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Old 10-07-2007, 08:53 PM   #1
LeeLee2U
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Rolling thru the WORLD in a wheelchair on a WISH trip! 8/12 NEW UPDATE*CR CAPTIVES!!

Hello! and
I am attempting to write this TR for several reasons
#1 because as a wish family I was searching high and low for any help I could recieve
#2 Because I recieved enormous help from the DIS and the TRs I read on it
#3 Because our trip was well Worthy of being put in print
and finally
#4 Beacause of several of you that have repeatedly asked if I was gong to do one. Well here it is! i hope you all get on and read it. It's been my fear that no ine would subscribe.



O.k. A little back ground info first.

This trip came around because of my DS5. DS5 is truly MY miracle child! I emphasize on My, because I know several of you out there have miracles of your own! DS5 because of a pre-mature birth (13 weeks early) has spastic diplegia cerebral palsy due to the lack of oxygen that occured during his birth. Ironically he also had ROP (retinopathy ofPrematurity) due to too mucch oxygen after birth!! Go figure!
He is still showing over 97% brain damage. This causes all the Drs a little confusion, because in 5 years his brain has hardly changed. Usually as a person grows older the brain wiring changes as they grow during the first few years of Life. This has been the cause of numerous studies to be done on my son. They (the Drs) really wanted to be able to show how the brain adapts and changes, well as there has been very little to no change with his brain there should have been very little change with B. Well that's not been the case My son has went from being vegatative with little movement. To a happy growing 5 yr old who is now in reg. Kindergarten with No special ed pull outs!

That being said, B does suffer from some unknowns that they don't hink were caused from the pre-maturity but they aren't sure. He has an unknown metabolic disorder that definatly is effected with how much or how little he eats, but has not affected his sugar level. He has a problem with losing skills when he is sick and it has been as long as 13 months before regaining them. This was thought to maybe be a form of mitochondrial defect. Int he studies done they found that he has extra mito cells. As this has not been seen before he is the subject of much research!! He suffers from migraines and fluctuating muscle tone that is not caused by the CP. He also has a sensory integragation disorder. He has a list a mile long of diff things that I want get into at this time.
On June 5th we were going into our local Wal Mart. Both the boys were very excited as we had just been to the airport to meet my nephew and go eat with him. Our boys and their cousins are very close and Matt my nephew is like a brother/uncle to them. He is in Iraq and had just come in for 2 weeks leave after being gone for over 7 months, so we were excited!
Anyway The Texas Wishing Well was outside WalMart taking donations to send a family to San Antonio on a Wish Trip. We pulled out some money and as usual I was asked if I had filled out an app for B. I replied with the usual No thank you and a lady recognized me. She said didn't we get you to fill one out? I said yes 2 yrs ago. she said "Did you ever hear anything?" "no I replied. Well here fill out another one. I took the flyer, smiled and walked into Wal-Mart. This has been going on since I did fill out the first app after a call from some one who had met the founder of the org. I met him, filled it out and never heard anything. I never would fill out another one. When leaving Wal-Mart the lady said there they are and She brought over Mr. Frank one of the founders. He told me you know this is not for you it's for your son. Promptly chastised I filled out another app. He apologized and said he remembered meeting us but did not know what had happened to our app.
The next day I got a call asking if I could email some pics. 2 days later I got a call saying B had been approved and because they had lost our app 2 years earlier they were putting him on the top of the list. They had just finished fund raising for the little girl we donated to that night. We were very excited! We ha never been on a family vac. since B was born and this was a dream come true!

Well before I go any further I need to give a cast of characters
ME: 33 Leah A bit scatterbrained
DH: 32(in a week) Shannon We call him Grumpy, but just like the Dwarve we love him anyway!
DS7: Tyler and he'll be 8 next week!! Very hyper, but sweet and my bIG helper, loves all things military and all things piraty
DS5: Braeton our WISH child! He has a BIG heart. He's very brave and strong. He loves all things DISNEY!!! He also loves pirates and all things military!
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"Those that mind don't matter. Those that matter don't mind." Dr.SEUSS

I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. PSALM 121:1-2

Please Don't Take Your Organs to Heaven.
Heaven Knows We Need Them Here!

