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Old 11-27-2007, 07:07 PM   #196
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This is an Interesting thread.

At the age of 28 I was diagnoxed with Medullary Thyroid carcinoma the rarest form of the disease. After the diagnosis I had genetic testing done that showed I have Multiple Endrocrine Neoplasia (MEN Type 2A) With this syndrome I can develop tumors on other endocrine glands over the course of my life. As it so happens my labs recently came back out of range for the Parathyroid hormones. I blew it off but the doctor took it more seriously than I did. It seems that it is possible I might have a tumor now on the parathyroid gland or on the adrenal gland causing the parathyroid homrones to be elevated. I feel like I have walked this road before and it is not an easy one. My original cancer was found by accident. We were testing some new ultrasound equipment at work and I was the test patient for the neck region...low and behold...there it was and I was not having any sypmtoms. See God does work in mysterious ways. I am glad that I have found this thread and hope that maybe I might be able to be of help to someone else. Feel free to e-mail me GoHerd1028@aol.com

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Old 12-24-2007, 02:11 AM   #197
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Originally Posted by Blueeyes101817 View Post
I have been having thyroid problems since i was 8 years old..i am now 22..

When I was 8, i had a tumor (benign) and half of my thyroid removed..When i was 15, a few more tumors grew back and they removed them and the other half of my thyroid--They then put me on Synthroid. When I was 16, I had scar tissue revision..

Since my surgeries, especially the last 2, my thyroid levels go crazy--Every 6 months or so I have to get my levels changed..i go from being hypo to hyper all of the time.. After this semester, I will be getting some more tests done to see if there are any more tumors in there..i have been having a hard time holding my neck up again and my necks been really sore and ive been having difficulty swallowing...

Its nice to see this thread!

I thought I was going crazy,, I just could not understand. 15 Years ago, I had the first tumor at my thyroid taken out it was benign, 9 years ago I had the other side taken out it was benign. Over the past 1 or so I have had trouble swallowing, my neck is sore when I turn it to far to look at something and when I sleep I have huge amount of pressure in my neck and it is hard to get comfortable.. I figured the doctor would tell me i was nuts that there was nothing there and that it could not grow back.... I guess I was wrong and it does happen.. I will make an appointment...

Your posting has really made me feel like I have not lost it and this is realy
Thanks

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Old 01-05-2008, 09:12 AM   #198
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Hi Thyroid friends! I was diagnosed 9 years ago with Hypothyroid with graves diesease. I found out when i was trying to get pregnant with my first child and could not get pregnant. I now have 3 beautiful children and still suffer from the diesease. My endo doctor wants to kill my thyroid, but I have mixed feelings about it.

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Old 01-05-2008, 08:44 PM   #199
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does anyone currently have or have you had Pre-tibial myxdema?

I have been hyper (now controlled) with Thyroid eye disease and PTM for 8 years
would love to know if anyone has had any success with any treatments for the PTM
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Old 01-10-2008, 02:50 PM   #200
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Quote:
Originally Posted by GoHerd1028 View Post
This is an Interesting thread.

At the age of 28 I was diagnoxed with Medullary Thyroid carcinoma the rarest form of the disease. After the diagnosis I had genetic testing done that showed I have Multiple Endrocrine Neoplasia (MEN Type 2A) With this syndrome I can develop tumors on other endocrine glands over the course of my life. As it so happens my labs recently came back out of range for the Parathyroid hormones. I blew it off but the doctor took it more seriously than I did. It seems that it is possible I might have a tumor now on the parathyroid gland or on the adrenal gland causing the parathyroid homrones to be elevated. I feel like I have walked this road before and it is not an easy one. My original cancer was found by accident. We were testing some new ultrasound equipment at work and I was the test patient for the neck region...low and behold...there it was and I was not having any sypmtoms. See God does work in mysterious ways. I am glad that I have found this thread and hope that maybe I might be able to be of help to someone else. Feel free to e-mail me GoHerd1028@aol.com

Steve

I am a meddie too. I was lucky also and my cancer was found early. I had huge nodules on the right side of my thyroid that were growing rapidly, but all of my thyroid tests and biopsies were normal. They decided to remove the half of my thyroid with the nodules, but during surgery the Dr. decided the other side looked "funny" so he took the whole thing out. They called me five days later and told me I had cancer. I went back four weeks later and had a left modified radical neck dissection. It has been almost two years now and all of my blood work is good. I still go to the oncologist every three months and the enodcrinologist about every two months. I have problems getting my TSH regulated (I take 200mcg Synthroid and 10mcg Cytomel right now) and the endocrinologist has found other problems that I take all kinds of medicine for, but I am so thankful it was found early. I am a single mom of two teenage boys and can't imagine leaving them!
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Old 01-10-2008, 03:04 PM   #201
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All you thyroid experts......

