Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 12-12-2010, 09:58 AM   #1
tinytreasures
DIS Veteran
 
tinytreasures's Avatar
 
Join Date: Oct 2008
Posts: 1,696

Going back to the other "World" GKTW 3 Big Gives 5/14

Our daughter Avy is being granted her wish!!!! She wants to ride the tea cups with the Princesses

Our Family has been BLESSED with another Make a Wish trip.
A little about our family
I am Kathleen. I'm the lucky mom of 50 children so far that have walked through our doors as foster children. I spend my days hopping from dr appointment, to therapist appointment, to dr appointment. I took up Knitting so I had something to do at the clinics
DH is Loren. He is the greatest man in the world. He doesn't flinch a eye when he walks in the door and there are 5 more kids here then, when he left for work He works full time and can change a cloth diaper faster then I can.
Jason will be 13 in a 10 day he was our first wish child. His wish was to go to Disney World. He has Autism (new dx since his wish trip) Primary immune deficiency, a heart condition, lung condition, and Holt Oram syndrome.
Avy "new wish child" She will be 11 in Jan.
Christian is 9. He has FAS and ADHD
Hayden is 6. He has arthritis.
Ella is 4. She is Hearing impaired.
C (Baby Bear) is 5 months and the sweetest foster baby in the whole world.

Avy loves purple
Avy was born 18 weeks early at 22 weeks. She is our miracle baby. I will not go into her birth story because I was not there during that time in her life. I will never forget the day she was born and I prayed everyday for the Preemie in the hospital. Never thinking she would one day become my daughter.
Avy came to us Halloween Weekend. She was a sad little thing and we had to rush her to childrens hospital a hour away, because she didn't have any feeding tube supplies and our local dr said there was no way she was treating her. Funny how fast Childrens ER took us back. She weighted in at 9lbs 9oz fully clothed at nine months old. I had never done a feeding tube so the Er Dr was going to put her in the hospital she looked just awful, her feeding tube was all infected and stunk so bad. The head dr came in and took one look at Jason who was 22 months old and had a IV bag in a little back pack, getting IV Abx and said teach her to feed her and send her home, if she can handle a PICC line on a toddler she can do a feeding tube
We are so lucky we went up there that day they had all her discharge paperwork so we where able to find all the things wrong with her and a list of her doctors. We got home with her about midnight and Jason had therapy the next morning at 8 am. The Therapist took one look at her and started therapy on her instead.
Avy has CP and wears a AFO on one leg and a UBC on the other foot.
She is blind in her right eye and has to wears a fake eye on that side. We found out this week that she is going blind in her good eye. It is already legally blind but it is getting worse and she may loss all vision. The dr didn't tell us how long she has but he did say he is so glad he signed her MAW papers for her to go.
She was on a feeding tube till she was 5. They did a huge surgery on her, by filling the back of her throat with cement (the kind they put in peoples backs) and it worked so she was able to have liquids for her 6th birthday. She loved her ice cream, she had never had before.
She is very speech delayed. There is a misfire between her brain finding the word and getting it to her mouth. If we get I want Cereal or I have to go to the bathroom out of her mouth that is a good speech day. She has started writing notes to her teacher to ask for things which is a huge step.
She had the worse grade brain bleed at birth you can have, they said her brain acts like she had a major stroke now.
Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me
We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like

Last edited by tinytreasures; 05-14-2011 at 10:19 AM.
tinytreasures is offline   Reply With Quote
Old 12-13-2010, 12:43 PM   #2
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

Quote:
Originally Posted by tinytreasures View Post
Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me
We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like
YEAH!!! You started!!

You are an amazing woman! Thank you for taking in these kids that would not have a home without you.

And that comment above makes me want to be sick. Even at 15 - she would still be your child and it would not matter if you were still changing her diapers in a wheelchair. Trust me.
maroo is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 12-13-2010, 12:47 PM   #3
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

Dates....

Star Wars Weekends would definitely be warm enough to swim.
May 20th is the first SWW - which will probably be busy with the "real" fanatics out there...but maybe if you picked May 21st to fly out and you could do May 22 at DHS and it would not be so crazy crowded??

That second weekend is also Memorial Day weekend...so I would think that weekend would be busy too...

And the later weekends fall into hotter summer times...

So I am guessing...if you want to hit SWW, then May 20th time frame would be best...

Make sure you don't leave on a Friday if you want to make sure and catch the GKTW Christmas Party.

Mid May is definitely a slower time at Disney to go...sounds awesome!
maroo is offline   Reply With Quote
Old 12-13-2010, 12:56 PM   #4
Mom2mitokids
DIS Veteran
 
Mom2mitokids's Avatar
 
Join Date: Jul 2010
Location: So. Cal
Posts: 1,583

Hi there and welcome back. I agree with Mary...you are one special mommy. This is our second MAW trip too. You don't come along seeing other family that is going on a second wish trip much...which is great. I hope you get dates soon. Can't wait to hear more about your special family.
__________________
Kris.. Mommy to 5 kiddos...
Kerri-19,Korissa(wish Child) 17, Kyra 15, Steven 11, Kylee 8 (post wish child),
PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

http://www.facebook.com/HopeforKylee
Mom2mitokids is offline   Reply With Quote
Old 12-13-2010, 02:28 PM   #5
billwendy
DIS Veteran
 
billwendy's Avatar
 
Join Date: Aug 1999
Location: essington, PA
Posts: 4,938

Hi!!! Your kids sound AWESOME!!! AS are you and your DH!!!

