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Ok, so I have a few questions, i am reading all this and I am starting to get freaked out. I am staying at pop for 8 nights with my DH and DS and DD, four of us. But my grandmother lives in florida, and is staying at another offsite resort. Is she not allowed to come visit us and swim with me...

My son also has hydrocephalus. And he also has a shunt, a vp shunt. He is 7 now, and he had it put in when he was 6 weeks old. When he had his first seizure last febuary, my first thought was it was his shunt. That is scary to witness the first time and not know what is happening. He has had one...

Was just curious how long you actually waited before using a dose of the diastat, and do you call the ambulance each time your child had a seizure?

It is very scary when he seizes over 45 minutes. He didnt stop the first time till way after we got to the hospital. We leave for disney in two and a half weeks. Now I am getting scared, messing with his routine and all. I have my grandmother going with us, so she can stay with him while we are...

My 7 year old son has seizures, some that have lasted as long as over 45 mins at a time. He has been seizure free since a week before christmas. Saturday monring, three weeks before heading to disney, he had another one. I was lucky enough to have diastat emergency medicine for him this time...

I know the Hawaiian inn in daytona beach has a luau dinner show. I havent been to it, but we are trying it this year. We will be in daytona june 8-13, so i can let you know when we get back how it was.

I am from edwardsville, Illinois. That is about 20 mins from st louis. It takes us about 15 hours to get down. Here is a secret though, dont stop till you get to the other side of Atlanta. Then when you leave in the morning, you dont have to sit through all that atlanta moring traffic. It saves...

If you go to their website, they usually have them you can print out. Hope that helps.

http://www.hookerfishing.com/ we went with this boat a year ago, and we had the best time ever, and even came back with lots of shark, and a variety of other huge fish. This boat is nice, roomy, the captain is great along with his deck hand that will bait your hook and is right there to help...

Dont forget cocoa beach. That is pretty close to orlando. I know ponce inlet is not really a place to go to for the beaches. It is very pretty though, and is fun to go to while visiting Daytona beach. Daytona can be a little crowded but really fun . We always go to Daytona, it is not as bad as...

We paid around 3500 initially to set up the special needs trust fund. Then we were charged for the phone calls we made to that lawyer, so around 4000 all together. Now my son won over a million dollars, so i dont know if it has something to do with how much money you are putting in it or not, i...

No, that is not crazy, and if it is, im in line with you. We dont leave till may 26th, and my suitcases are out already!!!! I am going to start putting stuff in today!!! I am ready, doing the happy dance with my kids around my suitcases!! :banana:

Dzorn, lliving in Illinois, it is a law it has to go straight into a trust, that is for the benefit of the child. That money is to be used only for the child. And yes a special needs trust is the route you need to go. I just moved our sons special needs trust to morgan keegan trust in illinois...

I Pmd you daughters, I sent some information on what I have. I also live in Illinois, and with your child being disabled, look into the special needs trust. It has been a lifesaver for us!!! Let me know if you need any info, we have had ours for our 7 year old for the last two years and he is...

I just made my reservations for hoop de doo a few days ago, and I was told to make sure I pick up my tickets at my resort desk before going. I would check.

May 29th-June 6th POP Yea!!!!! Getting close!!!! :woohoo:

I know it is at some resort, but where exactly can you find this? I saw this on the travel channel, and it sure looked good!!!

Myu aunt is liscened to do mortgages, we were just talking about this the other night. Stay far away from these, what it does is give you money off your house, but then when you have taken the money at the end, you dont own the house anymore. Your family will be left with nothing, or if your...

I have a movie and meal coupon to give away too, just let me know who wants it and I will send it out. :cheer2:

Hi Stephanie, my son has the VP shunt. He has had it since birth. When he was about 2 years old, he had a shunt revision. That is the only one he has had Thank God. It is scary isnt it? How many have you guys had and what kind of shunt does your son have? Has he had it all his life? I am just...