luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
squeegee - Just wanted to wish you all the best tomm. and I hope the side effects from the rai are bearable. Prayers for you!!
The THYROID Thread
- Thread starter Christine
- Start date
squeegee
DIS Veteran
- Joined
- Sep 8, 2011
Thank you!squeegee - Just wanted to wish you all the best tomm. and I hope the side effects from the rai are bearable. Prayers for you!!
I'm just really glad that this is almost over, and praying for some goooood uptake on the WB scan they'll do afterwards.
1grumpy, did you mention Nashville?
i went there for a civil war tour end of April.
lovely city and enjoyed everything there.
squeegee, i went back and read your post on the back page.
yes, tomorrow is tuesday and i know where you will be tomorrow
have you in my prayers.
everything will go fine.
i'm thinking positive for you and hope it won't be too hard on you.
do let us know how you are doing whenever you feel like being on the computer.
we all care very much about each other here.
i went there for a civil war tour end of April.
lovely city and enjoyed everything there.
squeegee, i went back and read your post on the back page.
yes, tomorrow is tuesday and i know where you will be tomorrow
have you in my prayers.
everything will go fine.
i'm thinking positive for you and hope it won't be too hard on you.
do let us know how you are doing whenever you feel like being on the computer.
we all care very much about each other here.
luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
squeegee - I hope you are resting as much as possible as the rai does its job. Thinking of you and praying for you.
Well sadly our Disney trip has been cancelled.
I was having pain in my R leg since last week and last night it was so swollen and I had ds3 look at it and on sun. I could hardly walk part of the day.
Well they did a vascular doppler and found out that I have a medium occluded blood clot from my R leg mid thigh to my knee. So now I am on xeralto and I have to call and make an appt for the vascular surgeon to see me asap.
squeegee- I saw your detailed spreadsheet for your trip. Mine was on a piece of notebook paper and I couldnt believe how quickly we cancelled it. The only issues are probably I wont get my moneys worth out of my ap, oh well such is life and then we are stuck with southwest airline credits to next trip and we got dh ff miles put back from the swan room and they waived the fee since he is a premium member and I cancelled the room and dining online.
Oh well, disney will always be there but my health is more important. Dh leaves for Calif. tomm. Perfect timing, lol.
Well sadly our Disney trip has been cancelled.
I was having pain in my R leg since last week and last night it was so swollen and I had ds3 look at it and on sun. I could hardly walk part of the day.
Well they did a vascular doppler and found out that I have a medium occluded blood clot from my R leg mid thigh to my knee. So now I am on xeralto and I have to call and make an appt for the vascular surgeon to see me asap.
squeegee- I saw your detailed spreadsheet for your trip. Mine was on a piece of notebook paper and I couldnt believe how quickly we cancelled it. The only issues are probably I wont get my moneys worth out of my ap, oh well such is life and then we are stuck with southwest airline credits to next trip and we got dh ff miles put back from the swan room and they waived the fee since he is a premium member and I cancelled the room and dining online.
Oh well, disney will always be there but my health is more important. Dh leaves for Calif. tomm. Perfect timing, lol.
LMP, i'm so sorry this medical condition has happened to you!
i have been through that, it happened to me 15 years ago.
had surgery 3 days after the diagnose and healed up in time.
stay off your feet if you can and keep your leg elevated.
you are very lucky to have a RN son that help you with this.
and sorry to read your trip is cancelled.
don't be sad.
there will always be another trip to the motherland.
squeegee, i am assuming you are resting but do know i am thinking about you.
prayers for both of our friends here.
i have been through that, it happened to me 15 years ago.
had surgery 3 days after the diagnose and healed up in time.
stay off your feet if you can and keep your leg elevated.
you are very lucky to have a RN son that help you with this.
and sorry to read your trip is cancelled.
don't be sad.
there will always be another trip to the motherland.
squeegee, i am assuming you are resting but do know i am thinking about you.
prayers for both of our friends here.
- Joined
- Aug 3, 2004
Luv, I am so sorry, but in a good way thank goodness that happened at home, and like Macraven said , glad you have your son.. They run in my family, so I have to be so cautious.. My father and sister have had 5 or 6 each.. Please be careful, and do as suggested... ..Your trip can be rescheduled, your heath is paramount.. I know you know that
Today, by Synthroid was bumped up FINALLY to 75mg.. My Doctor said that once my dosage is found my hair will stop falling out.. I hope so..
....
