|12-12-2010, 10:58 AM||#1|
Join Date: Oct 2008
Going back to the other "World" GKTW 3 Big Gives 5/14
Our daughter Avy is being granted her wish!!!! She wants to ride the tea cups with the Princesses
Our Family has been BLESSED with another Make a Wish trip.
A little about our family
I am Kathleen. I'm the lucky mom of 50 children so far that have walked through our doors as foster children. I spend my days hopping from dr appointment, to therapist appointment, to dr appointment. I took up Knitting so I had something to do at the clinics
DH is Loren. He is the greatest man in the world. He doesn't flinch a eye when he walks in the door and there are 5 more kids here then, when he left for work He works full time and can change a cloth diaper faster then I can.
Jason will be 13 in a 10 day he was our first wish child. His wish was to go to Disney World. He has Autism (new dx since his wish trip) Primary immune deficiency, a heart condition, lung condition, and Holt Oram syndrome.
Avy "new wish child" She will be 11 in Jan.
Christian is 9. He has FAS and ADHD
Hayden is 6. He has arthritis.
Ella is 4. She is Hearing impaired.
C (Baby Bear) is 5 months and the sweetest foster baby in the whole world.
Avy loves purple
Avy was born 18 weeks early at 22 weeks. She is our miracle baby. I will not go into her birth story because I was not there during that time in her life. I will never forget the day she was born and I prayed everyday for the Preemie in the hospital. Never thinking she would one day become my daughter.
Avy came to us Halloween Weekend. She was a sad little thing and we had to rush her to childrens hospital a hour away, because she didn't have any feeding tube supplies and our local dr said there was no way she was treating her. Funny how fast Childrens ER took us back. She weighted in at 9lbs 9oz fully clothed at nine months old. I had never done a feeding tube so the Er Dr was going to put her in the hospital she looked just awful, her feeding tube was all infected and stunk so bad. The head dr came in and took one look at Jason who was 22 months old and had a IV bag in a little back pack, getting IV Abx and said teach her to feed her and send her home, if she can handle a PICC line on a toddler she can do a feeding tube
We are so lucky we went up there that day they had all her discharge paperwork so we where able to find all the things wrong with her and a list of her doctors. We got home with her about midnight and Jason had therapy the next morning at 8 am. The Therapist took one look at her and started therapy on her instead.
Avy has CP and wears a AFO on one leg and a UBC on the other foot.
She is blind in her right eye and has to wears a fake eye on that side. We found out this week that she is going blind in her good eye. It is already legally blind but it is getting worse and she may loss all vision. The dr didn't tell us how long she has but he did say he is so glad he signed her MAW papers for her to go.
She was on a feeding tube till she was 5. They did a huge surgery on her, by filling the back of her throat with cement (the kind they put in peoples backs) and it worked so she was able to have liquids for her 6th birthday. She loved her ice cream, she had never had before.
She is very speech delayed. There is a misfire between her brain finding the word and getting it to her mouth. If we get I want Cereal or I have to go to the bathroom out of her mouth that is a good speech day. She has started writing notes to her teacher to ask for things which is a huge step.
She had the worse grade brain bleed at birth you can have, they said her brain acts like she had a major stroke now.
Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me
We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like
Last edited by tinytreasures; 05-14-2011 at 11:19 AM.
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