They JUST sent the referral on Thursday. I found out that today when I called them. I asked for the number of the doctor so I could call and schedule, and the number they gave me just went to the main operator at UF Shands, our large University hospital and doctors offices where all the specialists are. I just hung up because I had no name and wasn't even sure the official name of the specialist. If they don't call me in the next couple of days to schedule, I will call back (to PCP) and insist on a name. I'm annoyed that it took them an entire month to send the referral at all.
The fact that my PCP told me I would probably be on dialysis in within a couple of months, at the rate my kidneys failed, is also bothering me. I don't think she was correct, after talking to so many others, including here. I believe it's more likely something that can fixed in another way. I did start taking Priosec again today, despite knowing it's a kidney killer. Two weeks without it and I was ready to die. The more kidney friendly GERD meds were not helping and I was taking half dozen per day. I decided I couldn't take the pain anymore and one Priolosec a day can't be worse than 6 of the others. I'm comfortable tonight for the first time in weeks.
I've also been sticking to the National Kidney Foundation diet, with under 1000 mg sodium, 800 mg Phosphorus, 2000 mg Potassium and limited calcium and protein. I feel so confused because the two times I've been in the hospital, I've had potassium deficiencies and been put on IVs of it. I've also been prescribed Calcium tablets due to early osteoporosis in my spine and one hip. I feel like I'm damned if I do, damned if I don't. I have no idea what I'm supposed to be doing, really.