I have to go this week for an U/S of my hand from my fall, he is sure I tore some ligaments.. I can't make a fist, or hold/grasp anything.. He thinks I need hand surgery.. I had such a sore shoulder, so he popped it back in.. I have EDS< and it was popped out, and this time I was unaware.. UGH..
Well, the weather is warming up, and hoping I can swim soon..
Hugs everyone..
Today, by Synthroid was bumped up FINALLY to 75mg.. My Doctor said that once my dosage is found my hair will stop falling out.. I hope so..
.... I have to go this week for an U/S of my hand from my fall, he is sure I tore some ligaments.. I can't make a fist, or hold/grasp anything.. He thinks I need hand surgery.. I had such a sore shoulder, so he popped it back in.. I have EDS< and it was popped out, and this time I was unaware.. UGH..
Well, the weather is warming up, and hoping I can swim soon..
Hugs everyone..
momma, super that you now get to increase your synthroid!
i think you will feel the difference of the increased dose to be very beneficial.
i take synthroid and it has been the best med for me.
i started it 26 years ago and have it upped and decreased over the years.
once i was lowered from 2. mg down to 150 mg to 125 level, it was a perfect match for me.
my brother feel on nye evening and used his hand to brace himself when he fell.
it was the hand or his face, so he made the right choice.
within 24 hours he was in the er with a hand swollen twice its size.
long story short, didn't see a doc after he was released from the ER (who diagnosed him with sprained wrist, broken finger).
ended up 9 days later with a surgeon doing new xrays.
broken wrist and fingers, surgery and a plate with screws in the arm now.
he still is in PT 3 times a week and still does not have movement more than his thumb.
their goal is to get him to a point to grasp a pencil, make a fist, etc.
he is almost 6 months out from when this injury began and is looking at a full year of PT.
if you are still swollen and can't make a fist or grasp anything, see a surgeon ASAP...
i'm sure you are frustrated about limited use of the hand.
not easy doing everything with only one hand.
i think you will feel the difference of the increased dose to be very beneficial.
i take synthroid and it has been the best med for me.
i started it 26 years ago and have it upped and decreased over the years.
once i was lowered from 2. mg down to 150 mg to 125 level, it was a perfect match for me.
my brother feel on nye evening and used his hand to brace himself when he fell.
it was the hand or his face, so he made the right choice.
within 24 hours he was in the er with a hand swollen twice its size.
long story short, didn't see a doc after he was released from the ER (who diagnosed him with sprained wrist, broken finger).
ended up 9 days later with a surgeon doing new xrays.
broken wrist and fingers, surgery and a plate with screws in the arm now.
he still is in PT 3 times a week and still does not have movement more than his thumb.
their goal is to get him to a point to grasp a pencil, make a fist, etc.
he is almost 6 months out from when this injury began and is looking at a full year of PT.
if you are still swollen and can't make a fist or grasp anything, see a surgeon ASAP...
i'm sure you are frustrated about limited use of the hand.
not easy doing everything with only one hand.
1Grumpy9
DIS Veteran
- Joined
- May 2, 2011
Yes I did...My mom and I go every June to CMA MusicFest. We have made that trip (driving) from PA to TN every year for the past 18 yrs. We love going and love the city. It is also nice that I get to see my good friend that lives in Chattanooga during the trip. We meet up for dinner one night at one of our favorite restaurants around midpoint for both of us. We have found some great restaurants while there that we don't have here in PA or are a local restaurant that we like to go to while we are there.
An update on this Natpara saga...I got my shipment yesterday (because the specialty pharmacy was screwing around with full filling my order) and I have to wait until June 2nd for the nurse to come show me how to administer it. Then within 7 days I have to go back to get labs drawn to see where we are at with the injections. After 14 days the nurse comes back to follow up on how I am doing with the injections. Once I get started on it, I will post an update.
luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
mommasita - I hope you get answers from your ct scan. I know EDS is a cousin to Marfans syndrome. My sister passed away from that. I still think my boys, the oldest 2 have more eds symptoms. The one had a dislocated knee several times and the one had knee surgery too. The surgeon saw he never saw tissue like that before,spongy. The one ds breaks his bones very easily,but I think some of that is long term steroid use for his asthma. Do you have any symptoms like that since I dont know much about eds compared to marfans.
Hope your new synthroid dose makes you feel better
macraven - how are you doing post surgery. Has the swelling decreased. When do you see the surgeon?
Igrumpy - I am sure you will be glad to start your med. Hope you get good results.
squeegee- I am sure you will be happy to go home tomm. Hoping you are enjoying some regular food as best you can.
