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-   -   They Almost Went Without ME-Food & Wine, BC, LOTS of Pics-Updated 10/28 (http://www.disboards.com/showthread.php?t=3186137)

disneyfan61 10-14-2013 04:26 PM

They Almost Went Without ME-Food & Wine, BC, LOTS of Pics-Updated 10/28
 
So long story hopefully shortened up a little. This trip was planned a year ago. DH & I went to Food & Wine Festival for the first time in 2011. We skipped 2012 as we went with our sons in May of 2012 after Cody got out of college for the year. So DH & I were really looking forward to it. In May when eating out with my sister & BIL he mentioned wanting to go to Disney again. I told him we are going in Oct. He told me to talk to my sister. Well she hemmed & hawed then said "sure life is too short let's go. Well all my dining reservations & resort were all booked through Lesley at Pixie Vacations (who is awesome). So my sister Diane booked through her travel agent. They were arriving about 1/2 hour after us. And heading home one day before us. The trip was booked for Oct. 4th-11th for us. We got a discount and stayed at Beach Club (our favorite) especially for Food & Wine!! My sis stayed at POFQ & loved it!!

Now there is a story within this story....My BIL has had heart problems & blockages for many many years. Keep that in mind...

I was diagnosed 10 years ago with Ulcerative Colitis. (inflamation & ulcers in the colon). I have been dealing with flare ups off & on (moslty on) for the 10 years. Lots of drugs that are not good for you, make you bloated & hyper & have been hospitalized 4 times now. 2 years ago during a hospital stay my doctor mentioned that I need to start thinking about surgery but started me on a new treatment called Remicade. It is an infusion that I get at the hospital. It started out that I needed to go every 8 weeks. 3 hours in Special Procedures at the hospital.

To make a long story short...This Summer I had some symptoms but a Sigmoid did not show a flare up so was taking Immodium. All along it was the start of a flare up but did not know it until August when it was full blown throughout my whole colon (was usually just one sided & lower). Had Cat Scan, then colonoscopy. Med's did not help & ended up being admitted to hospital on Sept. 6th. Now we were leaving Oct. 4th so in less than a month I had to get over this!!!

Now I text my sister & she says "This trip is jinxing us". Why?? BIL was having chest pain & found out he had a bad blockage that needed to be cleared. His procedure scheduled for Sept 7th. We did not know what was going to happen with either of us. So they were pumping steroid IV fluids into me. On Wed. morning I was a wreck waiting to hear about BIL. The amazing doctor had a heck of a time getting a "piece of thread" through but totally cleared the blockage & he was good to go!!

So I am in the hospital for 7 nights. My sister actually came up from MA to get me & take me home when I was discharged. At home I did not get better & ended up back in the hospital on the 17th. I kept telling my doctor that I WAS going to Fl. His response was "I have not OK'd that yet". And told me I may need emergency surgery in Boston & to get on the phone with my insurance as this was very serious!!! Well after 4 nights I was doing so much better. Had my infusion (which is now every 4 weeks & higher dose) to get me into remission. After that I started to get better & improved with each passing day & YES I MADE IT TO DISNEY!!!

Sorry to go on & on but had to explain the trip title part about them going without me...So the cast of characters are...My DH Jeff, Sister Diane, Brother in Law Bert, & myself who does all the planning & Disney addict.

http://i108.photobucket.com/albums/n...1/IMG_2986.jpg

Will try to update more later....








KatMark 10-14-2013 05:47 PM

I'm here; be back later to read (too hard on my phone).

jedijill 10-14-2013 05:49 PM

Wow! You guys really deserved a trip to Disney after all that drama! Glad both you and your BIL had good outcomes!

Jill in CO

Minnie&Nana 10-14-2013 05:55 PM

So happy you made it to Disney....and now delighted you decided to do a TR! :)

wiigirl 10-14-2013 06:09 PM

Following along! :)

disneyfan61 10-14-2013 06:11 PM

Quote:

Originally Posted by KatMark (Post 49826575)
I'm here; be back later to read (too hard on my phone).

