is requiring it for our entire family but they haven't found anything yet. We're just so devastated and disappointed. We've been counting down, watching videos, making outfits and plans, even my uncle set up his timeshare so we could stay longer. Our hospital is suggesting Disneyland but we live about an hour away and it just wouldn't feel the same. I feel so blessed for him to get a wish at all but we were looking forward to GKTW so much. This was a chance for the healing experience of a lifetime and now it's looking like it won't happen. Any suggestions? The hospital social worker is saying that since he's out of treatment if he doesn't do his wish soon he'll become ineligible. I don't know if that's true or not. I've considered switching hospitals but then we'd have to start with a new chapter, start the wish process over again and risk being denied and losing his wish.

[Mom2mitokids]

Originally Posted by kimmg

I need some advice.

MAW approved us and we were waiting until September to call to get dates in early Dec. from MAW. We called and they suggested Dec. 5-11. We've been waiting and waiting and come to find out our Doctors won't sign off of it because he is a state insurance patient. I guess they had a family use services out of state, it wasn't covered so they sued the hospital. Now it's our hospitals policy not to sign for out of state wishes. The kicker is we called our state and they said we are covered for emergency services out of state but the hospital doesn't care.

MAW is trying to find temporary insurance for our family since the hospital is requiring it for our entire family but they haven't found anything yet. We're just so devastated and disappointed. We've been counting down, watching videos, making outfits and plans, even my uncle set up his timeshare so we
could stay longer. Our hospital is suggesting Disneyland but we live about an
hour away and it just wouldn't feel the same. I feel so blessed for him to get a
wish at all but we were looking forward to GKTW so much. This was a chance


for the healing experience of a lifetime and now it's looking like it won't happen. Any suggestions? The hospital social worker is saying that since he's out of treatment if he doesn't do his wish soon he'll become ineligible. I don't know if that's true or not. I've considered switching hospitals but then we'd have to start with a new chapter, start the wish process over again and risk
being denied and losing his wish.

First.. We have state insurance and we had no problem going. Never heard of a thing. Are you telling me you can never leave the state for a vacation?
Second.. He can never lose his MAW. Once approved they can not take it away. Who ever told you that is an idiot. You need to change social workers. Sorry for all you are going through.

[Synovial]

Originally Posted by wishin' on a star

We got our flight information a couple of months before our trip. But the rest...the limo, car rental info, and expense $$...we got about two weeks before our trip. I think many MAW chapters give the final wish package even closer to your trip date. It seems to depend a lot on the chapter and the volunteer's schedule.

Thanks! We leave out next Friday and I'm getting a little nervous since I haven't gotten our package yet. We got a brochure from Give Kids The World with our arrival date on it, so I know everything's lined up, I would just feel better if I had all the details in my hands. I guess you could say I am a detail person and don't like to leave anything to chance. Thanks for the info. Synovial

[Owensheart]

Originally Posted by kimmg

I need some advice.

MAW approved us and we were waiting until September to call to get dates in early Dec. from MAW. We called and they suggested Dec. 5-11. We've been waiting and waiting and come to find out our Doctors won't sign off of it because he is a state insurance patient. I guess they had a family use services out of state, it wasn't covered so they sued the hospital. Now it's our hospitals policy not to sign for out of state wishes. The kicker is we called our state and they said we are covered for emergency services out of state but the hospital doesn't care.

MAW is trying to find temporary insurance for our family since the hospital is requiring it for our entire family but they haven't found anything yet. We're just so devastated and disappointed. We've been counting down, watching videos, making outfits and plans, even my uncle set up his timeshare so we could stay longer. Our hospital is suggesting Disneyland but we live about an hour away and it just wouldn't feel the same. I feel so blessed for him to get a wish at all but we were looking forward to GKTW so much. This was a chance for the healing experience of a lifetime and now it's looking like it won't happen. Any suggestions? The hospital social worker is saying that since he's out of treatment if he doesn't do his wish soon he'll become ineligible. I don't know if that's true or not. I've considered switching hospitals but then we'd have to start with a new chapter, start the wish process over again and risk being denied and losing his wish.

This is ridiculous!! Is there one specific doctor at the hospital that won't sign off on it.. or is it the hospital social worker? I would speak wth a supervisor of that department. I have never heard of this and I know plenty of families on state insurance. Maybe your child's pediatrician can sign off on it, or at least speak with the hospital for you? I am so sorry.

Absolutely take this up the ladder at the hospital!!

Originally Posted by Mom2mitokids

First.. We have state insurance and we had no problem going. Never heard of a thing. Are you telling me you can never leave the state for a vacation?
Second.. He can never lose his MAW. Once approved they can not take it away. Who ever told you that is an idiot. You need to change social workers. Sorry for all you are going through.

SO TRUE!! After you are approved, they cannot take your eligibility away!

Originally Posted by Synovial

Thanks! We leave out next Friday and I'm getting a little nervous since I haven't gotten our package yet. We got a brochure from Give Kids The World with our arrival date on it, so I know everything's lined up, I would just feel better if I had all the details in my hands. I guess you could say I am a detail person and don't like to leave anything to chance. Thanks for the info. Synovial

I'm so excited for you!!! I would contact your wish granters asap. They should have scheduled a little going away (some do parties, some don't), where they give you your expense check and all the details! You leave so soon.. I bet you're so excited!

PS.. We've had a few fun big gives so far!! Come on by to check em' out!!

