|10-17-2010, 12:45 PM||#1|
Join Date: Jun 2010
J's Trip report - It's Broke down again?? 3 rides and a plane ! Our Amazing Adenture
James WishHiya, Welcome to our Trip Report Glad you stopped by. I will do my best to give this Trip Report the Justice it deserves. I say this because the events that went on was beyond anything our wildest dreams ever could have conjured. Never when this road started to be traveled had I expect such great things to unfold, such giving and loving people come our way. Words lack the magnitude of the gratitude we feel for everyone involved in making this Dream beyond anything my son could have desired. For everyone who truly made this a Once in a lifetime event, who made my son and my daughter feel so special You will forever be in my heart. Thank You to all of you.
Granted by the Dream Factory of Maine
Give Kids The World
Background – My son suffers from Crohn's Disease. That's his main diagnosis. Along with this disease comes a slew of complications. He suffers from chronic arthritis which depletes him of the ability to just go and run like other children. He tries his best to hide his pain but I realized the full spectrum of this pain during this trip.
I would like to share with you what he had said to me on a random day at the Villa in Give Kids The World. Someone happened to make a loud thud noise in the villa beside us. Now I happened to be in the bathroom at that moment refreshing my makeup and making sure I had nothing stuck in my teeth. Point of this is, I was behind a closed door when this Loud thud happened and it scared James to the point it caused him to have an adrenaline rush. I have been known in the past to pass out, so his fear and concern for me caused this particular adrenaline rush. I happened to hear him call my name so I immediately went out to check on him, he looks at me in such relief and says to me “Wow OK you're OK, did you hear that thud?” of course I replied and let him know I was OK he walks away turns to me and says “wow, I hate adrenaline rushes they make you feel all woozy, all the pain I normally feel disappears instantly that’s the only cool thing about them.” I know to most this does not seem like a big statement. However to me this is a huge deal. I know my son is in pain everyday, I did not realize his pain was 24/7 I am his own mother and I did not until that moment get the full jest of it. He hides it by far to well. Back to the subject at hand. He also suffers from Asthma and a slew of skin rashes due from the Crohn's. His Crohn's happened to not only be on the inside of his body but also on the outside. To help control this he goes in for infusions about every 6 to 8 weeks. This will happen until he has a reaction to this particular drug. So for now, it's indefinite.
James who is the wish child has a sister who is also ill. In fact she was always our ill one and James was always our healthy one. So god has entrusted us to care for two ill children vs 1. Bare with me here, I have an odd sense of humor but that’s what has made it so we hold together as a family through a lot of trials sent our way. I guess where we have done so well will 1 ill kiddo god decided we could handle 2? :} Why not, they say god does not hand you any more then you can handle right?
Go with me on this. I sway off topic quite frequently but I promise I will sooner or later return.
So you have James (Dream Child/Wish Kiddo) 14, Katelynn (Big Sister) 17, Dad (Tony) and Myself (Mum/Patricia) or Trisha or Tricia or Patty or Treasa.. Only nickname I run from is Pat , beyond that I am called by every name under the sun... Some I seriously can not repeat hahaha. :D
OK so you have why we have the trip, who is on the trip. Let me tell a bit about who is involved in making everything so wonderful for James and all of us.
We will start with the Dream Factory of Maine. The first person I spoke to a couple years ago was Mary who then introduced us to Chris. For sake of privacy I will leave last names out. Chris also introduced us to Abby. When James chose his dream Chris later contacted us and said James would be a good match to do the Annual WishFlight event that Something Maagic Foundation in conjunction with American Airlines and the American Airlines Credit union puts on. Absolutely amazing folks at American Airlines, I can not even begin to give them enough credit but I will do my best as the story unfolds. When Chris told us there was a place called Give Kids the World we of course had to look it up on the net which then led us to the Disboards where I have met some of the most wonderful people as well. Disboutiqeers Big Give was a huge roll in making this a fabulous trip as well. And I can't forget to mention LL-Bean. They were so gracious as to donate us a set of luggage along with 2 wonderful roll bags with wheels with the kids name on it.
You see, we as a family have never traveled, never been on vacation had never had a family picture taken. Always wanted to, just as many families with ill children know money is tight and sacrifices have to be made in order to survive. I know more was involved in all of this then I have mentioned and I do apologize, But I want to Thank each and every person who happens to fall in the behind the scenes that helped make this event for our family happen. I say our family because what started out as a Wish for my son, Turned out to be something that included our entire family and dreams for each one of us was answered at the same time. For that I will forever be grateful. You gave back to us an old saying we had started to lose. “For every bad there is a good, sometimes you just have to be patient to see it” We have this back. Now if we could trade this off and have healthy kids vs a trip of a lifetime. You know without a shadow of a doubt we would choose healthy kids in a heartbeat. However, seeing as that was not an option, we feel beyond blessed too be part of this. We feel honored to be included in such an amazing event. I can not say this enough.
Another thing before I actually begin the trip portion of this Trip Report. Personalities. I think I need too give a quick synopsis of our family personality along with individual personalities. We will start with James. James is a goofball at home and with those he knows VERY well. However he is very reserved any other time and has a very large shy streak. We knew he was not used to being put at the center of attention. So to be honest we was unsure exactly how he would react. Katelynn is shy. Normally will not talk to strangers and Normally does not HUG even with Mum & Dad hugs be scarce and she's been that way since itty bitty. Dad. LOL oh poor shy Dad. Defiantly does not like being center of attention or anywhere near center of attention. Then you have me. I am shy but try my best not to be. I am not graceful what so ever and am so camera shy it is not funny. So between the two Pictures normally does not come out well at all. So all in all you have 1 shy and reserved family hahaha which makes some of this all the more comical.
OK well, Thats a bit longer of an intro then most wanted I am sure. If you are still with me Great ! You get a gold star for amazing patience for this self proclaimed babble queen. Instead of lets get ready to rumble... or lets get ready to party... We will go with Let's get this Trip Report started. :} Maybe I need to be the self proclaimed queen of lame humor? :D
who: me DH DS(wish kiddo) 14 DD 17
PreTrip Report for J' http://www.disboards.com/showthread.php?t=2499099
Trip Report for J' http://www.disboards.com/showthread....1#post38619970
Dance to the petals on the streams running down,
they're there for you singing, just to lose that frown.
Dance from the song you feel beat within your heart,
it beats within you naturally loving from the start.
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