Well, Merry Freaking Christmas to me - The DIS Discussion Forums

Shugardrawers · 12-18-2006, 05:05 PM

I'm finishing off the year with news of a relapse. I just don't know what to say beyond that yet. I'm still processing this. I'm tired. I'm just really tired.

safetymom · 12-18-2006, 05:20 PM

I am so sorry to hear this. Please know you can come here to vent.

Shugardrawers · 12-18-2006, 05:25 PM

I try to be a realist about this but that doesn't stop me from getting my hopes up. Each time I relapse the diagnosis is more grim. Unless I can get into a clinical trial at Johns Hopkins for both laser surgery and medication my doctor feels 6 months is optimistic. Even if I can get into those trials, there's no guarantees.

Wish I lived in Fl · 12-18-2006, 05:50 PM

I am sorry for the bad news. Prayers said. I hope you are accepted to the Johns Hopkins study.

safetymom · 12-18-2006, 06:04 PM

Yes I hope you are accepted to the study. I will keep you in my prayers.

JunieJay · 12-18-2006, 06:35 PM

First and foremost, I am so sorry that you got this bad news.

Next, what will it take for you to get into the clinical trial at Johns Hopkins? Is there some sort of waiting list, how does it work?

From what I know of you here on the DIS boards, you've been a really amazing trooper. You're in my prayers. Keep us posted.

Mackey Mouse · 12-18-2006, 06:41 PM

OK.. I want to say bad words here but of course I cannot as they will not pass the filter and then being the mod here that would not be appropriate..

But Gosh darn it, I am so angry over this.....OK....Shugar, please know we are praying for you here.. I do not know what to say.. This disease is so bad, it tricks you into thinking you beat it, you are fine.....it gives you a few months of hope and feeling good and then it smacks you down again.

I know what a relapse means.. each time you do battle again with chemo hoping that this time it will kill all those cancer cells, knowing full well that each time you have a reoccurrence, your chances get slimmer and slimmer.. I understand, and feel your frustration. Just gear up and start working on those trials at Johns Hopkins.. try to get in.. what else can you do??

Hugs to you tonight.. I am not sure what else to say here except know that you are in my prayers. I am without words and pretty angry and questioning yet again.....Why??

luvwinnie · 12-19-2006, 10:43 AM

Oh, no! Praying for you. Please let us know how you are doing.

gemjoy · 12-19-2006, 02:33 PM

Stay strong shugar! Prayer being sent your way!!

I'm so sorry about the news you've been given ~ It's not fair!

Snowysmom · 12-19-2006, 08:10 PM

I am so sorry to hear the bad news. But from posts I have read, you are very strong, motivated person. I hope you can get into the JH trials and beat the cancer. You will be in my prayers.

FergieTCat · 12-22-2006, 04:41 PM

I just found this post.

I am SO sorry to hear this.

My thoughts and prayers are with you.

Jake & Crew · 12-26-2006, 11:47 PM

Shugar

Back on the boards, thinking of you and want to see how you are.

Just did my treatment last week, working my way back to pain free and know it is right around the corner as is your next good news moment. Let us know what is happening when you are ready.....we will keep you in our thoughts and prayers!! You are not alone and you have many friends

for every positive moment.

Kate
( the k in Jake)

Mackey Mouse · 12-27-2006, 08:17 AM

I agree Kate, I would like to know how Shugar is doing myself.. I do hope she posts soon..

Hugs to you too, keep up the good work. My husband had his treatment yesterday, seems to be ok today. Last treatment he was not good at all, so cranky like a complete personality change, not him, and we figured it was the steroid they were giving him.. I think it is decadron or something like that. We eliminated it from this treatment and he seems so much better....

Keep up the good work...

Shugar, please let's hear from you.. hugs!!!

goofy4tink · 12-27-2006, 10:04 AM

Hope all is well with her also.
Marsha, I thought of you and Tommy as we drove through Mashpee yesterday, going home from Christmas with the inlaws. Hope Tommy is feeling better today.

rie'smom · 12-27-2006, 02:02 PM

I'm sorry to hear the news. You seem like a fighter and so get back in the ring and KO that bad boy!! Hugs and prayers are with you.

