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Old 11-17-2006, 05:09 AM   #16
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Glad to read the update Marsha, its so important to have a team of optimistic and hopeful medical people.

As for why people give you their worst case scenario, I couldn't tell you. I'm an optimistic person by nature - my glass is half full. I believe in my heart that Tommy can beat this, and I am going to keep believing that. And as your friend, I am going to keep telling you that as often and as much as possible. There is NO reason why he can't be the exception.

my friend. Big one for Tom too.
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Old 11-17-2006, 05:44 PM   #17
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Hugs all around tonight everyone!

I have found that most people like to share their stories and experiences in hopes that we find them comforting. Some just do it more (ahem) tactfully than others.

One thing I have picked up in my conversations with others is how a healthy, positive attitude can really make a difference in either their or their loved ones recovery and battle.
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Old 11-17-2006, 07:35 PM   #18
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Even worse than the people who say negative things, are the people who avoid you during critical illnesses and such. I understand some people suffer denial and feel their own mortality when confronted with issues of sickness and death, but it is so disheartening to feel that people either avoid you or just totally disappear.

I am here for you Marsha, and you know I already consider Tommy a miracle! He is a fighter and is putting out all efforts to beat this disease. Hugs and keep the faith....
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Old 11-17-2006, 09:16 PM   #19
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Quote:
Originally Posted by CarolAnnC
Even worse than the people who say negative things, are the people who avoid you during critical illnesses and such. I understand some people suffer denial and feel their own mortality when confronted with issues of sickness and death, but it is so disheartening to feel that people either avoid you or just totally disappear.

....
Word

People never talk about *my illness* That's what my mother calls it..She doesn't say the word..Every. I don't think I've ever heard her say it in 15 years. They probably figure it would upset me.
Ormaybe they think if they don't talk about it it's not real.
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Old 11-17-2006, 09:48 PM   #20
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Sometimes people just don't have the right words to say and I think they just want to say something , anything to somehow relate to you and show they care. It just doesn't always come out right.

Prayers for you and your family. The road is tough sometimes, but we can all stick together.
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Old 11-17-2006, 10:43 PM   #21
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Quote:
Originally Posted by CarolAnnC
Even worse than the people who say negative things, are the people who avoid you during critical illnesses and such. I understand some people suffer denial and feel their own mortality when confronted with issues of sickness and death, but it is so disheartening to feel that people either avoid you or just totally disappear.
This is SO true! When my mom passed last year I lost touch with so many family members and friends. They sent condolence cards and then dropped off the face of the earth. Most didn't even come to the memorial mass. Mom's best friend still keeps in touch with me, but now that daddy has terminal cancer, it's like everyone in the family thinks we have the plague or something and just avoids us. It's disheartening but makes me cling to DH, daddy, my brother, sister, and her kids all the more. Good luck to you and yours
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Old 11-18-2006, 02:43 PM   #22
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Marsha how's your Dh today? Did your insurance cover the meds?
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Old 11-18-2006, 05:09 PM   #23
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Both Jen's...here's a big hug!!!!!!.....I know how hard it is when people just back away from you. My daughters and I, I have 3 daughters, have decided it is us....the 5 of us, and whoever happens along and gives us support, we will take that as a blessing.... As far as family is concerned, I am sad to say...although DH has brothers, I have a brother, cousins, nephews, nieces, it is us 5 that will weather the storm together. This is the weird part, it is strangers, that become friends, neighbors, these are the people that reach out when the family backs away....and Disers, I cannot tell you how kind my Dis friends and acquaintainces have been to me....

Two posted here today, hugs Carol and Judy....they are there for me when I need a shoulder...

Shugar...they did cover the Tarceva.....but they made us pay a $40 co pay for the 30 pills....according to the pharmacy the prescription costs $3300 for 30 pills. Horrifying. Now the bills are flying in here from the insurance company and from the hospital and I put them in a pile and let them battle it out until I know what the final figure is...

*Sigh* He is tired but in good spirits...PMA.. I keep telling him PMA...I have PMA too...

Hugs to all of us.
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Old 11-25-2006, 06:36 PM   #24
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Prayers ...

And *HUGS* for you. Stay positive and just keep positive people in your life, no one negative that will bring you down. We are all here to listen.
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