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We are here now. First time at the BW. We are at BWV in a studio and are on the second floor with a village green view. We had requested near the elevators and just a few rooms down so very close and convienient as my daughter is in a wheelchair so stairs are out. We have a studio with the...

I just found some Minnie and Mickey headband ones at our local Walgreens for a few dollars this week! I can't remember if the had the actual hat ones, but the headband ones have a little hat attached to the band. Not quite as plushy (is that a word?) as Disney ones, but much cheaper. Not all...

We arrive at BWV the same day!

I just checked out your blog and we also see Dr G! We have done Disney a few times and is is very doable with a medically complex kiddo. Biggest thing is to be prepared and set goals for what is really important. I agree with only two days I'd stick with just the Magic Kingdom so you can take...

Finally got Mickey Mail, canceled out "fall back" reservation off site (I'm not a great decision maker!), pulled out the suitcases, went to Target to pick up a few things, and ready to start panicking! Oh, that should be PACKING. Oh, well, same thing :) getting excited and nervous at the same...

We just surprised my daughter at the 30 day mark knowing she would need time to process and I'd need time to prepare her for things. She is not ASD, but has her own set of issues so I was not sure how it would go over. Anyway, I went to the dollar store and got a princess balloon and a Mickey...

Magic express isn't the problem, it is finding alternate transportation to the Dolphin. Both ME and Mears can handle the luggage and chair, it was more I was seeing some of the car services who could not handle us. I think a lot is just the unknown of doing it different since we have some...

So far I've gone from Swan to Pop, to Dolphin, to BWV, and now back to Dolphin. Thing is we still have our BWV reservation and I can't make up my mind. As I see it there are a couple issues. One is ME. We have a lot of medical "stuff" we carry with us. Over doubles our luggage amount (total of 4...

Ok, asking for some opinions from other "changers". So far I've gone from Swan to Pop, to Dolphin, to BWV, and now back to Dolphin. Thing is we still have our BWV reservation and I can't make up my mind. As I see it there are a couple issues. One is ME. We have a lot of medical "stuff" we...

Thanks for the info. I requested quotes from them and Tiffany town car on van service round trip.

I searched here and on the transportation board and couldn't find this answer, but maybe I missed it. We are still deciding between The Boardwalk Villa studio and the Dolphin. The biggest deciding factor right now seems to be transportation. My daughters wheel chair does not fold. She can...

My daughter has a continent vesicostomy and we cath through that. We also use the all-in-one caths. We get them in Coude tip since the way her vesicostomy is constructed we need that little tip to get it past the valve they constructed. She has cathed about everywhere and we have found...

My daughter also has CIP and gastroparesis. She is TPN dependent and has been for 6 years, prior to that she tolerated J tube feeds. We have done Disney twice with tube feeds and once on TPN. She is able to do tastes once or twice a day so she just will take a taste of what we have if it is...

Not sure if they are interested in Disney Jr show, but seating there is in the back for w/c. This is actually a better place to sit since everyone sits on the floor and it is hard to see the stage if you are too close. You could always all wait together then the girls could just sit in front...

I've done this also and they are wonderful to keep things organized. If you could see some of the things I've rigged in hotel rooms to hang IVs from you would laugh. Who knew lamps could have so many uses?! Thanks for the additional info on BWV. It's great to hear such positive things from...

Thanks for taking the time. As a mom of a child who is transfusion dependent and has needed platelets, I'm so thankful for those who donate. Have a great day!

Thanks for the responses everyone.

Anyone ever had oxygen delivered to their hotel? We won't need it in flight, but need it overnight so I was going to just have a concentrator delivered to our hotel. I don't think we will need tanks since if she needs it during the day we will just go back to the room and rest for awhile and...

Thanks for the video. From the looks of it we will have ample room for all of medical "stuff". It is always nice to see video vs pictures since it gives a better idea of space in relation to everything.

We are in a studio.