Just back from my Dr and an annual physical. She said my thyroid is 'borderline' enlarged. doing bloodwork.

12/7 I went to breast dr. -( due to my sister's breast cancer 3 yrs ago, I go yearly just because) - she noticed an enlarged node under left armpit. Did an ultrasound & said it was normal, just puffy.

I had pneumonia 12/18 when I went in running a 102+ fever, 5 days on Zpak, 12/31 woke up with horrific sore throat on one side, swollen nodes. Nodes still swollen, ,lots of sinus drainage, etc. Starting another round of antibiotics. DD had same, including nodes & now has an enlarged sore spleen.

However, I'm the worlds worst worriwort & now wonder if the glands could be
from the thyroid & it could be cancer. Any input?

thanks much!!
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Old 01-15-2008, 06:17 AM   #202
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Hi Everyone!

I just found this thread - couldn't sleep.

As some other posts have said, they have all the symptoms of HYPO as do I and the doctors keep telling me my blood tests are normal! Could it be that MY normal is a little higher than others? I don't get it, I mean EVERY symptom.

My story:
I was diagnosed by my gyno about 17 years ago, he asked what the big lump was in my throat, I thought it was an adam's apple - lol, he told me girls don't have them and sent me to an endo. I felt fine - never had any problems with my weight or anything.

Well, the endo put me on synthroid to "shrink the nodule" ??? and it grew larger so I had to have it removed turns out there were over 50 of them all over my thyroid and they took out the entire thing except for a para. They were all benign but I wonder what causes this?

I grew up in So Cali around lots of orange groves and wonder if maybe the DDT did it?

Looking at pictures of me when I was like 6 years old you can see a bump in my throat. No one else in my family has ever had this.

I do have a question that no one - including medical professionals has ever been able to answer: If we(those without thyroids) exercise regularly does our metabolism go up like other people's do or are we dependent on that little pill, period?


So glad to have found this thread and it is nice to know that Im not the only one but I am also sad to know others are suffering.
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Old 01-28-2008, 06:19 PM   #203
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Quote:
Originally Posted by Disneysnel View Post
I just found this thread - couldn't sleep.

As some other posts have said, they have all the symptoms of HYPO as do I and the doctors keep telling me my blood tests are normal! Could it be that MY normal is a little higher than others? I don't get it, I mean EVERY symptom.

My story:
I was diagnosed by my gyno about 17 years ago, he asked what the big lump was in my throat, I thought it was an adam's apple - lol, he told me girls don't have them and sent me to an endo. I felt fine - never had any problems with my weight or anything.

Well, the endo put me on synthroid to "shrink the nodule" ??? and it grew larger so I had to have it removed turns out there were over 50 of them all over my thyroid and they took out the entire thing except for a para. They were all benign but I wonder what causes this?

I grew up in So Cali around lots of orange groves and wonder if maybe the DDT did it?

Looking at pictures of me when I was like 6 years old you can see a bump in my throat. No one else in my family has ever had this.

I do have a question that no one - including medical professionals has ever been able to answer: If we(those without thyroids) exercise regularly does our metabolism go up like other people's do or are we dependent on that little pill, period?


So glad to have found this thread and it is nice to know that Im not the only one but I am also sad to know others are suffering.

Do you know what your TSH levels are? T3 and T4. This would give a better picture of how you are falling within the lab ranges.

Exercise: it really doesn't speed up your metabolism. Your metabolism is what it is. Exercise is energy expended. Energy expended burns calories. Plain and simple. Each person has a set point in their metabolism. If you are on thyroid meds, that is pretty much controlled by the medication. If you exercise though, you will burn calories like everyone else.
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Old 01-28-2008, 06:20 PM   #204
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Originally Posted by goldcupmom View Post
However, I'm the worlds worst worriwort & now wonder if the glands could be
from the thyroid & it could be cancer. Any input?

thanks much!!

Most people with thyroid cancer (even advanced) didn't detect any swollen nodes. Thyroid cancer does spread to the lymph nodes but it is usually the ones way inside your neck that only the surgeons can get to.
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Old 02-12-2008, 01:40 PM   #205
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Thank you so much Christine!

Well, there goes THAT excuse for not exercising -
I tried to find my last lab report but must have tossed it. I will post after my next labs.

Hope everyone is doing good or at least better

Kelley
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Old 02-16-2008, 08:07 PM   #206
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Just found this thread - what a great idea!

I was diagnosed with thyroid cancer 11 years ago. My gyn felt a lump in my neck near one of my lymph nodes and had me go see a specialist. They biopsied my thyroid - came back clean, so they only removed the lump. When they tested the lump, it was full of cancer - - so four days later I went back to have my thyroid taken out.

