Originally Posted by Chuck-PA
My wife and I are a bit tired of hearing "God only gives you what you can handle"
We also have a son who has CF. He is 19 now. Every time he gets a cold, we worry how much lung damage will this cause. We worry about how many good years do we have left. We do create lots of great memories with him. He has a feeding tube. Life is harder with him having his own mind too and that ole invincible feeling. Those "arguments" are always fun.
I have MS, neurocardiogenic syncope (passing out), sleep apnea, anxiety,
prostate trouble, and as of a week ago, Pulmonary Hypertension (high blood pressure in the lungs and fluid retention in the body and limbs). It is a disease that CF'ers die from.
My wife was just diagnosed last week with extremely high blood pressure.
I wonder why?...lol..... no stress here dealing with all the ailments is there?
My wife lost her father last year to cancer, diagnosed and gone in one week's time.
The best way we have dealt with each diagnose or each little speed bump in life is with laughter. We find the humor or a funnly moment in the past and laugh about it. If not, I am sure we all would be moping and crying 24/7.
Our thoughts are with you....if you would like to share your experiences with CF, we are here for you. Since there are so few people with the disease, you may feel all alone at times.
Have a great time at Disney.
Chuck and Joanne
When you can see what others go through....life is not so bad! Your family too has had it's share of heartache and trouble! You got to wonder why we are dealt so much with all that is on our plate! Thanks for listening to my poor pity me day. I have picked myself up and dusted me off and I am set for another day!
God Bless you and your family. I hope your son's CF stays good for years to come!