Multiple Myeloma, updated 1/26/11 - The DIS Discussion Forums

Mackey Mouse · 11-10-2009, 03:59 AM

They say that God cannot give you more than you can handle.....I really wonder about that statement and am having real questions lately..

I try to be upbeat for all of you, you all know I lost my beloved Tom on October 1....truly one of the great husbands and friends and people are grieving that loss and will for some time..

But it seems his wife.. me has to put her grieving on hold and get into the battle herself with this blood cancer called multiple myeloma....not even sure I am typing it right... the pain is bad in my arm as the liquid tumor is on my neck and so yesterday I walked the halls of Mass General where my loved one walked and had my first treatment of Radiation.....the same radiologist who he adored....and now I am in the battle myself...

There is no cure, it is chronic, there will be tests and more tests,chemo, bone marrow biopsy one is done., now that was not fun... but I ask you this.....keep my family who is in a mess in your good thoughts....they lost their Dad, they are worried about their Mom and I am taking it the best I can.. At times my typing with be erratic as the nerves in my right arm are affected by this tumor... '

Remember this.. all of you here.. life is precious, take your time, smell the roses, do good and love each other... you just never know where life will take you.. I will be in and out but will check in... please stay safe and healthy...

Best,
Marsha

antmaril · 11-10-2009, 06:05 AM

Oh Marsha, I'm so sorry to hear this news. Please know that you are in my thoughts and prayers every day

JandJ · 11-10-2009, 08:03 AM

I am so sorry to read this news. You are in my thoughts

My father was diagnosed with Multiple Myeloma in 2004. It started with back pain that never got better. His doctor did a lot of blood work, which the biggest indicator was apparently his calcium level. There was a new type of chemo released to MM patients in 2005 and that made him feel really good for a few years. The radiation helped with the pain. I trust you have the best doctors. Learn all you can. There is a MM foundation that is VERY encouraging and very informative: http://www.multiplemyeloma.org/
Take good care of yourself

minniebeth · 11-10-2009, 08:27 AM

Marsha,

I have followed your posts here and you and your family have been in my prayers. I don't know how it started really, but one day I was reading a lot of the posts here and my DD12 asked me what I was doing. I told her I was reading the DisBoards and she asked if I was reading about WDW (again

) I told her about this board where people share about some of their life experiences and that I pray for them every night. I have a whole list of people who I keep in my thoughts and prayers. The one thing I've come to realize in life is that even though we all have our sorrows to bear, everyone else does too. It gives me peace in my own life to recognize that and to pray for others, even if we don't know them IRL. She asked me to share the posts with her. She has started to pray for a lot of people on here too. She attends a Catholic school and they have prayer intentions each day before lunch. She has prayed for many here at school, where the rest of the class does then too. She is our little spiritual leader at home as well, a true angel.
You have been one of those she prayed at home and school for. Please know that when you share this, the prayers multiply in ways not even known.

We hear over and over that God does not give us more than we can bear, and more and more, even through my faith, I feel so heavy about understanding this. Life just seems so unfair at times. I am so sorry to hear about the Multiple Myeloma. I hope your pain can be managed and that you get the best care possible. You fought so hard with Tom, now it's time to fight on behalf of yourself. You are a true warrior. I will be praying for strength for you. You and your family will be in my thoughts and prayers each day.
Your words of wisdom are beautiful and touching and help to put the meaning of life in perspective. Thank you.
Take Care of yourself!

DebbieinWA · 11-10-2009, 08:39 AM

I am so sorry! You will definitely be in my thoughts and prayers, as will your girls.

Christine · 11-10-2009, 08:49 AM

Marsha,

I'm so sorry to hear this. I hate to say but sometimes God does give you more than you can handle! Hang in there and know that we are all thinking of you. And please take REALLY good care of yourself, especially this time of year when there is so much going around. I know you already know this but make yourself the #1 person in your life now.

denegate · 11-10-2009, 08:36 AM

I followed your journey with your husband. I was inspired by your courage and strength. I was impressed by your ability to put others at ease. I am sad to read that you will now be fighting your own battle. I believe you have the ability to be as positive for yourself as you have been for so many others on this board fighting their own health battles. Stay strong - I will keep you and your family in my prayers. Take Care.

Kathy C · 11-13-2009, 01:45 PM

Marsha,

I'm at a loss for words. Although I don't post often, I followed your journey with Tom, and am so sorry you have to fight the battle yourself. Will keep you and your family in my thoughts and prayers. Please, when you're feeling up to it, keep us posted.

Kathy

goofy4tink · 11-13-2009, 02:30 PM

You know that you and the girls, and their families, are in my thoughts and prayers. I'm sure you're having a wee bit of trouble praying at the moment...I know I would if I was in your situation...so we'll take care of that for you. This is just crappy. You have to wonder who's in charge up there!

NHAnn · 11-25-2009, 04:08 PM

Oh Marsha.

How rough for you (and your girls/family) to have to deal with this on the heels of Tommy's death.

I am grateful you have access to excellent care.