They left a tiny bit of my thyroid in, near my parathyroid, and I had radiation to kill off that last little bit of my thyroid.

It seems most people are good to go after that one radiation treatment, but every year when I went back for a follow-up test and scan, they found thyroid cells. For about five years, I had radiation, and then got a break because I had two kids. Since then, I've had radiation one more time. My doctor has since decided to see how things go on a year-to-year basis and maybe not have radiation every time the cells come back. I like that - I can't stand to be off my synthroid for six weeks - it turns me into a zombie.

I never heard about thyroid cancer, but I've been asked to talk to three other women who have been diagnosed in the past few years.

So glad to have a site where I can plan for WDW and talk to people about thyroid issues!
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Old 02-16-2008, 08:12 PM   #207
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Quote:
Originally Posted by Christine View Post
Most people with thyroid cancer (even advanced) didn't detect any swollen nodes. Thyroid cancer does spread to the lymph nodes but it is usually the ones way inside your neck that only the surgeons can get to.
Forgot to mention this in my last post - the lump in my neck was easily felt. I felt the lump about a year before my gyn found it - but when I asked a friend who was a nurse, she told me my glands were swollen and to take my vitamins. Whenever I did feel the lump again, I thought I was getting sick. It seems so stupid now, but at the time it made sense. My tumor was attached to my lymph node (the cancer had overrun the node) and the surgeon said it was the size of a large peach pit.

I'm actually thankful for the lump - I felt fine, so without the lump God knows when I would have figured out something was wrong with me.
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Old 02-16-2008, 09:33 PM   #208
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Quote:
Originally Posted by nicdanh View Post
Hi Thyroid friends! I was diagnosed 9 years ago with Hypothyroid with graves diesease. I found out when i was trying to get pregnant with my first child and could not get pregnant. I now have 3 beautiful children and still suffer from the diesease. My endo doctor wants to kill my thyroid, but I have mixed feelings about it.

Michelle
Can I ask... why would they kill your thyroid when you are already hypo?
Do you mean HYPER thryroid with Graves? I am hypo with Graves... BECAUSE they killed my thryroid! You can kill the thyroid but that DOES NOT kill or treat the graves. PLEASE read all you can before you do that. If I could go back there is no way in you-know-what that I'd EVER do it! Really, I'd never do it again.
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Old 03-26-2008, 01:29 PM   #209
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I'm glad I found this thread. I got my dx of Hypo 23yrs.ago at the age of 22. For many many years I took my meds, but, never consistantly ( I know now how stupid that was.) Well, 3 yrs. ago I was having major issues with memory (short term was shot and would forget how to tie my shoes and even forgot how to get home from work), body/muscle pain(my entire body would go into spasms,I would loose control of my arms and legs. Dropping things or falling because my legs wouldn't work) constant migranes and nasusea 24/7. It was a very scary time for me. I thought I was going crazy and or dying. All of this was because my thyroid was now Hyper. Not sure what my levels were, but, PCP said they were 4x what they should be and that my body couldn't take in all that hormone. Went to an Endo and was told that I could of had a stroke had I let it go. And that my body was shutting down on me. I ended up doing the RI twice. And was told I have multi nodule goiters. So, now I take my meds everyday like I'm suppose to. My levels still flip flop from time to time but not to bad.

I never took this very seriously, but, now realize that my thyroid controls so much more that you can imagine. I now know this is why I have miscarried 4 times. All 4 times I wasn't regular with my meds. I have 1 healthy DD and was very faithfull with meds before conseption and during preg. And now my eyesite has diminished drasticly over the last 3 yrs.

So, for those of you that are in the begining of your dx. Don't stop until you get all the answers you are looking for. Educate yourself as much as possible, and please take your meds as perscribed. It really is important.

Just a side note: I was told that there is connection with Thyroid Disease, Fybromyalgia and MS. Which is something else that my Dr's are looking into at this time. PCP said that some studies show that most people with MS have a thyroid issue. And studies are also showing that there is a large number of people that are dx'd with Fybromyalgia are later dx'd with MS.
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Old 03-27-2008, 08:50 AM   #210
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Wow. Glad I found this thread. I've got a lot of reading to do.

I was diagnosed hypo nearly 5 years ago after the birth of my daughter. Meds controlled it. Just gave birth to a beautiful boy 5 months ago.

In January, the endocrinologist felt nodes in my neck. Prepared me for the worst (the most scary time of my life). He did an ultrasound and said it was textbook Hashimoto's, and that I didn't need any further tests to totally rule out cancer.

In your experiences, is this true? I will undergo any test to ensure that it is not cancer. Is the ultrasound really enough? He said the "nodes" that he felt were really the misshapen thyroid gland from the Hashimoto's.

Please let me know what your thoughts are on this.
Thanks so much.
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