12-18-2006, 05:05 PM	#1
Shugardrawers Ovarian Cancer Survivor! I need to bust a royal wee! Having a torrid affair with the I like my pickles whole Join Date: Aug 2003 Location: Newport News, VA Posts: 9,266	Well, Merry Freaking Christmas to me I'm finishing off the year with news of a relapse. I just don't know what to say beyond that yet. I'm still processing this. I'm tired. I'm just really tired. __________________ *QUEEN of DAMN NEAR EVERYTHING*

12-18-2006, 05:20 PM	#2
safetymom Have will travel ABD trips = clothes optional Join Date: Aug 2001 Location: Now living near the parks! Posts: 41,866	I am so sorry to hear this. Please know you can come here to vent. __________________ Caribbean Beach FAQ V

12-18-2006, 05:25 PM	#3
Shugardrawers Ovarian Cancer Survivor! I need to bust a royal wee! Having a torrid affair with the I like my pickles whole Join Date: Aug 2003 Location: Newport News, VA Posts: 9,266	I try to be a realist about this but that doesn't stop me from getting my hopes up. Each time I relapse the diagnosis is more grim. Unless I can get into a clinical trial at Johns Hopkins for both laser surgery and medication my doctor feels 6 months is optimistic. Even if I can get into those trials, there's no guarantees. __________________ *QUEEN of DAMN NEAR EVERYTHING*

12-18-2006, 06:04 PM	#5
safetymom Have will travel ABD trips = clothes optional Join Date: Aug 2001 Location: Now living near the parks! Posts: 41,866	Yes I hope you are accepted to the study. I will keep you in my prayers. __________________ Caribbean Beach FAQ V

12-18-2006, 06:41 PM	#7
Mackey Mouse Me read the Navigator? I don't think so tsk, tsk said in my best Bahsten accent Tommy made Flubber Join Date: May 2000 Location: MA Posts: 17,397	OK.. I want to say bad words here but of course I cannot as they will not pass the filter and then being the mod here that would not be appropriate.. But Gosh darn it, I am so angry over this.....OK....Shugar, please know we are praying for you here.. I do not know what to say.. This disease is so bad, it tricks you into thinking you beat it, you are fine.....it gives you a few months of hope and feeling good and then it smacks you down again. I know what a relapse means.. each time you do battle again with chemo hoping that this time it will kill all those cancer cells, knowing full well that each time you have a reoccurrence, your chances get slimmer and slimmer.. I understand, and feel your frustration. Just gear up and start working on those trials at Johns Hopkins.. try to get in.. what else can you do?? Hugs to you tonight.. I am not sure what else to say here except know that you are in my prayers. I am without words and pretty angry and questioning yet again.....Why?? __________________ Mackey Mouse, Are you a Tigger or an Eeyore? Co-Moderator Restaurant Boards Moderator, Coping and Compassion Board "Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein

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12-18-2006, 05:50 PM	#4
Wish I lived in Fl DIS Veteran Join Date: Jan 2004 Location: Massachusetts Posts: 1,940	I am sorry for the bad news. Prayers said. I hope you are accepted to the Johns Hopkins study.

12-18-2006, 06:35 PM	#6
JunieJay SSDN I feel very connected to my strong Italian Alan Rickman is at the top of the list Join Date: Aug 2006 Posts: 6,744	First and foremost, I am so sorry that you got this bad news. Next, what will it take for you to get into the clinical trial at Johns Hopkins? Is there some sort of waiting list, how does it work? From what I know of you here on the DIS boards, you've been a really amazing trooper. You're in my prayers. Keep us posted.

12-19-2006, 10:43 AM	#8
luvwinnie And how are YOU feeling? My happy thought: Sitting on Main Street eating ice cream. Can't tell the difference between Burger King and Wendys Join Date: Sep 2000 Location: Bergen County, NJ Posts: 9,962	Oh, no! Praying for you. Please let us know how you are doing.

