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I'm trying to theme them- I love the personalized embroidered look (iron-ons?). Do you think that if I go on Etsy that I could get them in time? Are there any disboards people that sew for the Big Give that I should look at? I'd rather share the wealth with disboards friends! :) Trying to get...

I'm trying to theme them- I love the personalized embroidered look (iron-ons?). Do you think that if I go on Etsy that I could get them in time? Are there any disboards people that sew for the Big Give that I should look at? I'd rather share the wealth with disboards friends! :) Trying to get...

Crazy days for us! It's been a real whirlwind. Whew! Grace is set to have surgery on Feb. 9th. We'll need to be at Stanfors for pre-op and cath beginning February 3rd. That doesn't give us much time, and I really wanted to do this trip before her next open heart surgery... So, we got dates...

Crazy days for us! It's been a real whirlwind. Whew! Grace is set to have surgery on Feb. 9th. We'll need to be at Stanfors for pre-op and cath beginning February 3rd. That doesn't give us much time, and I really wanted to do this trip before her next open heart surgery... So, we got dates...

Can't wait to hear from you when you get back! The FB posts have been so awesome- love that you all are having the experience that you are. I can't wait to pick your brain- looks like we'll have about 2 months before our trip- can't believe it is really going to happen!! Miss you!

I'm still trying to process the information, and I'm super emotional. Looks like Grace's surgery will happen sooner than expected. She is NOT a candidate for the melody valve (cath procedure), and needs a conduit replacement (synthetic pulmonary artery) and heart reconstruction. The plan to...

I'm still trying to process the information, and I'm super emotional. Looks like Grace's surgery will happen sooner than expected. She is NOT a candidate for the melody valve (cath procedure), and needs a conduit replacement (synthetic pulmonary artery) and heart reconstruction. The plan to...

Thank you for your prayers! I'll post Gace's operative status as soon as I know. :hug:

Thank you! Your family is beautiful as well! Just came from Gabby's PTR :) What brought you to the OC from FL?

Love, love, love the Mohawk pic! Your positive energy shines through your story, and through Gabby's eyes. Can't wait to hear more!

Finally made it over to your PTR- so glad I did! Your boys are GORGEOUS!!! Super cute! Amazing that you knew about Jayden's CHD prior to birth, I agree that is a blessing. Unfortunately, we didn't know about Grace's until after birth, and we had limited input on her Original surgical plan...

Thank you! How was it with him? Did you do multiple days, or did you rest in-between? my youngest has done 2 consecutive DL days, followed by a beach day. He did phenomenal, but with his SPD I worry about overdoing it.

I can't wait to hear how it goes! We find out about the surgical plan for Grace on Thursday, so I may need the good vibes of your wish session. ;)

So happy this is working out! I've been thinking about your family. Have an AMAZING time!!

So nice to meet you! I'm assuming you do surgeries @ Boston Children's? How exciting about the upcoming wish. The waiting is definitely the hardest part. I wonder at times if we're doing this too soon age-wise, but with another OHS on the horizon, I want to make an amazing memory while we...

thanks! Not a "first timer", per se, to the Disney experience, but first time for Disneyworld & Florida and also new to MAW. Where do I find a Passporter?

That's awful! I hope it gets resolved. I wish I had better suggestions, but I'm also new to MAW. Maybe call the main wish office? I'll be thinking good thoughts for you and hoping this glitch isn't something too big, and can be fixed with a dose of pixie dust!;)

Hi everyone! I'm new to the boards and wanted to introduce myself. I'm Anneke, mom of 2 special needs kiddos. I'm friends with "Owensheart" and she reccomended I visit, get acquainted, and start a PTR now that we've officially wished. I have NO CLUE where to even begin with the planning...

Hi everyone! Super excited to meet all of you and soak up as much information, reccomendations, and tips about having the best MAW trip ever! Before we get started... Meet Grace! Grace was born December 1st, 2008, 10 weeks premature, seemingly healthy despite her early unexpected...

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