[princessmamaof5]

Wow i just realized there was a new thread. Ok Ive hopped over now and I will very shortly being doing my trip report I want it to have a perfect justice to it and for being a writter I am having a hard time putting it into words

[Synovial]

1

Originally Posted by owensheart

this is ridiculous!! Is there one specific doctor at the hospital that won't sign off on it.. Or is it the hospital social worker? I would speak wth a supervisor of that department. I have never heard of this and i know plenty of families on state insurance. Maybe your child's pediatrician can sign off on it, or at least speak with the hospital for you? I am so sorry.

Absolutely take this up the ladder at the hospital!!



So true!! After you are approved, they cannot take your eligibility away!



I'm so excited for you!!! I would contact your wish granters asap. They should have scheduled a little going away (some do parties, some don't), where they give you your expense check and all the details! You leave so soon.. I bet you're so excited! our wish granter called today and is coming this sunday with our wish presentation and pizza, but i'm not sure if she wants just our immediate family or wants to do a party. I'm going to try and call her later today. My husband talked to her this morning and he didn't get all the details. We have 8 days until we leave! We are very excited!! Synovial

ps.. We've had a few fun big gives so far!! Come on by to check em' out!!

[Owensheart]

Originally Posted by princessmamaof5

Wow i just realized there was a new thread. Ok Ive hopped over now and I will very shortly being doing my trip report I want it to have a perfect justice to it and for being a writter I am having a hard time putting it into words

I am anxious to read it!!!

[55Red416]

Hello, fellow Wish Trippers! Long time listener, first time caller.

With a plug for a PTR, no less. We are 37 days away from our trip, unfortunately my post count didn't make it past the filter so my link was just rejected. *sob* So feel free to click the link in my signature line and I should have the requisite number of posts...well...probably tomorrow...lol

Enjoy, and I plan to be lurking about for a while, aye? (I just watched Pirates 4, arrrggghhhh...

[kimmg]

Originally Posted by Mom2mitokids

First.. We have state insurance and we had no problem going. Never heard of a thing. Are you telling me you can never leave the state for a vacation?
Second.. He can never lose his MAW. Once approved they can not take it away. Who ever told you that is an idiot. You need to change social workers. Sorry for all you are going through.

See, what you're saying makes complete sense to me. I don't understand how they can do this. MAW says everything else is done, they only thing they need is the Dr's sign off and according to our social worker they won't be signing it since it is their policy. We're trying to see if our primary care can sign off. DH just got a job in another county and we were going to stay behind because he'll transfer back in the future. We're thinking of just switching hospitals. But then we'd be with a different MAW chapter and I'm worried it will mess up our DS's wish to see DW with Christmas lights. I don't know what I should do.

Originally Posted by Owensheart

[COLOR="indigo"][FONT="Century Gothic"][SIZE="4"]

This is ridiculous!! Is there one specific doctor at the hospital that won't sign off on it.. or is it the hospital social worker? I would speak wth a supervisor of that department. I have never heard of this and I know plenty of families on state insurance. Maybe your child's pediatrician can sign off on it, or at least speak with the hospital for you? I am so sorry.

Absolutely take this up the ladder at the hospital!!



SO TRUE!! After you are approved, they cannot take your eligibility away!

Well, it's the hospital social worker we're talking with, but she says it's hospital policy since I guess a family at one point sued the hospital when something happened on their trip and it wasn't covered. So it left a bad taste in their mouth or something. We asked MAW if we could get his primary care to sign off on it(the ped left the practice so he sees a family practice now) and they're checking into it. I just can't believe this is happening. I wonder who I should talk with at the hospital? A patient advocate or some type of management. After a bad experience with them refusing to see him a few months ago we have a 'bad taste' in our mouths at this point. If they ruin his wish I'm going to be furious! MAW said they don't know what the social worker is talking about, he's not losing his wish.

[mommy2girlswv]

Originally Posted by kimmg

See, what you're saying makes complete sense to me. I don't understand how they can do this. MAW says everything else is done, they only thing they need is the Dr's sign off and according to our social worker they won't be signing it since it is their policy. We're trying to see if our primary care can sign off. DH just got a job in another county and we were going to stay behind because he'll transfer back in the future. We're thinking of just switching hospitals. But then we'd be with a different MAW chapter and I'm worried it will mess up our DS's wish to see DW with Christmas lights. I don't know what I should do.



Well, it's the hospital social worker we're talking with, but she says it's hospital policy since I guess a family at one point sued the hospital when something happened on their trip and it wasn't covered. So it left a bad taste in their mouth or something. We asked MAW if we could get his primary care to sign off on it(the ped left the practice so he sees a family practice now) and they're checking into it. I just can't believe this is happening. I wonder who I should talk with at the hospital? A patient advocate or some type of management. After a bad experience with them refusing to see him a few months ago we have a 'bad taste' in our mouths at this point. If they ruin his wish I'm going to be furious! MAW said they don't know what the social worker is talking about, he's not losing his wish.

He has til he turns 18yrs to make a wish!

[MissJen]

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

[LindaBabe]

Originally Posted by MissJen

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

Hope you and your family have a WONDERFUL trip, MissJen!

[Owensheart]

Originally Posted by MissJen

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

I hope you have a fantastic trip!! Which cruise ship are you sailing on??

[angcmom]

I have posted our "tentative" itinerary over on Abigail's pre-trip report! Let me know what you think.

http://www.disboards.com/showthread.php?t=2814511

Our time is getting so much closer...we leave two weeks from tomorrow.