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Also, I have noted that some people on here have had measles more than once. That is a prime reason to be screened for Primary Immunodeficiency Disease because your body may not be remembering past illnesses and retaining immunity. There is supportive care that can prevent further infections.

If you are fully vaccinated you should be safe from the measles. If you are at all questioning your vaccination status there is an easy and quick titer test that you can get from your doctor. I did that recently to confirm what I was protected against. There is a very small subset of the...

In DCA we really enjoyed the Cozy Cone chorizo cone and egg scrambles and the churro cones. Now I want to try everything else they serve in a cone : )

I am so glad the IVIG is working out for you. If you are not already getting it there is a free magazine called IG Living that you can sign up for which covers IG treatments for lots of different disorders. They also have a Facebook page.

We are taking our first trip to Universal Orlando in mid August. What time should in line before early entry rope drop? We are hoping to have a shot at Gringotts. Thanks!

We will be heading to disney this summer with lots of "borrowed" antibodies from thousands of people and I expect them to get the job done for us! FYI, if they decide you have a primary immune deficiency disease the Immune Deficiency Foundation is vey helpful. I hope your IVIG gets approved...

I don't know what the answer is for your trip. However, I just wanted to put it out there that we work with a clinical immunologist for weekly IGG replacement for an immune disorder and it has been life changing for our family and many others. Hopefully they can give you a weekly or monthly...

. I wear the Vionic flip flops all the time. They are my favorites! They have a built in arch and a special heel cup.

I recommend the Vionic brand of shoes. They are designed for people with plantar fascitis. It is so nice to be able to wear sandals again!

Your mom is awesome as are all the donors! I infused my child for about an hour last night with plasma derived immunoglobulin to treat his primary immune deficiency disease and today he will be playing flag football instead of lying on the couch. We have been on Disney trips pretreatment where...

Our children with primary immunodeficiency diseases will infuse immunoglobulin through a pump every week, most likely forever in order to survive and thrive. Not one of us is concerned with why people donate plasma, we are just happy and grateful that they do. Their blood gives our children a...

Thank you too KalamityJane! Each weekly infused dose of my child's gammaglobulin requires the mixing of antibodies from 10,000 to 50,000 plasma donors. You are our heroes. Thank you for giving our kids with primary immunodeficiency diseases their childhoods back!

Donating plasma is a beautiful thing! My loved one and many of our friends rely on weekly plasma infusions from donations to survive primary immunodeficiency diseases. I know firsthand that plasma donations save and enhance lives. Thank you for donating!

I hope your fall season goes well. Starting weekly subq Hizentra last spring at age 8 after 1.5 years solid of antibiotics was one of the most gut-wrenching yet best decisions we have ever made. If you aren't already bringing some you might want to ask your doctor for a travel antibiotic...

I forgot to add some PIDD parents have gotten the stroller as a wheelchair If they have needed it.

Hello! I have an 9yo who was diagnosed with PIDD at 6 and we have been to Disneyland multiple times and WDW once. For us nothing seems to be more dangerous than school and however well he is doing there seems to carry over to everything else. Is he already on IVIG/subq replacement and/or...

Movie gift cards are good for most ages!

I second the EarPlanes suggestion. They are a lifesaver for stuffy kids and adults on the planes They make them in adult and child sizes.

I go every week! We get among other things sourdough bread fresh tortillas arrabiatta pasta sauce frozen macaroni and cheese frozen rice frozen turkey meatballs frozen soy corn dogs frozen pizzas fat free vanilla yogurt nonfat greek yogurt with honey Italian salads seasoned...

I am a notorious overpacker so I empathize. My son was allergic to the soaps and detergents used in the room so I even had to pack his own sheet, soaps and laundry soap. I felt silly but when your child is covered with hives after they touch the bed what else can you do? I did learn a few...