I am getting bored keeping my leg up. I have an appt. with the vascular surgeon next thurs. The er told me it was suppose to be 3-5 days, yeah right. Then they want me to see someone in internal medicine. I told them there is no way I am going back to the one dr. I had. She might be a John Hopkins grad but she has a terrible personality so they gave me someone else. They want me to see someone before next thurs. Even ds agreed it was too long to wait . So instead of disney next week, its doctors and doctors and now dh called me and some problems happened that he will need to straighten out at work next week, so I guess its all for the best. sigh. and more sigh.
I tried walking to the mailbox and felt a sharp pain in my leg.
Hope your new synthroid dose makes you feel better
macraven - how are you doing post surgery. Has the swelling decreased. When do you see the surgeon?
Igrumpy - I am sure you will be glad to start your med. Hope you get good results.
squeegee- I am sure you will be happy to go home tomm. Hoping you are enjoying some regular food as best you can.
I am getting bored keeping my leg up. I have an appt. with the vascular surgeon next thurs. The er told me it was suppose to be 3-5 days, yeah right. Then they want me to see someone in internal medicine. I told them there is no way I am going back to the one dr. I had. She might be a John Hopkins grad but she has a terrible personality so they gave me someone else. They want me to see someone before next thurs. Even ds agreed it was too long to wait . So instead of disney next week, its doctors and doctors and now dh called me and some problems happened that he will need to straighten out at work next week, so I guess its all for the best. sigh. and more sigh.
I tried walking to the mailbox and felt a sharp pain in my leg.
- Joined
- Aug 3, 2004
Oh my, did they tell you no walking at all? With my Dad and my Sis it was NONE.. Actually they were both hospitalized each and every time, and it was zero movement. Please be careful...
I tear everything... In the past 2 years I tore my rotator cuffs (both sides, my achilles.. I don't seem to be overly flexible, but have very weak joints.. I do sublax, not totally dislocate..
This is my own fault.. I fell in December, and you know, thought it was ok.. Went for Xrays, no fracture, and since I have a few auto immune, just thought I was healing slowly, etc... Now I realize it has to be tendons... Today I did the Xrays, and this week will do the U/S privately... Good system here, but strange, as I go private, it is hard to explain..
squeegee
DIS Veteran
- Joined
- Sep 8, 2011
I just got home today, gonna do 5-7 more days in home isolation. So far, so good, but already cant taste most salt. Aside from the food, the hospital stay wasnt too bad. WBS scheduled monday.
If you dont mind me asking - where are you going for your vascular consut? I do vascular ultrasound for one of the largest and best vascular surgery groups in texas and would be happy to offer any not-a-doctor help that i can.
squeegee
DIS Veteran
- Joined
- Sep 8, 2011
Just had the whole- body scan, and for once, It's all good news. Uptake where expected, in amounts expected. Bloodwork good. And the Dr. says I am "absolutely" clear to rejoin general population, with Little monster. In an excess of caution, I will still sleep alone for a while, and will keep a bathroom to myself for a few more days, but no other restrictions. Am so relieved! I don't have to go back for six more months!
LMP - any news on the vascular front?
LMP - any news on the vascular front?
- Joined
- Aug 3, 2004
luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
squeegee - that is very good news. I am so happy for you. Praying for you.
macraven - how is your recovery going?
christine - I amreading alot since I am suppose to take it easy. Just won 2 more books from goodreads.I ts amazing how much you can read in the emergency room,lol!
Well I went back to the emergency room on sun. Ds3 and dh took me. Ds3 left after a while. I wanted him there to answer any questions from the previous er visit. I freaked out because I was peeing blood. Its better but a side effect of the med and my side hurt too. So they did a ct scan of the lungs and stomach because that was hurting too to make sure the clot did not travel. I had iv problems and it looks like someone got into a fight with me with the black and blues, lol.
Oh and today I was suppose to go to the internist. They cancelled it on me!! And now I am suppose to go tomm. I looked up the drs. name on the website and its listed nowhere. We shall see what happens tomm. I am glad I was in the er yest as that would have been just more days without someone following up with me.
squeegee- I go to a univ.teaching hosp. I looked up the vascular surgeon dr. they are giving me, you cant really pick one unless another dr. specifically asks for one for you or if they are new etc. So my guy speaks chinese and mandarin and guess what...He is an Aggie!!! Hmm, Aggies arent bad right. We shall see. His scope is very impressive. He is very into artery grafts etc.
