Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES! > disABILITIES Community Board
Find Hotel Specials & DIScounts
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read

Thread Tools Rate Thread Display Modes
Old 03-01-2011, 02:53 PM   #16
Heading out now, another adventure
Have a good time, WDW is a magical place
bookwormde's Avatar
Join Date: Mar 2008
Posts: 5,588

This is why the federal government has disallowed funding directly tied to educational classification. It is just taking a while for all the the states to comply. The criteria for an clinical diagnosis and an educational classification are virtually identical it is just lack of competency in both the clinical and educational world which creates both under and over diagnosis and classification.

bookwormde is offline   Reply With Quote
Old 03-04-2011, 06:14 PM   #17
DIS Veteran
Singledad's Avatar
Join Date: Feb 2011
Location: Wisconsin
Posts: 1,233

Talking Update:

Had that first meeting this afternoon. It went well

So glad I new my rights from the get go and had asked about the SPD eval, as it showed exactly what I thought it would. So they are going to help with that as well.

Also, bookwormde they did mention that she does have a lot of autism traits, and I could tell they were very scared I was going to freak out over them saying the A word. but I didn't.

Her official label at this point is Significant Development Delay.
Physical: fine motor,
Communication was selected with hand written: "Pragmatic/social"
Emotional or social
and Adaptive (because of her self-care issues...)

Since we ran out of time, within the next two weeks they will get to me copies of the reports they didn't have copies of today, along with the recommended stuff for the IEP itself. Then I have two weeks (so a month from today) to approve it, or get it changed to something I will approve of, or say thanks but no thanks.

OT said she recommends at least two times a week of OT working on fine motor and the SPD. (she specifically mentioned a swing, but alas, we ran out of time.)

So far, I am quite pleased with how things went. They were very happy that I didn't freak out when Autism was mentioned and actually pleased that I had already considered it, and that I am still open to checking that out. They do have a good amount of education and training on the spectrum... I just forgot the names and titles and abbv. that go with them. and they are looking into sending her teacher to training for SPD this month actually. (Her teacher is already the special education for all students 6 yrs of age and younger. So outside of OT she will have the same teacher and everything.)

Well, that is my update. fill in more details as I remember them and/or get paperwork and/or remember to.

Yay for successful meetings!
Me (27): DD (5):

PTR June 2011 TR June 2011 Dis Dad's club member #594
Singledad is offline   Reply With Quote
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 03-04-2011, 06:32 PM   #18
DIS Veteran
Join Date: Feb 2006
Posts: 644

don't be surprised if they try to slap an "educational autism" Dx on your child. In many states, that label comes with lots of extra cash behind it.

Ok- Just needed to do a little ROFL.. What state please??? I've had to fight tooth and nail for both my sons ( over 5 yrs for one) for the schools to even recognize my sons' Asperger's even with medical dx from an Autism center, 2 psychologists, and a psychiatrist...maybe we need to move
Ctsplaysinrain is offline   Reply With Quote
Old 03-04-2011, 06:57 PM   #19
Join Date: Aug 2008
Posts: 284

Originally Posted by Singledad View Post

Also, bookwormde they did mention that she does have a lot of autism traits, and I could tell they were very scared I was going to freak out over them saying the A word. but I didn't.
I'm glad your meeting went well. The reason they were scared to say the A word is because a lot of times the parents do freak out. I'm pleasantly surprised when I mention the A word and parents take it well. Sometimes they just aren't ready to hear it. Other times when they hear it and have time to process it, the next time I see them, they are ready to talk about it more. Rarely will they either bring it up or when I bring it up be aware of the possibility.
October 2008 POFQ
November 2010 Fort Wilderness Cabin
Eeyore5 is offline   Reply With Quote
Old 03-04-2011, 07:18 PM   #20
Join Date: Mar 2007
Location: livin' in the mitten
Posts: 202

Yay for a good meeting!!

I won a piggy
graciejane is offline   Reply With Quote
Old 03-04-2011, 10:00 PM   #21
Heading out now, another adventure
Have a good time, WDW is a magical place
bookwormde's Avatar
Join Date: Mar 2008
Posts: 5,588

Sounds like you are on a path with a team that at least has good core knowlege.

