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I am SO happy for you. What a wonderful thing to read, I was kind of down today. I hope you have lots of pictures, Lyn

I got alot of help here before my son's wish trip in November and wanted to come back and pass it on and help others. I was sad to see some of the things here Ray, I'm sorry you were hurt and do come back. I had to let you know that since I was a first time mom who gave birth to a "healthy...

thanks, I know It alway amazes me that it is the most comman birth defect and twice as many kids die of chd as all forms of ped cancer combined, but most people have never heard of it. Do you belong to any CHD online groups? I belong to a couple if you every want the links, just email me. Lyn...

I just wanted to say I am so sorry. I can't imagine how hard this must be for all that love Steve, I will keep everyone in my prayers, Lyn www.caringbridge.org/nj/justinw

Hi I hope it is ok to post this here, if not please take it away. I am trying to get a national Congenital heart defect Awarenss Bill passed and since I knew there were some families here affected by CHDs, I hoped I could get some help w/ this. here is the letter that was sent out yesterday...

We just got back from a week in orlando w/ 2 17 year olds and Siscovery cove was one of the best days of our trip, if not life. we were lucky swimming w/ the dolphins was part of Justin's Wish, for his wish trip, so we got in for free, but it was such a great day we are going to set up a...

WOW we were there some of the same days (16th-22) I wish I knew of others that would be there before we went, I'm glad you had such a great time too, Lyn

Eric Justin has been having that problem w/ alot of things lately, he had his 4th heart surgery in May at a childrens hospital and the gurneys were all to short from him :o) Marie your villa must have been by ours 115. It's funny you mentioned bringing your suit, Justin's wish was to "stay at...

you know Marie, that was actually one thing I felt bad about we went to a few things, because they work so hard to make everything nice, but w/ all the tickets and we went ot discover cove, we were hardly ever in the village, one day we went inbetween parks I reated my back and the boys went ot...

Justin's was the 16th-22 and this is my first time back here,(been busy loading and printing pictures lol) we had a wonderful time and I REALLY have to thank everyone here, IF it was not for this board, Justin's trip would not have been as magical as it was. Luckily Justin is cleared to ride all...

When my son was little I used to write our name and phone number on his diaper when we went places,luckily I don't know if it worked, but I thought someone would have to change his diaper

I got an email from the family that got the Illumination Cruise today, she was emailing the other couple telling then where and when to meet ect and who they would be sharing the cruise w/ I feel bad, but am so grateful the other lady wrote back and said her and her husband have done the cruise...

we're going on my son's wish trip Wed.(I can't believe it is finally happening, we had to postpone it 3 times) and I plan on getting the family presents then, I don't know your price range, but I was thinking of ornaments or snowglobes, if you want I'll let you know what we decide on when we get...

Hi I hope you have fun, my son's class is going there for their senior trip this year too. I don't know if you saw it, but there is a teen board here, they are really helpful, even to moms that pop in to ask advice on the parks,

there is a disability board here and they are really helpful, perhaps some of the suggestion for other conditions that cause meltdowns would work, Lyn

We had planned a trip for last year, but had to cancel. So it seems like we have been looking forward to this for so long. I know what you mean, we had it schedualled 2other times now and had to cancel, Justin STILL doesn't believe it will really happen, he will believe it when his feet hit...

this week all the schools in NJ had a 4 day weekend for teachers convention, it is the same weekend every year,so alot of Nj families go this week, actually we were going to but are going for my son's wish trip and GKTW was full so we are going this wed. Lyn oops I just saw you are from Nj too

here is a link I found when I did a search, i'm sure there is more info http://www.wdwinfo.com/wdwinfo/disabvisual.htm Lyn www.caringbridge.org/nj/justinw

Hi I am assuming since you mentioned she is an only child, it was because you wanted to make sure she would be able to enjoy it when ever and not have to wait for friends to come over, I'm the mom to just one son and took no offense. I think all the suggestions that were given were good, but...

I have a question and I may be completely off base here, but was wonderring if it would be helpful just to show this thread, it would show how much you care and the experiences others have had,Lyn