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hi there michelle!!! on the car seats....are you SURE your 18 month old gets his own seat on the plane? for our 19 month old, he was considered a "lap baby' and did NOT get his own seat!!! 2 and under usually don't?! so make sure that is not the case here....also, we ended up taking matthews...

YAYA!! sounds like you are going to have a BLAST!! don't worry tooooo much about tooooo much....things will fall in place just like THAT!! you are going to have a BLAST which ever way you go!!! :) i know your WHOLE FAMILY will have a blast too!! take care and CAN'T wait to hear all about...

YAYAYAYAYA!!! soooo happy to hear that!! GREAT NEWS!!! I am so sorry to hear that!!! i hope that she gets off that O2 and there is NO DELAY on her getting her WISH!!! GOD BLESS....

hi michelle!!!!! well, i was one of the ones that was able to get an EARLIER flight when we left to go OVER there....they had us leaving at 1200 from here and arriving after 7pm over there.....it was tooo late for my little guy so we were able to get it change to leave at 7am!! now on the...

awwwwww....THANK YOU!! :) i am so glad you like the TR!! it was such an AMAZING experience!!! :) what is funny, i have people COMPLAIN because of all my bold words and punctuation etc!! :( but i know that YOU got it! if you read it thinking as if i was talking to you, it would make sense...

HEY THERE....was just remembering that something we did before we left GKTW is DONATE all our EXTRA stuff that we had bought while we were there!!! we donated WATER, DIAPERS, THE EXTRA FORMULA, some snacks and such and the RAIN PONCHO'S that they gave us!!! anything extra....they were VERY...

HI THERE!!! we also are g-tubers and we didn't know HOW we wer going to do it BUT we found out we could get the DME to SHIP the cans he needed DIRECTLY to GKTW and they did!! :) it was WAITING there fore us when we got there!!! so, maybe you can ask your DME if they would ship a portion of...

GREAT TIPS!! :) you are so right about the button!!! if someone had not pointed me in this direction (the forums) i KNOW i probably would NOT had such a WONDERFUL experience if i had not heard about the pins and such HERE!! so THANK YOU! I was hesitant on HOW to use the pins when we...

HEY THERE!!!!!!!!!! how are you doing? did you have a BLAST during your stay??? how is your little girl?! awwwww....it is soooo neat to know you are on this forum!! COOL!! it was really nice to meet you there and here! i hope you had a GREAT time!! take care and GOD BLESS...

hello friends!! i hope everyone is doing GREAT!! i have not been able to make it to the boards recently because we are still RECOVERING from our BEAUTIFUL trip a couple of weeks ago!! well, I FINALLY BLOGGED ALL ABOUT IT!!! yep, and i have TONS of pictures! i don't know how to post it...

hello everyone!!! i am so sorry i just ZIPPED right out of here and never said GOOD BYE on our way out the door to our trip but BOY it all just sorta ROLLED by that before we knew it, we were OUT THE DOOR on our way to the AIRPORT at 4:30am!!!! we have NEVER been more excited about ANYTHING...

well, we are HOME NOW and absolutely NO WORDS can describe how amazing the trip was!! i plan to put it all down in WORDS and PICTURES but i just have not had the time to do it !!! i will defeintley post SOON ABOUT IT ALL!! THANK YOU!! WE HAD A BLAST!!! can't wait to get it all down so i...

HOLA!!! i am so happy for ya'll!!! and in june!! wooo hooo!! we are leaving on SATURDAY for our MAW trip!! you little girl sounds like such a FIGHTER!!! my son also was diagnosed with infantile spasms but after 4 epi of them they never developed.... i can't wait to hear more about...

what a BEAUTIFUL daughter!!! wow, on her story! i am so happy to have "met" you! i hope that all continues well!! i know they will be soooo excited! seems you will be coming in as we are leaving!! we are going there 18-24th!! :) maybe we will see each othere!! take care and GOD BLESS...

WOWOWOWOWOW....ok, now i am getting EXCITED!! yes, we are sooo close to going over there!! SATURDAY!! anyway, we had a WONDERFUL going away party over at the old CHUCK E CHEESE place and it was so awesome and nice for them to do that for us! we had a BLAST and the kids couldn't say enough...

to ask some questions....i have not been able to be online too much because my router went KAPUT so i have to go buy a new one and am currently on an unsecure network from probably a motel close by our home!! :) so, i am usually, on and then off just a quick one to check our emails and such...

WE GOT OUR TIMES CHANGED!!!! YIPPPEEEEE!!!! thank you GOD they were able to change the departure time from leaving at 12pm to leaving at 7 am!! that was so important because matthew needed time to settle down and by the time we got to GKTW, it would be after 8pm for SURE and then to try to...

i just wanted to share with you matthews story!! here it is in WORDS and here it is in VIDEO: MATTHEWS VIDEOMATTHEW ISAIAH******************** MATTHEW ORIGIN-Hebrew MEANING- Gift of GOD SPIRITUAL MEANING -Honor to God SCRIPTURE- Psalm 104: KJV -"Bless the Lord, O my soul. O lord my God...

thank you all!! :) so far, we are getting things as planned....food is at GKTW, got our call on our oxygen and that is ready to go, our car seats are ready, our other equipment should be there soon....so far sooo good! everyone has the clothes that we need (except DH who needs some...

YAY!! i am so happy for all of ya'll!! our wish trip is april 18-24 so i will let you know how that goes!! GOD BLESS YOU and YOUR FAMILY!!! take care, maria