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    VP Shunt

    I haven't been since I had my shunt placed, but was told by my neurosurgeon I could do anything post op that I did pre-op. He said just with an MRI would I have to get the valve re-programmed. Hopefully your surgeon is able to help!
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    ECV Help

    I never had issues with the battery! I ran mine ALL day! It never went down past 7/8ths battery power! I just made sure to turn it off when I wasn't moving, so waiting in lines, at parades, shows ext. just make sure to charge the battery every night. We had a rental van, a crysler town and...
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    Visually impaired children/dinner shows

    My father is legally blind, and when we went to the spirit of aloha, I called and made the reservation over the phone and requested a spot at the front, and explained. We also paid for the tier one seating. I would always call and ask! We also ate at the coral reef, and although we had a...
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    Port Questions

    I have a port due to frequent medication infusions, I have had mine for over a year and a half and I forget it's there. It didn't limit anything I used/did at disney. I went on stitch and I don't think the bars even touched my port, it went on my shoulders, but not chest. It did hurt my back...
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    ECV + Character Meets?

    I would stay in my scooter till I got to the front of the line, then while the next family was going, I would tell the CM I was going to drive my scooter to the other side of the character, and then walk back while my family stayed in line. So with Anna and Elsa, I drove to the exit, and just...
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    Hoping for a little guidance

    For the dessert party, explain to the cm that you can't stand at the railing, they gladly brought my mom a wheelchair out so she could sit at the railings. I know it's a little defeating to use an ECV, but I am 24, and I also have RA, and hated the idea, but after getting the ECV and using it on...
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    Have a Photopass Question? Ask me!

    So are we not supposed to ask for them? Like I would really really like the chip one ad he's my favourite character....
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    Have a Photopass Question? Ask me!

    I ordered memory maker at christmas over the phone but live in Canada and they never shipped me a slipped to trade in for a card (we are staying off site). I can't get someone to give me a straight answer! One person told me just to go to will call when I get there and they will give me one...
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    ECV and water

    Any suggestions on how to identify mine from others?
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    ECV and water

    Hello, I have rented an ECV for our upcoming disney trip for myself (24 year old with Crohns and as a result arthritis, I also get tired very easily). I am going to use it to prevent fatigue over my 8 day trip to the world. I am worried about the unit getting wet during a rain storm if I am on a...




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