The DIS Discussion Forums - DISboards.com

The DIS Discussion Forums - DISboards.com (http://www.disboards.com/index.php)
-   Coping and Compassion (http://www.disboards.com/forumdisplay.php?f=149)
-   -   Well, Merry Freaking Christmas to me (http://www.disboards.com/showthread.php?t=1302011)

Shugardrawers 12-18-2006 04:05 PM

Well, Merry Freaking Christmas to me
 
I'm finishing off the year with news of a relapse. I just don't know what to say beyond that yet. I'm still processing this. I'm tired. I'm just really tired.

safetymom 12-18-2006 04:20 PM

:grouphug: :grouphug: :grouphug: I am so sorry to hear this. Please know you can come here to vent.

Shugardrawers 12-18-2006 04:25 PM

I try to be a realist about this but that doesn't stop me from getting my hopes up. Each time I relapse the diagnosis is more grim. Unless I can get into a clinical trial at Johns Hopkins for both laser surgery and medication my doctor feels 6 months is optimistic. Even if I can get into those trials, there's no guarantees.

Wish I lived in Fl 12-18-2006 04:50 PM

I am sorry for the bad news. Prayers said. I hope you are accepted to the Johns Hopkins study.

safetymom 12-18-2006 05:04 PM

Yes I hope you are accepted to the study. I will keep you in my prayers.

JunieJay 12-18-2006 05:35 PM

First and foremost, I am so sorry that you got this bad news. :(

Next, what will it take for you to get into the clinical trial at Johns Hopkins? Is there some sort of waiting list, how does it work?

From what I know of you here on the DIS boards, you've been a really amazing trooper. You're in my prayers. Keep us posted. :grouphug:

Shugardrawers 12-18-2006 05:38 PM

In my favor, I'm relativly young at 42 for having primary peritoneal cancer and otherwise extremely healthy. This makes me an ideal candidate for any kind of study they can come up with. In fact, some researchers have fought over me :rolleyes: If anyone qualifies, it's me. It'll be after the first of the year but I'll know more soon. Thank you all.

JunieJay 12-18-2006 05:41 PM

Quote:

Originally Posted by Shugardrawers
In my favor, I'm relativly young at 42 for having primary peritoneal cancer and otherwise extremely healthy. This makes me an ideal candidate for any kind of study they can come up with. In fact, some researchers have fought over me :rolleyes: If anyone qualifies, it's me. It'll be after the first of the year but I'll know more soon. Thank you all.

Well thats encouraging.

I live near Johns Hopkins, want me to go up there and give them the what for? :p I will, you just say the word. :p

Either way, I'll be following your posts and certainly keeping you in my prayers. :grouphug:

Mackey Mouse 12-18-2006 05:41 PM

OK.. I want to say bad words here but of course I cannot as they will not pass the filter and then being the mod here that would not be appropriate..

But Gosh darn it, I am so angry over this.....OK....Shugar, please know we are praying for you here.. I do not know what to say.. This disease is so bad, it tricks you into thinking you beat it, you are fine.....it gives you a few months of hope and feeling good and then it smacks you down again.

I know what a relapse means.. each time you do battle again with chemo hoping that this time it will kill all those cancer cells, knowing full well that each time you have a reoccurrence, your chances get slimmer and slimmer.. I understand, and feel your frustration. Just gear up and start working on those trials at Johns Hopkins.. try to get in.. what else can you do??

Hugs to you tonight.. I am not sure what else to say here except know that you are in my prayers. I am without words and pretty angry and questioning yet again.....Why??

bytheblood 12-18-2006 06:25 PM

:hug: Prayers being said! For comfort and the study!!

Cherry 12-18-2006 07:09 PM

I am so sorry you have to go through this. I don't know what else to say. You are in my prayers. From the posts of yours that I have read, I know you are an amazing person, and you will continue to fight your way through this. I hate this disease, it just wears you down. I am praying that you will get into that trial.

Blueeyes101817 12-18-2006 08:50 PM

:grouphug:

minkydog 12-18-2006 08:58 PM

NOOOoooooo :sad: Not fair! I am so sorry to hear this. You were doing so well. I hope JH can take you very soon. :grouphug: Here's a hug, it's all I've got, but you can have it.

Jake & Crew 12-18-2006 09:11 PM

I know how tired you feel, the night before Thanksgiving at a 5pm appt I was told that we were back "in the game". I felt wiped beyond belief. Sat in the parking lot and cried. Then put on my "strong side" for the kids.

Well here we are a few weeks later and this week the rollercoaster is up. I am doing a 5 day treatment, the CT scan is showing it localized and if the treatment does what it is supposed to we will be back on track.

What I am trying to say is scream, yell, cry, sleep for a day to work off the tired feeling then for your own well being be positive! I will pray for you, as I am sure many will. You will be in that program, I just know it!! :grouphug:


My positive thoughts and prayers I am sending out to you!!!!

yecats 12-19-2006 12:41 AM

:grouphug: Your in my prayers and wishes for you to get in the program and kick the s#&t out of the cancer.


All times are GMT -5. The time now is 11:09 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright 1997-2014, Werner Technologies, LLC. All Rights Reserved.