The THYROID Thread - Page 35 - The DIS Discussion Forums

MariDisney · 12-17-2009, 07:12 PM

Quote:

Originally Posted by mrsklamc

My dose was 150. I am not as 'in heaven' foodwise as I had anticipated because I have a bit of a funny taste in my mouth.

Mari doesn't have cancer though so no reason for her to be scared.

Not scared! Saw the endo today. He felt like although there are "tons" of nodules (his words) on the thyroid, there is only 1 large enough to even be slightly concerned. So, he's not ordering a biopsy now. He said all that would tell him would be whether to take it out or not, and it's coming out!

I left today with
1. Instructions to make an appointment with surgeon. I'm going to use Dr. Pezzi at Abington in the Phila suburbs. I suppose the chance of anyone being familiar with him is slim, but who knows. I called already and he can't see me til 1/26, but I'm ok with that.
2. Order for bloodword now that I have been on the tapazole for a few weeks. Got it done as soon as I left the endo. I'm supposed to call Monday to see if he wants to change the dose.
3. Prescription for "something" iodine (begins with an L I think) to take 5 drops 3 times a day for 10 days leading up to the surgery. Anyone know what this is?
4. Prescription for synthroid (it says .125 g, but I can't read how many times a day. Anyone know the usual? Just curious. Obiously this is for after the surgery.)
5. Order for bloodwork after the surgery (various TSH, etc.)
6. Call and make follow up appointment for 6 weeks after surgery unless calcium gets whacky in the hospital.

I know no one wants that detail, but I'm trying to organize my thoughts.

Thanks to all who have offered support!

mrsklamc · 12-17-2009, 07:26 PM

Can you read what the script does say? I used to be a pharmacy tech so I may be able to tell you; it may not have a number.

I imagine it's probably one tablet daily though. That's the dose they started me out on, too.

MariDisney · 12-17-2009, 07:39 PM

Quote:

Originally Posted by mrsklamc

Can you read what the script does say? I used to be a pharmacy tech so I may be able to tell you; it may not have a number.

I imagine it's probably one tablet daily though. That's the dose they started me out on, too.

The Synthroid script says 0.125 g (or maybe mg?) looks like a division sign LOL then tab po and maybe "in" also says #90, which I think means 90 pills. Why can't they write neatly?

The other one says Lyol's (I THINK) Iodine solution some strange stuff then I think tid(three times a day, right?) then "in juice" 10 days before surgery. Actually it is an a with a line over it, but I had enough latin to figure out he means ante/before, right? LOL

SO, any input on either would be great. Never heard of this second one. The Synthroid I did expect. He also did sign the brand medically necessary line on the Synthroid. I don't believe I've ever had that on a prescription before. I've usually had generics. Hmmmm...

mrsklamc · 12-17-2009, 07:54 PM

The other drug I'm not familiar with but with the synthroid without physically seeing it I would say that it is, one tablet by mouth daily. Of course, the pharmacy will print it on the bottle for you.

AND from my days as a pharmacy tech, I will tell you that it is VERY normal for synthroid to be brand name only/dispense as written. Our bodies are SO sensitive to thyroid and this is unique among drugs in that the generics just aren't as consistent as the brand in the dose strength. Fortunately, synthroid is pretty cheap.

MariDisney · 12-17-2009, 08:02 PM

Quote:

Originally Posted by mrsklamc

The other drug I'm not familiar with but with the synthroid without physically seeing it I would say that it is, one tablet by mouth daily. Of course, the pharmacy will print it on the bottle for you.

AND from my days as a pharmacy tech, I will tell you that it is VERY normal for synthroid to be brand name only/dispense as written. Our bodies are SO sensitive to thyroid and this is unique among drugs in that the generics just aren't as consistent as the brand in the dose strength. Fortunately, synthroid is pretty cheap.

Thanks for trying! I know they'll put it on the bottle, and I'll call if I'm confused.

Interesting about the Synthroid. I'm learning so much!

mrsklamc · 12-20-2009, 04:03 PM

Having another 'low' day today. Nothing like being hypo, just kinda sad. Is this normal while adjusting? The bad part is not knowing the difference between hormones and just plain moodiness!

luvmarypoppins · 12-22-2009, 01:48 PM

Got great news!! The endo said my blood tests were great! The TSH is practically undetectable, so the cancer is staying away!! Dh commented to her that he thinks I am too hyper, she said she could tweek my meds after the nuclear scan. I said I would rather leave them where they are and deal with the hyper. I am scheduled to go to the rad. onc in June but she thinks that is too late, she wants me to call and reschedule and she said she is not sure but thinks I wont need the diet for the scan??? I tld her I dont think this is right, is it christine?? I also have a one year post op surgical follow up in Feb. and then and endo visit, blood test and neck ultrasound in March.

jennz · 12-22-2009, 02:17 PM

Quote:

Originally Posted by luvmarypoppins

Got great news!! The endo said my blood tests were great! The TSH is practically undetectable, so the cancer is staying away!! Dh commented to her that he thinks I am too hyper, she said she could tweek my meds after the nuclear scan. I said I would rather leave them where they are and deal with the hyper. I am scheduled to go to the rad. onc in June but she thinks that is too late, she wants me to call and reschedule and she said she is not sure but thinks I wont need the diet for the scan??? I tld her I dont think this is right, is it christine?? I also have a one year post op surgical follow up in Feb. and then and endo visit, blood test and neck ultrasound in March.

