Suggestions for trip

sunflowerfields · Jun 30, 2015

We will be flying to Disney in May with a power wheelchair so all this info is helpful to our family too. I am so happy that you are going back to Disney and wish you a fun filled wonderful trip!

ember303 · Jul 12, 2015

Michy said:
hi,
I thought I would introduce myself and group that will be traveling in October. We are going to be trying to do a redo of my make a wish trip. As when I had my wish I was really not medically stable. I was having 25+ seizures a day.
So with that I have no memory of the trip at all, and my mother didn't take much photos as she was trying to deal with me and my little sister who also had slot of issues while we were there. This time around now that it's been 15 years since my trip my best friends and husband have decided it's best to do it now while my seizures are more under control and before I get any sicker.

I have mitochondrial disease, which has caused me to have cerebral palsy, epilepsy, vision impairment ( legally blind), speech impairment, multiple allergies, chronic pain and autism (PDD-NOS). My husband has aspergers, spina bifida but is able to walk.

So far we arrive on Saturday October 24th and leave October 31st at night. We are staying at the art of animation resort.

We are taking our sons make a wish trip in the beginning of October! We have stayed at art of animation in a little mermaid room, and also in a cars suite! Both where amazing! We loved each room so much!!!!! I hope you have a fun trip!

Michy · Jul 30, 2015

Now that we are just under 3 months til our trip, I need a bit more help figuring out stuff. Due to both mine and my husbands forms of autism we get over whelmed easily. Dose anyone have ideas on how to help with suggestion on ways to minimize the anxieties. I know I will be trying to make a small booklet with a general outline of what is happening each day but not sure that will be enough. And also trying to figure out if I should bring my voca ( voice output communication aid) or just my word power board. As I also use motified sign language to communicate with those who know me.

gap2368 · Jul 30, 2015

I would take breaks if crowds bother you I think what ever you use to communicate with people on a daily bases is what you should bring with you and maybe have a few had written things that you are likely to ask like. Where is the restroom things like that

chrysdrew · Aug 2, 2015

My daughter and son both have mitochondrial disease. I hope you have a great time.

Suggestions for trip

sunflowerfields

Mouseketeer

ember303

Mouseketeer

Michy

Earning My Ears

gap2368

DIS Veteran

chrysdrew

Part of THAT World

Share this page

DIS NEWS & UPDATES

New DISboards Threads

Latest posts