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We made paper chain for one of our trips to disney a few years ago and Madison loved taking off a chain a day to count down. Oh by the way our chain had over 400 links to start. We also made a paper chain out of Mickey head paint chips we got from Home Depot (I believe).

I totally agree with you on all of the above. It is the ONLY place that we go where we aren't thinking about Madisons illness. You cross the border from normal world to Disney property and all "stuuf" is left at the border. Her wish trip was awesome and seems so far behind us. Grandma and I are...

Thanks for the info, but I have to say that if her hearing doesn't come back soon (like tomorrow) she is going to hurt someone. She walked around all night with her head tilted to one side and kept saying her hear was stupid.

She is still having some hearing lose in her right ear and when she can hear she says she hears her shunt moving in her ear. If it keeps up we will be at the hospital all day tomorrow for some other appointments and I guess we will be making a trip down to the ER so they can call the ENT on call...

So this is what has been going on since I last did an update. Madison has continued to run low grade fevers and now has an ear infection. Doesn't sound to bad, right? Well, she has tubes in both ears so why is she getting ear infections? Isn't that the whole purpose of having tubes? That was my...

Just wanted to say that I will be praying and will have her added to our prayer list at church. This is the least I can do for all you have done for me and for all of us. I will be watching for the caringbridge in your siggie. I know it has helped me greatly.

Surgery went great. They actually did not have to put pins in her arm. All they had to do was rebreak her arm and reset it. He said as soon as he repositioned her arm the bones went right back where they needed to be. Should heal up just fine. Have to still keep a close eye on it and she will be...

That is so awesome. Wish we were going back. Could really use it right now. Ride the merry go round an extra time for us.

So she had her follow up with the ortho doctor today and the bones in her arm have moved, so now the doctor has to go and rebreak her arm and try to set it. If he isn't pleased with how it looks then he is going to have to put pins in her arm. More frustration and worrying. Don't know more than...

Just wanted to let those of you who were following know that I made it home from California and all is well. Madison did great and mommy did too. Only had one scare while I was there and now it seems kind of funny. It was Friday evening and I was waiting for our goodnight call and guess what? It...

First we did not need a car seat for our trip. One was provided for us after we for there. Second - have fun and enjoy every minute. Can't wait to see pictures.

So sorry he isn't doing well. I totally get the whole lake of control thing. Will keep you in my thoughts. Hope he gets to feeling better soon.

I want to take a moment and thank everyone for the prayers and wonderful, heartfelt support. It is nice to know I can vent here and someone is listening (or reading). We were back in the ER yesterday because her cast was to tight. They had to cut it on both sides and split it open to loosen it...

We were back at the ER tonight due to Madison's cast being to tight. We were already at the hospital for her immune system doctors appointment and they noticed that her fingers were swollen and discolored and sent us down to the ER after our appointment. They ended up having to cut her cast on...

Thanks for taking the time to reply. I thought maybe posting something would help, but honestly not in any better of a place. Madison's arm is doing OK as long as I keep meds in here. Fingers are looking a little swollen, but we see the doc tomorrow. Won't be surprised if they have to split her...

Hoping for an uneventful week for you as well and what I would do to be back at GKTW even if for just a day. Have a great time (which I know you will) and relax. Thanks for the message on my post.

Update on Madison. We were at a birthday party last evening for Madison's "Grandma Shirl" and she fell and broke her arm and hurt her ankle. This is the worse break she has ever had. It is broke in 2 different places and was out of place. The bigger bone in arm was broke and the bone was beside...

So sorry to hear that. Praying for a quick recovery.

Just wanted to let everyone know that we made it home late on Saturday. The flight was a little bumpy, but not to bad. Madison is doing pretty good. She still has the cough, but that is to be expected because of the asthma. Came home with a load of meds. Have to get an appointment with her...

So I we finally got the ok to go home. Our flight is leaves tomorrow (if the snow stops) evening. We should be home around 7pm or so. All the test have come back normal which is good and bad. Good because they were all normal - bad because they can't figure out why she is having the low grade...