Woo hoo! Merry Christmas - great news!

I haven't had to do the diet for my scans, but I haven't had one in three years so I thought this might be new.

Christine · 12-23-2009, 06:24 AM

Quote:

Originally Posted by mrsklamc

Having another 'low' day today. Nothing like being hypo, just kinda sad. Is this normal while adjusting? The bad part is not knowing the difference between hormones and just plain moodiness!

It takes a good 6 weeks to start feeling yourself. Even then, your TSH won't be at optimal levels. It's tough coming back up to normal. You always think it's going to happen much faster than it does.

Christine · 12-23-2009, 06:26 AM

Quote:

Originally Posted by luvmarypoppins

Got great news!! The endo said my blood tests were great! The TSH is practically undetectable, so the cancer is staying away!! Dh commented to her that he thinks I am too hyper, she said she could tweek my meds after the nuclear scan. I said I would rather leave them where they are and deal with the hyper. I am scheduled to go to the rad. onc in June but she thinks that is too late, she wants me to call and reschedule and she said she is not sure but thinks I wont need the diet for the scan??? I tld her I dont think this is right, is it christine?? I also have a one year post op surgical follow up in Feb. and then and endo visit, blood test and neck ultrasound in March.

luvmarypoppins--

Did you mean the "thyroglobulin" was undetectable, so the cancer is staying away? Thyroglobulin is the cancer marker. TSH only shows how much thyroid hormone you have. I'm thinking you meant Thyroglobulin in which case that is FANTASTIC news!

As for not doing the LID prior to scans, I've not heard of any doctor these days skipping that. I would probably ask her why she thinks it is okay not to. She may have a very good reason for it.

MariDisney · 01-26-2010, 04:39 PM

I finally was able to have my appointment with the surgeon today. It was like 6 weeks. Ugh! Anyway, my surgery is scheduled for Feb. 10th (so 2 weeks away). I need to see my primary next week for some pre-surgical appointment. Not sure what that will entail as I've had tons of blood work in the past 2 months.

The endo upped my tapazole to 60 mg/day mid-December. So, that's what I've been on. I also have Lugol's Iodine solution to begin taking 5 drops, 3 times per day starting 10 days before the surgery. I've heard cranberry juice is the best thing to hide the taste of that. Any experience with that?

My surgery is on a Weds., so my current plan is to be off work for the full wee after that and go back Monday the 22nd. Does that seem reasonable to those of you who have had the surgery? I'd rather NOT be out that long. I'm self employed and have no sick time, of course. So, there will be no income at all for that time frame, which stinks for me. But, it doesn't seem like shorter will work.

Any other words of advice? Should I plan on soft foods for several days? Will I want to just lay on the couch for awhile? Clue me in as to what your recovery from the surgery (it will be near-total) was like.

Thanks!

KAMLEM · 01-27-2010, 08:27 AM

Quote:

Originally Posted by MariDisney

I need to see my primary next week for some pre-surgical appointment. Not sure what that will entail as I've had tons of blood work in the past 2 months.

My pre-op with my primary care dr. was pretty simple. The only thing he did really was check my blood pressure and do an EKG.

Quote:

Originally Posted by MariDisney

My surgery is on a Weds., so my current plan is to be off work for the full wee after that and go back Monday the 22nd. Does that seem reasonable to those of you who have had the surgery? I'd rather NOT be out that long. I'm self employed and have no sick time, of course. So, there will be no income at all for that time frame, which stinks for me. But, it doesn't seem like shorter will work.

I had an easy recovery. I actually did some work from home on the afternoon of my surgery. My surgery was at 7:30 a.m. and I was home by noon. I was only out of work for a few days, mainly because I could not drive.

MariDisney · 02-02-2010, 12:14 AM

Quote:

Originally Posted by KAMLEM

My pre-op with my primary care dr. was pretty simple. The only thing he did really was check my blood pressure and do an EKG.

I had an easy recovery. I actually did some work from home on the afternoon of my surgery. My surgery was at 7:30 a.m. and I was home by noon. I was only out of work for a few days, mainly because I could not drive.

Thanks...that is encouraging. The doctor said 1-3 weeks, but i like your recovery better!!!

mrsklamc · 02-02-2010, 08:36 AM

I was out for two weeks but that was only because I have a HUGE scar from having all the lymph nodes removed, and couldn't turn my head to drive. Since you are having the smaller incision I bet you will be fine in one week!

cassiez76 · 02-03-2010, 12:50 AM

i just found this thread...wanted to say hi

i've had a low thyroid for 12 years now (started when i was around 20/21-ish). i'm on 150mg of the generic for levoxyl. i started at .5mg 12 years ago

usually cold, tired, gain weight when it's off and get it checked every 6 months.

my mom is on like .5mg now. i guess it's just apart of the family. we had a cat that also had thyroid problems!

my mil had to have hers removed (they were the size of kidneys!). so far hubby is the only one without thyroid problems.

gonna subscribe!