Hi Kathy. Glad you are here & number 1!!

Quote:

Originally Posted by jedijill (Post 49826596)
Wow! You guys really deserved a trip to Disney after all that drama! Glad both you and your BIL had good outcomes!

Jill in CO

Welcome Jill!! Thank you. I was just so glad my body started responding to the med's. My doc. was not so sure at first.

Quote:

Originally Posted by Minnie&Nana (Post 49826637)
So happy you made it to Disney....and now delighted you decided to do a TR! :)

Hey Christine. It was fun "talking" to you while we were there. Hopefully you enjoyed all the pics I text to you. Now you can see all the pics I took with my camera & not my phone. We have stories & some "firsts" for us so stay tuned....

natebenma 10-14-2013 06:37 PM

I'm in!!!

How scary about what you and your family went through before the trip! Glad that you are feeling better and hoping that it just keeps improving!

Can't wait to read about your adventures.

javamom 10-14-2013 08:51 PM

Subbing!

englishrose47 10-14-2013 09:06 PM

I'm here Doreen!!

englishrose47 10-14-2013 09:11 PM

Poor you!!!My mother suffered with the same thing and ended up with an ileostomy when I was 12 !! Let me tell you treatment and surgery and equipment have come a VERY long way since then. So glad modern medicine has stabilized you and you ot to enjoy Disney!!!

Happy Elf 10-14-2013 09:45 PM

I'm here and looking forward to hearing about your well deserved trip!

disneyfan61 10-14-2013 09:54 PM

Quote:

Originally Posted by natebenma (Post 49827031)
I'm in!!!

Can't wait to read about your adventures.

Hi Dee! So glad to have you here. Of course we stayed at my favorite resort of all the beautiful Beach Club. I just love it there so much!! Stay tuned..

Quote:

Originally Posted by javamom (Post 49828145)
Subbing!

:welcome: Steph. Happy to have you here.

Quote:

Originally Posted by englishrose47 (Post 49828284)
I'm here Doreen!!

Quote:

Originally Posted by englishrose47 (Post 49828331)
Poor you!!!My mother suffered with the same thing and ended up with an ileostomy when I was 12 !! Let me tell you treatment and surgery and equipment have come a VERY long way since then. So glad modern medicine has stabilized you and you ot to enjoy Disney!!!

Hi Rosie. Not much longer for your trip.:cool1: Yeah I am having 2 surgeries probably after the first of the year. Hopefully after the 2nd surgery and they have reconstructed I will be a different person.

Quote:

Originally Posted by Happy Elf (Post 49828616)
I'm here and looking forward to hearing about your well deserved trip!

:welcome: Janelle. Hope to start the trip tomorrow after my infusion.

KatMark 10-14-2013 09:55 PM

I'm back. Having followed on FB, I knew how much you needed this trip after all you went through at the hospital and your health. I don't think I knew about your brother-in-law being ill, but so glad that worked out.

Can't wait to hear about this deserving trip.

disneyfan61 10-14-2013 10:00 PM

Quote:

Originally Posted by KatMark (Post 49828735)
I'm back. Having followed on FB, I knew how much you needed this trip after all you went through at the hospital and your health. I don't think I knew about your brother-in-law being ill, but so glad that worked out.

Can't wait to hear about this deserving trip.

Hi Kathy. We were posting at the same time. Yeah I was just so afraid that I was not going to make this trip. And of all the trips I ALWAYS take the trip insurance but did NOT for this one. I will never again NOT get trip insurance. You just never know. Yeah my BIL has had heart issues for many many years. I was a little worried about him on some rides that he insisted on going on but he was ok. RNRC was the only one that got to him & he wanted to do Space if we did it but I am getting too old for that last hill that gets me in the groin every time so Jeff & I decided not to do it so Bert & Di did not do it either. I think we ran them a little ragged though ;). Stay tuned..

I am having my infusion again tomorrow & then tomorrow night will actually get this started.

uncw89 10-14-2013 10:53 PM

I'm here! I'll try to keep up!


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