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Old 03-15-2009, 07:09 PM   #16
mommasita
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Thank you to each and every one of you

Diane you are NEVER self centered, please do not go there

I will see how it goes after the kids finish school tomorrow, and we shall plan from there. See, if I knew the appt would not be long, that along with the wait of course, I would bring them and have them play their video games in the waiting room, but i am uncertain about that move!!!

I hope you all had a great Sunday!! I did, I just came from family dinner, and my SIL who is now 16 weeks is looking lovely, and feels so much better. I am so excited about this new addition!!!!!!!!
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Old 03-16-2009, 09:31 PM   #17
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Was your appointment today? I just stopped in to see if there were any updates on Tom and saw your post.

I don't have any advice or wisdom to share. Please just know that you have many people on the DIS that care about you. PM me any time you need to talk or just vent. I know how it feels to be stuck at home, worried, and not feeling well.
It sounds like you are on the right track with your doctor. Hopefully he will recommend a treatment that will give you some relief.
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Old 03-16-2009, 10:06 PM   #18
mommasita
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Well here goes.

I am thoroughly confused after this appt. This new Dr. (neurologist) I did not like one iota. Did not feel comfortable nor was I able to even speak. Every question he asked, I could not finish answering. Grrr I don't like that.

He told me he has results but would not "share" them with me. He does not want to "label" me with MS or any other auto immune disorder (as I have Sjogren's) right now. I ask well what are the results, and he said I am not sharing them, final. He said let me say "hypothetically" they say probable MS, it is never a definite even after finding lesions. That MRI's show every dot of anything in your brain, but what confusing to me now is that I had a SCAN and EMG's, not even a full MRI yet, so what is on this paper Is this hypothetical, what kind of game is this. He told me I was too nervous, and I told him he was intimidating to me! He LOL at that, like really. Of course I am nervous, how could I not be.

He asked if ever had headaches, I told him maybe 5 to 10 a year, and he diagnosed me as having migraines??? Gave me a prescription for migraines as well, but after some research I also see it is used in MS tremors, and hypertension (which I have the opposite of). I told him they were not at that debilitating at all, and I have much bigger issues. I did not fill the prescription just yet. I want to call my GP tomorrow and try to get in with him ASAP.

He also said that if he does diagnose me with MS, I may lose my work insurance, disability, and all that. That just blew me away, I had no idea. And now I am supposed to update my insurance, and am afraid to disclose this possibility, in case that does happen. I need to speak to my Dr. first.

Sorry for the novel here, but I was completely and utterly confused all night.
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Old 03-16-2009, 10:33 PM   #19
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Momma, I already PM'd you... You are on my mind... PS.. In my mind you are really pretty... The kind of woman I am always jealous of... Hope that brings a smile to your face! Diane.
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Old 03-16-2009, 10:42 PM   #20
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Quote:
Originally Posted by Tinker'n'Fun View Post
Momma, I already PM'd you... You are on my mind... PS.. In my mind you are really pretty... The kind of woman I am always jealous of... Hope that brings a smile to your face! Diane.
You are too kind my dear!!1

It did make me smile and giggle like a child. Thanks for it.

P.S. You are wrong though
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Old 03-17-2009, 06:30 AM   #21
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Hey Mommasita,
First of all...
Second...that doc sounds like he needs some lessons in bedside manner!

But, I guess it is kind-of good news. It sounds like your case must not be severe????? I hope.

As far as insurance goes.... if you haven't been diagnosed, then you don't have to tell them anything. I would not list it until I had to.

I know you must be feeling very frustrated and scared. Please try to take it one day - or even one minute, at a time. During these times when I feel like I am being pulled under, I just tell myself "this, too shall pass".

You and your family are in my prayers.
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Old 03-17-2009, 06:34 AM   #22
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mommasita RUN don't walk to a new dr! Your records are yours. Go back and get them and RUN to a new dr!
Don't disclose anything to your insurance yet as you have not been given a diagnoses. I don't even know if what he told you about insurance companies is true.
You really need a different dr that will go over your tests with you. Good luck. keep us posted
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Old 03-17-2009, 07:11 AM   #23
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A dr is NEVER allowed to withhold results from you. LEGALLY he MUST give them to you. Get your records, all of them, and go to another drs immediately. If he won't give them to you, call the state attorney general.
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Old 03-17-2009, 11:13 AM   #24
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Hey Momma, did you wait at the front door until they opened today?? Just wondering if you have an update. You are in my thoughts. Diane.
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Old 03-17-2009, 11:57 AM   #25
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You and your family are in my thoughts and prayers.

Not to add to your worries, but I'd be focusing on finding a new doctor pronto! Doctors should never withhold any of your medical information from you. It is always best to get a second and third opinion anyway. I would get a copy of my records (I would not so nicely demand them today!) and talk with your primary doctor and friends/ family for recommendations on another doctor. The bottom line is you deserve the best care out there, not some doctor who won't tell you the results and hand you a prescription for migraines and send you on your way.

Keep up posted!
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Old 03-17-2009, 12:24 PM   #26
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I went this morning after dropping of my daughter at her bus stop.
My Dr. is away until the week I see him. I did speak to his secretary, and she is supposed to get in touch with me.

Thanks everyone.
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Old 03-17-2009, 12:28 PM   #27
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I am with the rest that say go find a new Dr.. We had to do this with my DH and it was the best thing we ever did. Hopefully you'll get some answers soon.
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Old 03-17-2009, 01:54 PM   #28
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You need another doctor .....like YESTERDAY !!! Forget about the first one , he would not float my boat either.
Major hugs.
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Old 03-17-2009, 03:39 PM   #29
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I'm sorry it didn't go well. He sounds like a POW (piece of work).

You do have a right to your health information, but it really has to be interpreted correctly for you. Reading some things on your own can be really scary but may not be as much so if given to you correctly by the right physician. If this guy got your records, so can the next guy, and so can you if you want them. Personally, I think I'd make another appt with someone else and see how it goes then.

I have access to some of my own testing in my own hospital and I can tell you that at times I've read my own results before speaking with my doctors I've been freaking out. I don't read them anymore, I just wait until I hear from someone. Information by itself isn't enough, you need a specialist in the field to interpret it, IMO. Good luck with the next one.
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Old 03-17-2009, 07:59 PM   #30
TruBlu
I was very excited to see how yummy it looks!
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Hi, friend. Just thinking about you and sending you another
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