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Old 12-18-2006, 05:05 PM   #1
Shugardrawers
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Well, Merry Freaking Christmas to me

I'm finishing off the year with news of a relapse. I just don't know what to say beyond that yet. I'm still processing this. I'm tired. I'm just really tired.
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Old 12-18-2006, 05:20 PM   #2
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I am so sorry to hear this. Please know you can come here to vent.
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Old 12-18-2006, 05:25 PM   #3
Shugardrawers
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I try to be a realist about this but that doesn't stop me from getting my hopes up. Each time I relapse the diagnosis is more grim. Unless I can get into a clinical trial at Johns Hopkins for both laser surgery and medication my doctor feels 6 months is optimistic. Even if I can get into those trials, there's no guarantees.
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Old 12-18-2006, 05:50 PM   #4
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I am sorry for the bad news. Prayers said. I hope you are accepted to the Johns Hopkins study.
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Old 12-18-2006, 06:04 PM   #5
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Yes I hope you are accepted to the study. I will keep you in my prayers.
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Old 12-18-2006, 06:35 PM   #6
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First and foremost, I am so sorry that you got this bad news.

Next, what will it take for you to get into the clinical trial at Johns Hopkins? Is there some sort of waiting list, how does it work?

From what I know of you here on the DIS boards, you've been a really amazing trooper. You're in my prayers. Keep us posted.
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Old 12-18-2006, 06:41 PM   #7
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OK.. I want to say bad words here but of course I cannot as they will not pass the filter and then being the mod here that would not be appropriate..

But Gosh darn it, I am so angry over this.....OK....Shugar, please know we are praying for you here.. I do not know what to say.. This disease is so bad, it tricks you into thinking you beat it, you are fine.....it gives you a few months of hope and feeling good and then it smacks you down again.

I know what a relapse means.. each time you do battle again with chemo hoping that this time it will kill all those cancer cells, knowing full well that each time you have a reoccurrence, your chances get slimmer and slimmer.. I understand, and feel your frustration. Just gear up and start working on those trials at Johns Hopkins.. try to get in.. what else can you do??

Hugs to you tonight.. I am not sure what else to say here except know that you are in my prayers. I am without words and pretty angry and questioning yet again.....Why??
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Old 12-19-2006, 10:43 AM   #8
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Oh, no! Praying for you. Please let us know how you are doing.
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Old 12-19-2006, 02:33 PM   #9
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Stay strong shugar! Prayer being sent your way!!
I'm so sorry about the news you've been given ~ It's not fair!
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Old 12-19-2006, 08:10 PM   #10
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I am so sorry to hear the bad news. But from posts I have read, you are very strong, motivated person. I hope you can get into the JH trials and beat the cancer. You will be in my prayers.
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Old 12-22-2006, 04:41 PM   #11
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I just found this post.

I am SO sorry to hear this.

My thoughts and prayers are with you.
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Old 12-26-2006, 11:47 PM   #12
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Thinking of you....

Shugar

Back on the boards, thinking of you and want to see how you are.

Just did my treatment last week, working my way back to pain free and know it is right around the corner as is your next good news moment. Let us know what is happening when you are ready.....we will keep you in our thoughts and prayers!! You are not alone and you have many friends for every positive moment.



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Old 12-27-2006, 08:17 AM   #13
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I agree Kate, I would like to know how Shugar is doing myself.. I do hope she posts soon..

Hugs to you too, keep up the good work. My husband had his treatment yesterday, seems to be ok today. Last treatment he was not good at all, so cranky like a complete personality change, not him, and we figured it was the steroid they were giving him.. I think it is decadron or something like that. We eliminated it from this treatment and he seems so much better....

Keep up the good work...

Shugar, please let's hear from you.. hugs!!!
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Old 12-27-2006, 10:04 AM   #14
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Hope all is well with her also.
Marsha, I thought of you and Tommy as we drove through Mashpee yesterday, going home from Christmas with the inlaws. Hope Tommy is feeling better today.
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Old 12-27-2006, 02:02 PM   #15
rie'smom
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I'm sorry to hear the news. You seem like a fighter and so get back in the ring and KO that bad boy!! Hugs and prayers are with you.
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