I am sending you all my positive thoughts and prayers...it seems so inadequate

Judi asked that you know she is thinking of you too.

Towncrier · 11-13-2009, 03:37 PM

Marsha - I am so sorry to hear this news and will continue praying for you as you battle the beast.

Tinks1984 · 11-14-2009, 05:57 PM

Oh Marsha

I don't pop over here too often, but I had read about your post with regards to Tom and his amazing fight and now this, such a terrible thing I read. You don't deserve any of this.

I wish you all the luck in the world with your fight and will keep you in my thoughts.

luvmarypoppins · 11-14-2009, 06:42 PM

Marsha, just wanted to let you know thoughts and prayers are with you. Hang in there!! Blessings to you always.

diz8297 · 11-14-2009, 07:05 PM

Just saw this. I am over here sporadically-followed your journey w/Tom. There are no words. Will just keep you and your family in my prayers.

MickeySP · 11-25-2009, 10:51 AM

You & your family will be in mythoughts & prayers Marsha.

11-10-2009, 08:03 AM	#3
JandJ If I close my mind in fear . . . Please pry it open I had a very productive day ... yesterday Join Date: Nov 2005 Location: FL Posts: 2,786	I am so sorry to read this news. You are in my thoughts My father was diagnosed with Multiple Myeloma in 2004. It started with back pain that never got better. His doctor did a lot of blood work, which the biggest indicator was apparently his calcium level. There was a new type of chemo released to MM patients in 2005 and that made him feel really good for a few years. The radiation helped with the pain. I trust you have the best doctors. Learn all you can. There is a MM foundation that is VERY encouraging and very informative: http://www.multiplemyeloma.org/ Take good care of yourself __________________ Married at Disney's Wilderness Lodge Resort / Sunrise Terrace / October 2005 All that I am or ever hope to be I owe to my angel Mother (1940 - 2005) Daddy's little girl (1933 - 2008) Egypt, Mexico, Belize, Honduras, 6 Caribbean islands, England, France, Italy, Holland, Belgium, 12 states, DC - check! Where to next??

11-10-2009, 08:27 AM	#4
minniebeth I count on y'all to keep me up to date ;) I'm ok going up, just can't go down... Join Date: Feb 2006 Location: columbus, ohio Posts: 7,502	Marsha, I have followed your posts here and you and your family have been in my prayers. I don't know how it started really, but one day I was reading a lot of the posts here and my DD12 asked me what I was doing. I told her I was reading the DisBoards and she asked if I was reading about WDW (again ) I told her about this board where people share about some of their life experiences and that I pray for them every night. I have a whole list of people who I keep in my thoughts and prayers. The one thing I've come to realize in life is that even though we all have our sorrows to bear, everyone else does too. It gives me peace in my own life to recognize that and to pray for others, even if we don't know them IRL. She asked me to share the posts with her. She has started to pray for a lot of people on here too. She attends a Catholic school and they have prayer intentions each day before lunch. She has prayed for many here at school, where the rest of the class does then too. She is our little spiritual leader at home as well, a true angel. You have been one of those she prayed at home and school for. Please know that when you share this, the prayers multiply in ways not even known. We hear over and over that God does not give us more than we can bear, and more and more, even through my faith, I feel so heavy about understanding this. Life just seems so unfair at times. I am so sorry to hear about the Multiple Myeloma. I hope your pain can be managed and that you get the best care possible. You fought so hard with Tom, now it's time to fight on behalf of yourself. You are a true warrior. I will be praying for strength for you. You and your family will be in my thoughts and prayers each day. Your words of wisdom are beautiful and touching and help to put the meaning of life in perspective. Thank you. Take Care of yourself! __________________ minniebeth

11-10-2009, 08:49 AM	#6
Christine Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING! Considers the DIS as Bladder Training 101 Join Date: Aug 1999 Location: Northern Virginia Posts: 22,621	Marsha, I'm so sorry to hear this. I hate to say but sometimes God does give you more than you can handle! Hang in there and know that we are all thinking of you. And please take REALLY good care of yourself, especially this time of year when there is so much going around. I know you already know this but make yourself the #1 person in your life now. __________________ Christine Vacation Home - Indian Creek - July 2012 Vacation Home - Terre Verde Resort - July 2009 Vacation Home - Terre Verde Resort - Easter 2007 Shades of Green - June 2005 Vistana Resort - May 01 Shades of Green - May 99 Shades of Green - Apr 97 CBR & Shades of Green - May 95

11-13-2009, 02:30 PM	#9
goofy4tink Likes little devils I know I'm getting old...I get it, I really do Prisoner of Toy Story Mania Join Date: May 2002 Location: Central Ma Posts: 44,699	You know that you and the girls, and their families, are in my thoughts and prayers. I'm sure you're having a wee bit of trouble praying at the moment...I know I would if I was in your situation...so we'll take care of that for you. This is just crappy. You have to wonder who's in charge up there! __________________