Last edited by LeeLee2U; 08-12-2008 at 09:28 AM.
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Old 10-07-2007, 09:13 PM   #2
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Yeah, I love WISH trip reports!! I am on board for the ride
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Our prefect little family: DH (33) Me (32) DS Emory (2) Soon to be DD (Nora) in January

Mommy and Daddy only trip March 13-18
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Old 10-07-2007, 09:19 PM   #3
disneyfanforlife
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You got another one on board too. I love hearing about the trips.
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89-1st Trip, 90-2nd Trip, 94-3rd Trip, 97-4th Trip, 99-5th Trip, 01-6th Trip, 03-7th Trip, 06-8th Trip, 07-20?? Planing my next trip. 07-12-Planing the wedding and Disneymoon at Walt Disney World
my honeymoon pre-tripping
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Old 10-07-2007, 09:31 PM   #4
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WOW cannot wait to read more...sounds great...we are staying at BCV in November.

My DD was a preemie too...born almost 2 1/2 months early.
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Offsite (3 times), CBR Dec 2004, POR May 2005, AKL Nov 2005, CSR May 2006,POFQ June 2006,POFQ Nov 2006, BWV July/Aug 2007, BCV Nov 2007, POFQ Jan 2008, June 2008 SSR, AKV Aug 2008, SSR Oct 2008, SSR 2009
Aug 2010 BCV/BWV, Dec 2010 BCV/POFQ SEPT 2011 POFQ

Upcoming:
Hoping either BCV or BWV March 2011
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Old 10-07-2007, 09:40 PM   #5
rentayenta

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Finally, I am in at the beginning!
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You light 'em, they fight 'em. A DVC/Disneyland Resort PTR
http://disboards.com/showthread.php?...1#post51407145
You bet your aft we had a good time: a Disney Wonder trip report
http://disboards.com/showthread.php?t=3260751




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Old 10-07-2007, 09:49 PM   #6
KimAshton
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I am already getting teary eyed.
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Old 10-08-2007, 12:10 AM   #7
Momof2wCF
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Yay! You've started your TR!! I'm really looking forward to reading your experiences at GKTW Was it wonderful? Tell us, tell us!
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Kirsten

DH- 43, DL 2x
me- 38 DL 8x
DS- 17 DL 4x
DD- 8 DL 4x (Wish kid)
First Trip to WDW October 21-28 2007!!!

Link to my TR:
http://www.disboards.com/showthread....2#post21543422
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Old 10-08-2007, 08:26 AM   #8
LeeLee2U
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WOW!!! I'm in shock! I already have some posters!! And some of you I already "know" from other threads!!! To the rest of you "Glad to meet you!" to all of you! Glad to have you along!!!!!!!!
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"Those that mind don't matter. Those that matter don't mind." Dr.SEUSS

I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. PSALM 121:1-2

Please Don't Take Your Organs to Heaven.
Heaven Knows We Need Them Here!
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Old 10-08-2007, 08:38 AM   #9
praisehisname
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Leah, I'm in! I'm so glad you decided to do a report!!!

Denise
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07/87 DLR***05/98 All-Star Music***01/04 Polynesian/4-night Wonder***02/05 7-night Magic Eastern***
09/07 Beach Club***10/08 7-night Magic Special Western (double-dipping at Castaway Cay!!!)
***12/09 Pop Century***08/13 7 night Fantasy Western

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Old 10-08-2007, 09:01 AM   #10
LeeLee2U
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A little more background info and some other stuff...

O.k. First it's important for me tell ya'll now that at first this TR will probably, O.k. O.k. it WILL be sporadic. Braeton is recovering from surgery so we are just kind of going with the flow. The other thing I wanted to mention is there will be LOTS of pics. I am at my Moms and photobucket is blocked by her filter. So I will add pics I promise! Of course i've got to add all the WDW pics into photobucket and we have got a lot!!!
I almost feel like I should post a warning here. Hey it's my TR why not???

Warning: This TR will have lots of pictures with the people involved. While there may be a few of the scenery and some shows the majority of these pics will have people in them.

I was on another wonderfull TR when I first started researching adn there were lots and lots of pics of the couple that the TR was about. I personally thought it was great. But @ the end someone got on and made a comment about how they wished there more of the World and less of them. Well the ones of them were them in the world (trying saying that 10 times real fast!) and that's how a lot of mine are so I thought I'd warn you now. I do have the obligatory room, resort and show pics! So those looking for pictures of Beach Club, just hang in here with me!!!

O.k that was the "other stuff" now for some more background info.
I wanted to add that when Tyler was 17 months old My husband had kidney failure. He was diagnosed with LUPUS at the age of 14 and that was the cause of the renal failure. He knew at 14 that he was already in the progress of renal failure in fact it was at 89%, but he had a wonderfull Dr that fought for him and kept him off of Dialysis at that time, his Kidneys started functioning at 70% and didn't go into complete failure untill he was 25. So between him with kidney failure and then Braeton well needless to say we stay a little busy @ here! Plus I haven't been the exact picture of health, but hey I'm a Mom so I just Deal with it!!
Shannon has been declining health wise the last year. We are praying and waiting on a kidney transplant or a miracle. DH has been called over 10x for a possible kidney transplant, but so far his Lupus has caused his own blood to fight sooooowe are just waiting. 2 of the 10 kidneys were matches, 1 had too much damage and the other one already had an infection in it. So we know there is a match out there somewhere. We just don't know when!! So untill that happens we just cling to our faith in God and take one day at a time. It's made me appreciate each day more. And sometimes gives me the excuse to be a little CRAZY in a fun way of course!!1 Not that I need an excuse. I'm sure I'm pretty certifiable already!!!
This trip was like a double WISH trip. My husband would have recieved one when he was a teenager, but he was too sick to go any where. And then with his health right now well it just made this trip extra special that we got to take it when we did!
O.k. so now ya'll know us alittle better we can get into the good stuff!!!!!
I've got to go now Braetons bandages are causing trouble!!! See Ya!!
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"Those that mind don't matter. Those that matter don't mind." Dr.SEUSS

I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. PSALM 121:1-2

Please Don't Take Your Organs to Heaven.
Heaven Knows We Need Them Here!
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Old 10-08-2007, 01:42 PM   #11
Momof2wCF
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Quote:
Warning: This TR will have lots of pictures with the people involved. While there may be a few of the scenery and some shows the majority of these pics will have people in them.
Warning? Plahff! That's what I signed on for is pix of the wish family!!
More please!! (well, as you can )
Tell Braeton we're looking forward to hearing that he's all better soon!!
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Kirsten

DH- 43, DL 2x
me- 38 DL 8x
DS- 17 DL 4x
DD- 8 DL 4x (Wish kid)
First Trip to WDW October 21-28 2007!!!

Link to my TR:
http://www.disboards.com/showthread....2#post21543422
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Old 10-08-2007, 02:27 PM   #12
DisneyJo
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I'm so pleased you were forced to fill in that form if any family deserves a WISH trip it's yours, oh and bring on all those family photos
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Old 10-08-2007, 11:26 PM   #13
LeeLee2U
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A Quick Update

[FONT="Comic Sans MS"]We ended up bringing Braeton to Houston to see his surgeon. He took one look at his bandages grabbed the scissors and cut it off! Soooo we got to see his ears! Now as with any plastic surgery they are swollen and bruised BUT they go back AND his right ear not only has a fold to go back but it has a bend and the top of his ear now curves!!! He says they already feel better. So in a few months Braeton will be able to wear a hat and glasses! And the best part is now his poor ears won't fold up and bend when he lays on them! That means no more waking up crying with hurting ears. I'm so glad they were able to do this while he was young. But trying to keep him still is proving to be an experience
I will try to respond to comments and questions throughout this report. I really really am glad you all are here! Just give me a few days and I hope to have it all together! Well I know that's next to impossible for me, so I guess I should be truthfull! Give me a chance to sleep and while Braeton is zombied on pain meds I'll work on this TR

/FONT]
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Wish Trippers Unite home Page
"Those that mind don't matter. Those that matter don't mind." Dr.SEUSS

I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. PSALM 121:1-2

Please Don't Take Your Organs to Heaven.
Heaven Knows We Need Them Here!
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Old 10-08-2007, 11:30 PM   #14
Momof2wCF
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Quote:
Give me a chance to sleep and while Braeton is zombied on pain meds I'll work on this TR
We'll be here!!
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Kirsten

DH- 43, DL 2x
me- 38 DL 8x
DS- 17 DL 4x
DD- 8 DL 4x (Wish kid)
First Trip to WDW October 21-28 2007!!!

Link to my TR:
http://www.disboards.com/showthread....2#post21543422
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Old 10-08-2007, 11:36 PM   #15
LeeLee2U
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Quote:
Originally Posted by Momof2wCF View Post
Warning? Plahff! That's what I signed on for is pix of the wish family!!
More please!! (well, as you can )
Tell Braeton we're looking forward to hearing that he's all better soon!!
\
Thank you You will get lots of pix I promise!!!

Quote:
Originally Posted by DisneyJo View Post
I'm so pleased you were forced to fill in that form if any family deserves a WISH trip it's yours, oh and bring on all those family photos
I don't know if I deserved it, I know my kiddos did! But I'm so glad I got to go too. They couldn't leave the caretaker behind!!!
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OFFICIAL DISLAND DIRECTOR OF INSPIRATION


Wish Trippers Unite home Page
"Those that mind don't matter. Those that matter don't mind." Dr.SEUSS

I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. PSALM 121:1-2

Please Don't Take Your Organs to Heaven.
Heaven Knows We Need Them Here!
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