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Old 12-12-2010, 09:58 AM   #1
tinytreasures
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Going back to the other "World" GKTW 3 Big Gives 5/14

Our daughter Avy is being granted her wish!!!! She wants to ride the tea cups with the Princesses

Our Family has been BLESSED with another Make a Wish trip.
A little about our family
I am Kathleen. I'm the lucky mom of 50 children so far that have walked through our doors as foster children. I spend my days hopping from dr appointment, to therapist appointment, to dr appointment. I took up Knitting so I had something to do at the clinics
DH is Loren. He is the greatest man in the world. He doesn't flinch a eye when he walks in the door and there are 5 more kids here then, when he left for work He works full time and can change a cloth diaper faster then I can.
Jason will be 13 in a 10 day he was our first wish child. His wish was to go to Disney World. He has Autism (new dx since his wish trip) Primary immune deficiency, a heart condition, lung condition, and Holt Oram syndrome.
Avy "new wish child" She will be 11 in Jan.
Christian is 9. He has FAS and ADHD
Hayden is 6. He has arthritis.
Ella is 4. She is Hearing impaired.
C (Baby Bear) is 5 months and the sweetest foster baby in the whole world.

Avy loves purple
Avy was born 18 weeks early at 22 weeks. She is our miracle baby. I will not go into her birth story because I was not there during that time in her life. I will never forget the day she was born and I prayed everyday for the Preemie in the hospital. Never thinking she would one day become my daughter.
Avy came to us Halloween Weekend. She was a sad little thing and we had to rush her to childrens hospital a hour away, because she didn't have any feeding tube supplies and our local dr said there was no way she was treating her. Funny how fast Childrens ER took us back. She weighted in at 9lbs 9oz fully clothed at nine months old. I had never done a feeding tube so the Er Dr was going to put her in the hospital she looked just awful, her feeding tube was all infected and stunk so bad. The head dr came in and took one look at Jason who was 22 months old and had a IV bag in a little back pack, getting IV Abx and said teach her to feed her and send her home, if she can handle a PICC line on a toddler she can do a feeding tube
We are so lucky we went up there that day they had all her discharge paperwork so we where able to find all the things wrong with her and a list of her doctors. We got home with her about midnight and Jason had therapy the next morning at 8 am. The Therapist took one look at her and started therapy on her instead.
Avy has CP and wears a AFO on one leg and a UBC on the other foot.
She is blind in her right eye and has to wears a fake eye on that side. We found out this week that she is going blind in her good eye. It is already legally blind but it is getting worse and she may loss all vision. The dr didn't tell us how long she has but he did say he is so glad he signed her MAW papers for her to go.
She was on a feeding tube till she was 5. They did a huge surgery on her, by filling the back of her throat with cement (the kind they put in peoples backs) and it worked so she was able to have liquids for her 6th birthday. She loved her ice cream, she had never had before.
She is very speech delayed. There is a misfire between her brain finding the word and getting it to her mouth. If we get I want Cereal or I have to go to the bathroom out of her mouth that is a good speech day. She has started writing notes to her teacher to ask for things which is a huge step.
She had the worse grade brain bleed at birth you can have, they said her brain acts like she had a major stroke now.
Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me
We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like

Last edited by tinytreasures; 05-14-2011 at 10:19 AM.
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Old 12-13-2010, 12:43 PM   #2
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Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me
We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like
YEAH!!! You started!!

You are an amazing woman! Thank you for taking in these kids that would not have a home without you.

And that comment above makes me want to be sick. Even at 15 - she would still be your child and it would not matter if you were still changing her diapers in a wheelchair. Trust me.
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Old 12-13-2010, 12:47 PM   #3
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Dates....

Star Wars Weekends would definitely be warm enough to swim.
May 20th is the first SWW - which will probably be busy with the "real" fanatics out there...but maybe if you picked May 21st to fly out and you could do May 22 at DHS and it would not be so crazy crowded??

That second weekend is also Memorial Day weekend...so I would think that weekend would be busy too...

And the later weekends fall into hotter summer times...

So I am guessing...if you want to hit SWW, then May 20th time frame would be best...

Make sure you don't leave on a Friday if you want to make sure and catch the GKTW Christmas Party.

Mid May is definitely a slower time at Disney to go...sounds awesome!
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Old 12-13-2010, 12:56 PM   #4
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Hi there and welcome back. I agree with Mary...you are one special mommy. This is our second MAW trip too. You don't come along seeing other family that is going on a second wish trip much...which is great. I hope you get dates soon. Can't wait to hear more about your special family.
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Old 12-13-2010, 02:28 PM   #5
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Hi!!! Your kids sound AWESOME!!! AS are you and your DH!!!