01-26-2010, 04:39 PM	#521
MariDisney Learned a difficult lesson about eating chocolate in the dark! Had to admit to eating bird poo to get what she wanted Fully open=cool. Fully closed=cool. Half way=no can do Join Date: Apr 2004 Location: Warrington, PA Posts: 3,189	Surgery Scheduled I finally was able to have my appointment with the surgeon today. It was like 6 weeks. Ugh! Anyway, my surgery is scheduled for Feb. 10th (so 2 weeks away). I need to see my primary next week for some pre-surgical appointment. Not sure what that will entail as I've had tons of blood work in the past 2 months. The endo upped my tapazole to 60 mg/day mid-December. So, that's what I've been on. I also have Lugol's Iodine solution to begin taking 5 drops, 3 times per day starting 10 days before the surgery. I've heard cranberry juice is the best thing to hide the taste of that. Any experience with that? My surgery is on a Weds., so my current plan is to be off work for the full wee after that and go back Monday the 22nd. Does that seem reasonable to those of you who have had the surgery? I'd rather NOT be out that long. I'm self employed and have no sick time, of course. So, there will be no income at all for that time frame, which stinks for me. But, it doesn't seem like shorter will work. Any other words of advice? Should I plan on soft foods for several days? Will I want to just lay on the couch for awhile? Clue me in as to what your recovery from the surgery (it will be near-total) was like. Thanks! __________________ Mari...A Great Big Beautiful Tomorrow is Just a Dream Away...7/98 Carribean Beach ... 1/03 All Star Movies ...9/03 All Star Music ... 6/04 Port Orleans Riverside Honeymoon ... 1/05 Port Orleans French Quarter ... 1/06 Carribean Beach ...9/06 Pop Century ... 8/07 Port Orleans Riverside...9/08 Port Orleans French Quarter...9/09 Coronado Springs...9/11 Port Orleans Riverside

02-03-2010, 12:50 AM	#525
cassiez76 DIS Veteran Join Date: Jul 2009 Location: new orleans Posts: 792	i just found this thread...wanted to say hi i've had a low thyroid for 12 years now (started when i was around 20/21-ish). i'm on 150mg of the generic for levoxyl. i started at .5mg 12 years ago usually cold, tired, gain weight when it's off and get it checked every 6 months. my mom is on like .5mg now. i guess it's just apart of the family. we had a cat that also had thyroid problems! my mil had to have hers removed (they were the size of kidneys!). so far hubby is the only one without thyroid problems. gonna subscribe! __________________ cassie 35, dan 35, mom to thomas, sushi and sylvester. 9/09 POP-thomas' 1st trip! 10/10 offsite: weston hills. 11/11 POP! 5/12 SSR for SWW, bringing home a little souvenir!

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12-17-2009, 07:26 PM	#512
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,377	Can you read what the script does say? I used to be a pharmacy tech so I may be able to tell you; it may not have a number. I imagine it's probably one tablet daily though. That's the dose they started me out on, too.

12-17-2009, 07:54 PM	#514
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,377	The other drug I'm not familiar with but with the synthroid without physically seeing it I would say that it is, one tablet by mouth daily. Of course, the pharmacy will print it on the bottle for you. AND from my days as a pharmacy tech, I will tell you that it is VERY normal for synthroid to be brand name only/dispense as written. Our bodies are SO sensitive to thyroid and this is unique among drugs in that the generics just aren't as consistent as the brand in the dose strength. Fortunately, synthroid is pretty cheap.

12-20-2009, 04:03 PM	#516
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,377	Having another 'low' day today. Nothing like being hypo, just kinda sad. Is this normal while adjusting? The bad part is not knowing the difference between hormones and just plain moodiness!

12-22-2009, 01:48 PM	#517
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,307	Got great news!! The endo said my blood tests were great! The TSH is practically undetectable, so the cancer is staying away!! Dh commented to her that he thinks I am too hyper, she said she could tweek my meds after the nuclear scan. I said I would rather leave them where they are and deal with the hyper. I am scheduled to go to the rad. onc in June but she thinks that is too late, she wants me to call and reschedule and she said she is not sure but thinks I wont need the diet for the scan??? I tld her I dont think this is right, is it christine?? I also have a one year post op surgical follow up in Feb. and then and endo visit, blood test and neck ultrasound in March.

02-02-2010, 08:36 AM	#524
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,377	I was out for two weeks but that was only because I have a HUGE scar from having all the lymph nodes removed, and couldn't turn my head to drive. Since you are having the smaller incision I bet you will be fine in one week!