02-27-2011, 05:39 PM
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OKW until 2042
I only wish it could mean 24/7 until 2042!!!! Cheer mom 
Join Date: Sep 2000
Location: MA
Posts: 4,529
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Clinical trials for brain lymphoma Dana Farber CI Boston
My Dad has been following a Clinical Trial for Brain lymphoma over the past year at Dana Farber Cancer Institute in Boston.
He could not be an active participant in the trial because he is also a kidney transplant receipient and that alone excludes him from participating. Anyways.....after much thought, the doctors at DFCI said my Dad's BEST bet would be to use this chemo drug, Alimta, for his brain lymphoma. He could not go the conventional route of Methotrexate as it is toxic to the kidneys. So, we chose to use Alimta as an "off label" therapy. Insurance of course, would not pay for the $5000 per dose. HOWEVER, Eli Lily has a compassionate care program and have agreed to give my Dad the drug!!! After one year of being treated with Alimta, he is cancer free!!! He has been for the past 6 months and his treatments have been spreading out. At the beginning he went for infusion every 3 weeks, then spaced to every month, then 6 weeks now 3 months and we will most likely stop for 6 months if his May appt is good!! So.........there is hope for those out there!! Clinical trials are wonderful as is Dana Farber!! If anyone is experiencing brain lymphoma and would like to chat, please let me know........I am an advocate for this and if I can do or say anything to make someone out there realize there is a good drug for this....I will be willing to do what I can to help!! My Dad is 82, btw...
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Rosemary
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02-27-2011, 09:21 PM
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DIS Veteran
Join Date: Oct 2008
Posts: 1,356
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Hi Rosemary,
Thanks for sharing the story of your dad's wonderful recovery from this illness, I hope he has many more happy and healthy years ahead.  Quasar
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Me
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02-27-2011, 11:46 PM
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Has a sweetie who is Furbilicious 
Join Date: Aug 2004
Location: Montreal, Canada
Posts: 18,363
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Wow, that is sooooo inspiring!!!
Thank you for sharing that with us. It gives everyone hope, and that is sometimes all we can ask for..  to you and your family.
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It's nice to be important, but it's more important to be nice.
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03-04-2011, 09:04 AM
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Survivor
Call me crazy but I prefer the single bath Nothing beats the Magic of a Disney Resort! Will DIS from the Potty Alice, how's it hanging? 
Join Date: Jul 2004
Location: Southeastern Coast of Massachusetts
Posts: 19,758
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That is truly wonderful to hear!
 Best wishes to your Dad!
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03-06-2011, 01:02 PM
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OKW until 2042
I only wish it could mean 24/7 until 2042!!!! Cheer mom
Join Date: Sep 2000
Location: MA
Posts: 4,529
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Thank you.......
Clinical trials are so vitally important and I am so proud of my Dad for being a willing participate. He is so greatful to have been given a second chance at life with a new kidney that if he can have the opportunity to further advance cancer care and cure, he will!! There is hope.........
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Rosemary
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03-18-2011, 01:10 PM
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Me read the Navigator? I don't think so
tsk, tsk said in my best Bahsten accent Tommy made Flubber 
Join Date: May 2000
Location: MA
Posts: 17,397
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I loved reading this.. my doctor at DF just recommended a clinical trial for me starting sometime this year but when I read about it, I have lots of questions.. very scary sometimes these clinical trials so I was so happy to read about the success of this one.. Bravo to your Dad and hugs to you.
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