When a parent has taken the time to become informed befoer the meeting it is a big relief for the team.

bookwormde is offline   Reply With Quote
Old 03-23-2011, 05:48 PM   #22
DIS Veteran
mickey&minniealways's Avatar
Join Date: Feb 2008
Posts: 1,709

Originally Posted by StephC1217 View Post
I'm not from Wisconsin so I dont know the state rules here but I can speak from the experience of a teacher of severe special needs, as well as a parent (my son receives speech therapy). In Ma, you receive a written eval of test results before the IEP meeting so you can read the results of testing prior. At my school, the district LEA is present, as well as the principal, teacher, therapists. When I went for my son, it was just the teacher who evaled him (he doesnt go to the school he was evaluated at) and a speech therapist. It will probably be around a conference table. Everyone will sign in and introduce themselves so you will know who everyone is. Then they will ask you what your concerns are as a parent (you should mention everything you said here so they will be able to address your concerns in the IEP). They will briefly go over the results of the testing, probably each person who tested will go over their results individually. They may do it more in depth for you if you did not receive the written results yet. They will talk about your child's strengths and interests. They will ask you where you see your child in the next 1-5 years (your vision for you child)- or at least they do in Ma. Each person involved (OT, Teacher, etc) will go over results of the testing, how your child is currently performing, what goals they would like to see your child reach over the next year- probably fine motor goals, maybe some social/behavior goals, whatever pertains to your child. They will tell you how often they want to see your child (the OT may want to see your child 1 or 2 times a week for 30 min). If you have any goals you would like to see your child reach- like getting dressed, or another fine motor skill, you should bring it up and they can add it to the IEP or let you know why or why not they can address it. It will be a fairly informal meeting and remember that YOU are a big part of it. Dont be nervous- make sure you bring up all concerns and questions you have. They are there to help you and your daughter. I know its easier said than done (I get very anxious in social situations and in IEP meetings- both as the parent AND as the teacher) But they are there for you. If you dont agree with something, bring it up. If you have concerns, bring them up. If you want to see something done for your daughter sensory-related, bring it up. If you want to have her tested for something, bring it up. The more involved you are, the better! Dont feel like you are being a pain for bringing up concerns or asking questions. Once the meeting is over, they will write up the final IEP- making any changes to it that need be. Then you read it over and sign it. Once you sign it, they are obligated to follow it by law- so make sure its what you want before signing it. But if you change your mind after, you can always call another IEP meeting. If you feel more comfortable with someone else there, feel free to bring someone. You can hire an advocate but they are expensive and since your are not anticipating problems, it is probably not worth it right now. If you and the school disagree then you may want to hire one. Good luck and if you have any questions, feel free to ask or shoot me a message!!
I live in southern NH and the rules are very similar as in MA. I have been volunteering at an educational advocacy center for years. My son was first coded at the age of 3 he is 24 now. You have ben given some good info so I will gust give you a little more because it is alot to digest. First you want to type out a list of all the questions you want covered. Hand a copy of it to all in attendance, introduce yourself and shake theirs hands. You have just put yourself in control of the meeting instead of someone else. It tells them that you know what you are doing and will not be rolled over. Even if you do not know what they you are doing you are the only one who knows that. Bring a plate of cookies or something to share. This is blatent manipulation and everyone present knows this. However it is also showing them that you want this to be a pleasant experience and to work with them not against. It puts everyone at ease. Write a letter stating that you want to record the meeting. Offer to give them a copy of the recorded meeting. They are more likely to let you record it this way. Bring a notebook to take notes. Put together a binder for all paperwork. I have a template for doing this if you need one. Feel free to mark up the proposed IEP or 504 as much as you need to. Rewrite anything you feel is not specific enough. Saying something needs to be done 80% of the time is not good enough. It should be something like 8 out of 10 times and give a specific time frame. How it is measured or tested should be stated also. Do not sign the IEPat the meeting. Tell them that you want to take it home for a few days to look it over. This way if there is anything you want to change or add this can be done. Set up a day and time you can come back to sign it. Make sure they give you a copy of the state special ed laws. They are required by law to offer this to you. Keep a phone log at home. I know this is a pain in the neck but it is worth it. Put your personel calls on it also. This way they cannot ask for a copy of it. pm me if I can answer any other questions or just listen. With 2 of my 3 kids with issues I have been through alot. I have been at this for 21 years now. There are lots of great resources out there you just have to know how to find them.
mickey&minniealways is offline   Reply With Quote

Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates

All times are GMT -5. The time now is 02:29 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2015, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.