Last year we were on a MAW trip with my nephew in April and honestly it was HOT already. Im a little worried that if she is sensitive, she will get really worn out. Daniel (my nephew) was a month post his last chemo and it wiped him out so badly (even though we use a wheelchair) that he became exhausted and felt very ill by Thursday, spending the rest of his trip in the cottage - which was such a bummer that he missed so much of what he was looking forward to.

Does your daughter use a wheelchair? That might help protect her a bit from the people around her????

Cant wait to see your family pictures!!

Wendy
__________________
Wendy Billy and our fur ball Tigger

Traumatic Brain Injury 2/5 & 9/6/2013
March is TBI Awareness Month!
Life changes in an instant! Shine On!
billwendy is offline   Reply With Quote
Old 12-13-2010, 06:10 PM   #6
tinytreasures
DIS Veteran
 
tinytreasures's Avatar
 
Join Date: Oct 2008
Posts: 1,696

She does use a wheelchair
Dates are going to be hard because Easter is so late this yr. I am worried about the heat. When it is hot here we dump a lot of water on her. On Jason's trip the pool was closed at GKTW so I really want the kids to be able to play in the pool.
here is her wish

Avy at birth, she was 1lb 3oz, 6 and 3/4 inches long

here is a family photo
I am not allowed to show my foster childrens faces
tinytreasures is offline   Reply With Quote
Old 12-13-2010, 06:46 PM   #7
kailatilear
Mouseketeer
 
kailatilear's Avatar
 
Join Date: Oct 2010
Location: VA
Posts: 305

You and your husband are angels sent from above. I am so happy your baby is getting her wish, she trully deserves it, as do you and your family.
__________________
Read about Abby's PTR


http://www.disboards.com/showthread.php?t=2587282

Wish Trip Dates

Feb 24-March 2, 2011
So sad it is over, but wonderful memories were made and awesome smiles and lots of happy tears!!!

Mom Dad Kaila Tilear Abby
kailatilear is offline   Reply With Quote
Old 12-13-2010, 07:38 PM   #8
brookerene
DIS Veteran
 
brookerene's Avatar
 
Join Date: Jun 2010
Posts: 897

Wow I admire you and your husband's dedication....I wish more people were able to open their homes the way you have....I'm glad you get to go back to DW! I look forward to reading more.... God Bless!
__________________
brookerene is offline   Reply With Quote
Old 12-13-2010, 07:50 PM   #9
my2girlsrock
Mouseketeer
 
Join Date: Nov 2010
Location: New York
Posts: 241

So happy that your little one is getting her wish!!!!
__________________

Teresa
Mom to DD Taylor (8) Wish Kid, DD Samantha (7) Wife to DH John
Our puppy dog Molly
My PTR : http://www.disboards.com/showthread.php?t=2590945
Taylor's Carepage link ~ http://www.carepages.com/carepages/TaylorR
my2girlsrock is offline   Reply With Quote
Old 12-14-2010, 01:32 PM   #10
xanphylus
DIS Veteran
 
xanphylus's Avatar
 
Join Date: Jun 2009
Location: GA
Posts: 1,358

Can't wait to read another great PTR by you!! You are one of the "bestest" mommies out there- You do what I wish we could do- adopt kids that need help. I hope to do this one day. Still gotta convince that DH of mine though!
__________________
1994- Off site, 2007- Off site, 2009- PoP Century, 2010- Canceled, 2011- Canceled AGAIN

Trip Report: Davys in Wonderland- A baby's View of Disney
PTR: Come on kids- we're going to DisneyWorld!!!

xanphylus is offline   Reply With Quote
Old 12-15-2010, 03:21 PM   #11
hollie1974
Mouseketeer
 
hollie1974's Avatar
 
Join Date: Dec 2010
Location: NE Ohio
Posts: 215

Yay for wishes!

And Yay for you and your husband giving a loving home to kids who need and want them so bad.
__________________
Hollie Tracy CJ (10) Lily (3) : Wish Child Drache (11) Cousin and he is in!
Lily's Wish Tripping (and Mama's PTR!) http://www.disboards.com/showthread.php?t=2614191



hollie1974 is offline   Reply With Quote
Old 12-16-2010, 05:40 PM   #12
tinytreasures
DIS Veteran
 
tinytreasures's Avatar
 
Join Date: Oct 2008
Posts: 1,696

No word for the wish granters. I hope they can come during the school break.

We are planning to rent points and stay 2 extra days at AKL and will need some help figuring out how that works?
I hope we can get the 2 bedroom we want
tinytreasures is offline   Reply With Quote
Old 12-16-2010, 11:42 PM   #13
jj0plin
DIS Veteran
 
Join Date: Feb 2010
Posts: 471

I can't wait to hear more Hope you hear back from MAW soon!
jj0plin is offline   Reply With Quote
Old 12-21-2010, 11:23 AM   #14
HeatherSP
Mouseketeer
 
HeatherSP's Avatar
 
Join Date: Nov 2010
Location: VA
Posts: 218

Hi
It is always great to meet other foster/adopt mamas. You are amazing! Your children are adorable and so lucky to have you. I am floored that a doctor would tell you not to adopt. I can't wait to find out more about your family.
HeatherSP is offline   Reply With Quote
Old 12-21-2010, 12:10 PM   #15
arielrebornxoxo
Earning My Ears
 
arielrebornxoxo's Avatar
 
Join Date: Dec 2010
Location: in the south
Posts: 39

Awwww it sounds like you have a wonderful family
arielrebornxoxo is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 08:12 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: