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Old 06-22-2007, 12:35 AM   #1
SueM in MN
It's like combining the teacups with a roller coaster

 
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Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,134
DISboards Moderator

An open letter from SueM

I spent the whole day today doing disaster preparedness training with people from other hospitals; planning what we would do and how we would handle it if a disaster struck.
We spent the afternoon doing a 'tabletop' exercise to apply what we had covered earlier in the day. Our 'disaster' was a blizzard and ice storm (yes, in the middle of June) and our scenario had us losing all power in the hospital from our regular and back up generator, with no idea how long it would be out. In our 'pretend hospital' for the scenario, we would have 30 patients with ventilators breathing for them when the power went out. As we worked out everything - trying to think how long a ventilator battery could possibly last and how long the staff could last if they had to manually pump the patient's lungs, I had the sobering thought that I work in a hospital where we actually do have 25-30 patients on ventilators on an average day. And that if we did have a long power outage, a great number of our patients would probably die as a result. And, we could probably do very little to prevent it.

A few weeks ago, we had another disaster training exercise - that one was bioterrorism with Plague - aren't we a cheery bunch!

On my way home today, I heard the news stories:
12 more US troops killed in Iraq
Missing pregnant woman still not found
and close to home,
a 5 yr old girl with autism found dead in a pond just across the street from her home after she wandered away.
I thought of what it must be like to live in a situation where your 5 year old has no sense of danger and you have to be always vigilent to the possibility of her getting out. And what those parents must be going thru tonight and how they are going to live in that house (even stay there tonight) knowing that the pond that their DD drowned in is just 300 yards from their front door.

Those are the types of thoughts that I came to the DIS Boards to escape from.
The DIS Boards were my "happy place" where I could come to share a special place and ways to enjoy that special place with others who maybe thought the 'magic' was out of their reach.
But the DIS Boards have not been so happy. This has not just been one thread, it has been several over the past few months.
When I've come here lately, I've found things like:
  • "they lied to me"
  • "people know things and won't tell me"
  • "people on the board are treating xxxxxxxx disability better than yyyyyyy."
  • "some people are prejudiced"
  • "no one will list exactly what the GAC does"
    (If you don't know what GAC stands for, post 6 of the disABILITIES FAQs thread talks about it).
  • "No one will let me post exactly how things work"
  • "people only care about people with permanent disabilities."
  • "people are PMing me with information that is different than what most people are posting"
  • etc. etc. etc
This sounds so much like the bickering that my brothers and sisters did while we were growing up that it's not funny. It makes the board an un-pleasant place to come and because of the general arguementative attitude of some posters, many posts are being taken in a negative way when there was NOTHING negative about them.
Negativity creates more negativity.

So, some reminders:
  • If you come here with a chip on your shoulder looking for the negative in people, you will probably find it and YOU will be contributing to the negative views of others.
    If you assume that other people are honestly trying to help (and most are), you will find help.
  • When reading replies, keep in mind that seeing things in writing only gives part of the message the person was trying to convey. Something that sounds 'snarky' or rude when you read it, might sound very different in person, when you also have other clues to the meaning, like tone of voice and facial expression.
  • Remember that other people reading your message might not understand it the way that you meant it (see # 2).
  • If you post "I plan to go to WDW in August and I have xxxxxxxx. What kind of GAC should I ask for?", no one is going to tell you what kind of GAC to ask for. They will tell you to go to Guest Relations and explain your needs.
    One reason for that answer, is that we don't know what Disney will offer. As one poster wrote (edited a little):
    Quote:
    "I have no clue what Disney will offer her based on HER condition, even if something was offered for someone with xxxxx, which may be similar to what you feel she needs, Disney may give you another, maybe better option for HER. They may suggest things like she use a Wheelchair, they may suggest a waiting area while one waits on line, they may say 'try it and see how you do first', they may offer something we are not aware of that is more geared to her needs.. "
    If you go in and are able to explain what your issues are, you will be able to get assistance. If you feel you are not getting what you need, ask to speak to a supervisor.
  • If you post "I plan to go to WDW in August and I have xxxxxxxx. What should I do", you will get advice from
    -people who have been to WDW with xxxxxxxx and would not go again as long as they have xxxxxxxx
    -people who have not been to WDW with xxxxxxx, but have been in August and would not go again
    -people who have never been to WDW, but had xxxxxxx, and can't imagine going
    -people who have suggestions for dealing with xxxxxxx
    -people who have suggestions for dealing with xxxxxxx at WDW

    They are giving their opinions. If you don't like them, you don't have to follow them. Some of the people responding may know a great deal about xxxxx, but don't know anything about WDW. So if they don't tell about WDW, they are not trying to keep information away or prevent you from going - they just don't know anything.

    But, most are trying to help, not upset. So, take what is helpful to you and assume the other information was given with good intentions, even if you don't feel it was helpful or was what you wanted to hear.
  • Whatever board you go on, different people will have different experiences. That doesn't mean any of them are not telling the truth.
    You will find threads on the Theme Parks Board where someone says they used Fastpasses after the 'window' time and someone else says they were told they could not do that.
    Or opposite experieces about height restrictions, tickets or being asked to show room keys for Extra Magic Hours.
    On the Resort Board, someone will post that the CM told them the limit was 4 people in one room and someone else posts a CM told them 5.
    None of that means that anyone was lying - just that they had different experiences.
  • And one to add this morning; if you have been given information or a link that seems overwhelming or that you don't understand, it's your responsibility to let people on the thread know that. It was probably very clear to the person who wrote it but, but if you don't say anything, they won't know that, and no one can help you to clarify things.
As Cheshire Figment noted on another thread, all the Moderators on all the Boards are volunteers. We put hours into moderating the boards with no pay and sometimes a lot of grief.
We generally do it because we felt like we had something to offer and enjoyed doing it.
Even though it might seem like we are always on the boards, we do have lives outside of the DIS Boards. When people are doing things that cause the boards to take more of our time, it is taken from other parts of our lives.

And, since it's 12:50am (at least on my computer) now, I'm tired and I'm not sure I'm even making sense anymore, I'll end with
this last, final advice for all posters from Thumper's mom,
"If you don't have nothing nice to say, don't say nothing at all."
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr

Last edited by SueM in MN; 04-24-2013 at 06:06 AM. Reason: Removed broken links
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