12-19-2006, 02:33 PM	#9
gemjoy Beware the Cruise Shampoo! fries with gravy can get kinda "pointy" Nope ~ I could not jog with a bag of poo! Join Date: Apr 2005 Posts: 820	Stay strong shugar! Prayer being sent your way!! I'm so sorry about the news you've been given ~ It's not fair! __________________ gemjoy What lies behind us and what lies before us are tiny matters comared to what lies within us... In the end.. the love you take is equal to the love you make. You know you're Italian when Your grandfather had a fig tree ~You eat Sunday dinner at 2:00 You've been hit with a wooden spoon or had a shoe thrown at you Your mom's meatballs are the best SSR 02/28/06~03/04/06 Disney Magic 03/04/06~03/11/06

12-19-2006, 08:10 PM	#10
Snowysmom If they say "That's interesting" when eating dinner, time for a new recipe! Join Date: May 2003 Posts: 2,095	I am so sorry to hear the bad news. But from posts I have read, you are very strong, motivated person. I hope you can get into the JH trials and beat the cancer. You will be in my prayers.

12-22-2006, 04:41 PM	#11
FergieTCat No, I'm serious. And don't call me Shirley Doug Wilson is a babe, but he can never take the place of my lust for George Clooney! Has been known to escort squirrels across the street Join Date: Jun 2000 Location: Forest Hills, New York Posts: 6,516	I just found this post. I am SO sorry to hear this. My thoughts and prayers are with you. __________________ Donna *Proud recipient of the FV Crazy Cat Lady Blue Ribbon*

12-26-2006, 11:47 PM	#12
Jake & Crew Mouseketeer Join Date: Feb 2006 Location: Rhode Island Posts: 374	Thinking of you.... Shugar Back on the boards, thinking of you and want to see how you are. Just did my treatment last week, working my way back to pain free and know it is right around the corner as is your next good news moment. Let us know what is happening when you are ready.....we will keep you in our thoughts and prayers!! You are not alone and you have many friends for every positive moment. Kate ( the k in Jake) __________________ me; dh; dd12 dd10 Childhood Trips:1975 ~ off-site 4/83~off site 4/85~ Poly "Grown Up" Trips:3/96~WL 5/06~Poly/Cruise2/07 ~ WL Grand Gathering 4/08 BWV & OKW ~ 8/10 BWV & AKLV Coming soon: BCV & AKLV -AUGUST 2012!!!!

12-27-2006, 08:17 AM	#13
Mackey Mouse Me read the Navigator? I don't think so tsk, tsk said in my best Bahsten accent Tommy made Flubber Join Date: May 2000 Location: MA Posts: 17,397	I agree Kate, I would like to know how Shugar is doing myself.. I do hope she posts soon.. Hugs to you too, keep up the good work. My husband had his treatment yesterday, seems to be ok today. Last treatment he was not good at all, so cranky like a complete personality change, not him, and we figured it was the steroid they were giving him.. I think it is decadron or something like that. We eliminated it from this treatment and he seems so much better.... Keep up the good work... Shugar, please let's hear from you.. hugs!!! __________________ Mackey Mouse, Are you a Tigger or an Eeyore? Co-Moderator Restaurant Boards Moderator, Coping and Compassion Board "Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein

12-27-2006, 10:04 AM	#14
goofy4tink Likes little devils I know I'm getting old...I get it, I really do Prisoner of Toy Story Mania Join Date: May 2002 Location: Central Ma Posts: 44,638	Hope all is well with her also. Marsha, I thought of you and Tommy as we drove through Mashpee yesterday, going home from Christmas with the inlaws. Hope Tommy is feeling better today. __________________

12-27-2006, 02:02 PM	#15
rie'smom "Always let your conscience be your guide." I cannot look at my hamburger after I've taken a bite Toilet paper must come over the top! Join Date: Sep 2005 Posts: 19,069	I'm sorry to hear the news. You seem like a fighter and so get back in the ring and KO that bad boy!! Hugs and prayers are with you. __________________

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