Last year we were on a MAW trip with my nephew in April and honestly it was HOT already. Im a little worried that if she is sensitive, she will get really worn out. Daniel (my nephew) was a month post his last chemo and it wiped him out so badly (even though we use a wheelchair) that he became exhausted and felt very ill by Thursday, spending the rest of his trip in the cottage - which was such a bummer that he missed so much of what he was looking forward to.

Does your daughter use a wheelchair? That might help protect her a bit from the people around her????

Cant wait to see your family pictures!!

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Old 12-13-2010, 06:10 PM   #6
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She does use a wheelchair
Dates are going to be hard because Easter is so late this yr. I am worried about the heat. When it is hot here we dump a lot of water on her. On Jason's trip the pool was closed at GKTW so I really want the kids to be able to play in the pool.
here is her wish

Avy at birth, she was 1lb 3oz, 6 and 3/4 inches long

here is a family photo
I am not allowed to show my foster childrens faces
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Old 02-11-2011, 04:38 PM   #7
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O.k. so I only read your first post because I have to go cook. *must get off Disboards....must get off Disboards....must get off Disboards*

But anyways, I want to keep up with Avy's MAW trip!!! How awesome you are to adopt special needs children!!
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Old 02-11-2011, 05:33 PM   #8
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O.k. so I only read your first post because I have to go cook. *must get off Disboards....must get off Disboards....must get off Disboards*

But anyways, I want to keep up with Avy's MAW trip!!! How awesome you are to adopt special needs children!!
Jason wants cereal
Avy wants a sandwich
Christian wants cereal
Hayden wants pizza or deer meat sandwiches
Ella wants a p/b&j and cheese stick.
I want it to be bedtime
Dh is asleep on the couch so i have no idea
Just in case your taking orders
Glad you had a chance to stop by and read about our little family
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Old 02-11-2011, 05:58 PM   #9
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Hi there!

I've found another inspiring family! So happy that Avy is getting her wish granted! Not to rehash the past, but for Baby Bear. I work with a teacher who was a foster parent to 2 brothers for over a year. They finally became a forever family last November, but every week I saw her, there was a new update on the boys. Sometimes good and sometimes not so good. I'm amazed by you and all the other foster parents out there - I honestly do not know if I would be strong enough to do it.

Looking forward to hearing the rest of the details of your trip!
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Old 02-13-2011, 05:15 PM   #10
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Hi there!

I've found another inspiring family! So happy that Avy is getting her wish granted! Not to rehash the past, but for Baby Bear. I work with a teacher who was a foster parent to 2 brothers for over a year. They finally became a forever family last November, but every week I saw her, there was a new update on the boys. Sometimes good and sometimes not so good. I'm amazed by you and all the other foster parents out there - I honestly do not know if I would be strong enough to do it.

Looking forward to hearing the rest of the details of your trip!
Thanks for stopping by
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Old 02-13-2011, 05:17 PM   #11
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The has started here
Hayden told me there was someone at the door so I opened it and found a balloon and stuff in the door from Avy's Wish Granters. How sweet is that



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Old 02-13-2011, 09:36 PM   #12
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Quote:
Originally Posted by tinytreasures View Post
Jason wants cereal
Avy wants a sandwich
Christian wants cereal
Hayden wants pizza or deer meat sandwiches
Ella wants a p/b&j and cheese stick.
I want it to be bedtime
Dh is asleep on the couch so i have no idea
Just in case your taking orders
Glad you had a chance to stop by and read about our little family
Awww I"m sorry I just saw your orders now!!! Dinner that evening wasn't great and I think my time was better spent here on the boards!!!

I hope you hear something this week!
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Old 02-14-2011, 10:44 AM   #13
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Awww I"m sorry I just saw your orders now!!! Dinner that evening wasn't great and I think my time was better spent here on the boards!!!

I hope you hear something this week!
My kids got what they ordered and then I sent dh out to get us something after they went to bed
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Old 03-20-2011, 07:25 PM   #14
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I have to play catch up here but I read your first post and had to sub. You and your husband seem like you have such huge hearts and it takes special people to take such needy children in but what an amazing blessing these babies all sound like they are. ((hugs)) to you and your family.
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Old 03-20-2011, 08:18 PM   #15
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Avy looks SO happy, what an exciting time for your family!!!
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