11-25-2009, 04:08 PM	#10
NHAnn Survivor GAGWTA! Don't sneak off to the lemonade stand without me! Join Date: Oct 2000 Location: New Hampshire Posts: 9,295	Oh Marsha. How rough for you (and your girls/family) to have to deal with this on the heels of Tommy's death. I am grateful you have access to excellent care. I am sending you all my positive thoughts and prayers...it seems so inadequate Judi asked that you know she is thinking of you too. __________________ Charter Member~Swan/Dolphin Cheerleaders

11-10-2009, 03:59 AM	#1
Mackey Mouse Me read the Navigator? I don't think so tsk, tsk said in my best Bahsten accent Tommy made Flubber Join Date: May 2000 Location: MA Posts: 17,397	Multiple Myeloma, updated 1/26/11 They say that God cannot give you more than you can handle.....I really wonder about that statement and am having real questions lately.. I try to be upbeat for all of you, you all know I lost my beloved Tom on October 1....truly one of the great husbands and friends and people are grieving that loss and will for some time.. But it seems his wife.. me has to put her grieving on hold and get into the battle herself with this blood cancer called multiple myeloma....not even sure I am typing it right... the pain is bad in my arm as the liquid tumor is on my neck and so yesterday I walked the halls of Mass General where my loved one walked and had my first treatment of Radiation.....the same radiologist who he adored....and now I am in the battle myself... There is no cure, it is chronic, there will be tests and more tests,chemo, bone marrow biopsy one is done., now that was not fun... but I ask you this.....keep my family who is in a mess in your good thoughts....they lost their Dad, they are worried about their Mom and I am taking it the best I can.. At times my typing with be erratic as the nerves in my right arm are affected by this tumor... ' Remember this.. all of you here.. life is precious, take your time, smell the roses, do good and love each other... you just never know where life will take you.. I will be in and out but will check in... please stay safe and healthy... Best, Marsha __________________ Mackey Mouse, Are you a Tigger or an Eeyore? Co-Moderator Restaurant Boards Moderator, Coping and Compassion Board "Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein Last edited by Mackey Mouse; 02-17-2010 at 06:02 AM. Reason: updating

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11-10-2009, 06:05 AM	#2
antmaril DIS Veteran The elephant topiaries near MK have a special meaning for me I'm a girl Join Date: Apr 2001 Location: Michigan Posts: 6,653	Oh Marsha, I'm so sorry to hear this news. Please know that you are in my thoughts and prayers every day

11-10-2009, 08:39 AM	#5
DebbieinWA Mouseketeer Join Date: Feb 2006 Posts: 207	I am so sorry! You will definitely be in my thoughts and prayers, as will your girls.

11-10-2009, 08:36 AM	#7
denegate Mouseketeer Join Date: Jan 2007 Posts: 219	I followed your journey with your husband. I was inspired by your courage and strength. I was impressed by your ability to put others at ease. I am sad to read that you will now be fighting your own battle. I believe you have the ability to be as positive for yourself as you have been for so many others on this board fighting their own health battles. Stay strong - I will keep you and your family in my prayers. Take Care.

11-13-2009, 01:45 PM	#8
Kathy C Mouseketeer Join Date: Aug 1999 Location: Pearland, TX Posts: 442	Marsha, I'm at a loss for words. Although I don't post often, I followed your journey with Tom, and am so sorry you have to fight the battle yourself. Will keep you and your family in my thoughts and prayers. Please, when you're feeling up to it, keep us posted. Kathy

11-13-2009, 03:37 PM	#11
Towncrier DIS Veteran Join Date: Aug 1999 Location: NE Ohio Posts: 12,987	Marsha - I am so sorry to hear this news and will continue praying for you as you battle the beast. __________________

11-14-2009, 05:57 PM	#12
Tinks1984 We're having a mini party! I couldn't believe how many there was in the bag! Join Date: Mar 2007 Location: Lancs, England Posts: 4,920	Oh Marsha I don't pop over here too often, but I had read about your post with regards to Tom and his amazing fight and now this, such a terrible thing I read. You don't deserve any of this. I wish you all the luck in the world with your fight and will keep you in my thoughts. __________________ RACHEL May '93 - Off-site - Marriott International Drive - May '95 - CBR - June '98 - CBR - April '08 - ASSp - May '10 - ASSp "If you can dream it, you can do it. Always remember that this whole thing was started with a dream and a mouse." - Walter E. Disney (1901-1966) Trip Report ~ 2010 Family Fun!

11-14-2009, 06:42 PM	#13
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,307	Marsha, just wanted to let you know thoughts and prayers are with you. Hang in there!! Blessings to you always.

11-14-2009, 07:05 PM	#14
diz8297 The only culture she knows is at the end of a cotton swab Join Date: Jun 2006 Location: RI-way to far from the World Posts: 1,094	Just saw this. I am over here sporadically-followed your journey w/Tom. There are no words. Will just keep you and your family in my prayers. __________________ DVC member since 1997

11-25-2009, 10:51 AM	#15
MickeySP DIS Veteran Join Date: Jan 2005 Location: South of Boston Posts: 1,412	You & your family will be in mythoughts & prayers Marsha. __________________

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