What would they even do with me, just monitor me with the blood thinner, put a stent in? I am concerned about it breaking off and going to my lung. Its pretty big. Mid thigh to knee. My r lower leg still hurts but some blood supply is getting down there they said.
macraven - how is your recovery going?
christine - I amreading alot since I am suppose to take it easy. Just won 2 more books from goodreads.I ts amazing how much you can read in the emergency room,lol!
Well I went back to the emergency room on sun. Ds3 and dh took me. Ds3 left after a while. I wanted him there to answer any questions from the previous er visit. I freaked out because I was peeing blood. Its better but a side effect of the med and my side hurt too. So they did a ct scan of the lungs and stomach because that was hurting too to make sure the clot did not travel. I had iv problems and it looks like someone got into a fight with me with the black and blues, lol.
Oh and today I was suppose to go to the internist. They cancelled it on me!! And now I am suppose to go tomm. I looked up the drs. name on the website and its listed nowhere. We shall see what happens tomm. I am glad I was in the er yest as that would have been just more days without someone following up with me.
squeegee- I go to a univ.teaching hosp. I looked up the vascular surgeon dr. they are giving me, you cant really pick one unless another dr. specifically asks for one for you or if they are new etc. So my guy speaks chinese and mandarin and guess what...He is an Aggie!!! Hmm, Aggies arent bad right. We shall see. His scope is very impressive. He is very into artery grafts etc.
What would they even do with me, just monitor me with the blood thinner, put a stent in? I am concerned about it breaking off and going to my lung. Its pretty big. Mid thigh to knee. My r lower leg still hurts but some blood supply is getting down there they said.
squeegee
DIS Veteran
- Joined
- Sep 8, 2011
I'm not a doctor, and none of this may apply, but I can provide some general info.
Arteries and veins are different parts of the vascular system. Arteries take the blood out to the limb, veins are the return. Usually a "clot" is referring to thrombus in a vein. Arteries can block off, too, but it's usually something they would call atherosclerosis or an emboli or ischemic event.
There are two basic parts of the venous system - a "superficial" and a "deep" system. The superficial system feeds into the deep system, which returns to the lungs.
I think what you've said is they found a DVT - deep vein thrombosis.
Treatment options can depend on the age of the clot (chronic vs acute), the extent of it, whether it's completely occluding the vein or not, location of it (proximal or distal), and other health problems/coagulation issues.
They can lyse it with catheter-injected chemicals directly, which is the usual treatment for acute dvt, as I understand it. From what I know, this only works on "fresh" clot. They can put filters in the inferior vena cava (the big "trunk" vein) to trap any clots that break off and prevent them traveling to the lungs. They can do oral drug treatment/thinners, usually on subacute/chronic clot. Stenting is usually reserved for recurrent clot, or clot that has caused more severe damage to the vein wall. Vein bypass surgeries are pretty rare, though not unheard of, whereas arterial bypass surgeries are fairly common. There may be other treatments that I'm not aware of, of course.
Superficial venous thrombus usually doesn't get much beyond monitoring to make sure it doesn't extend into the deep system, and compression/elevation to manage swelling. Of course, they usually run blood work to check for problems that cause your blood to clot abnormally, as well, but they can't always find a specific cause.
If you're saying mid-thigh to knee, that sounds like the femoral vein. If it was determined to be acute, I'm very surprised they let you leave without immediate treatment. If it was not acute, it would look different on the ultrasound and some physicians might be okay with a little delay in treatment. I totally understand being afraid of something breaking off and going to your lungs. Not to frighten you, but pay close attention to your body and take a "better safe than sorry" approach with this. If you have chest pain at all, or if pain/swelling worsens, get thee to the ER. Keep us posted.
LMP
everything that squeegee said made sense to me.
when mine happened, ended up with the vein stripping. happened quickly, at the doc and then to the hospital then surgery next day.
not my choice of treatment.
my recovery was icky.
i would think that since they released you from the er and not admitted you, your meds will likely help dissolve the clot.
are you wearing the pass the thigh compression hose?
everything that squeegee said made sense to me.
when mine happened, ended up with the vein stripping. happened quickly, at the doc and then to the hospital then surgery next day.
not my choice of treatment.
my recovery was icky.
i would think that since they released you from the er and not admitted you, your meds will likely help dissolve the clot.
are you wearing the pass the thigh compression hose?
squeegee
DIS Veteran
- Joined
- Sep 8, 2011
LMP
everything that squeegee said made sense to me.
when mine happened, ended up with the vein stripping. happened quickly, at the doc and then to the hospital then surgery next day.
not my choice of treatment.
my recovery was icky.
i would think that since they released you from the er and not admitted you, your meds will likely help dissolve the clot.
are you wearing the pass the thigh compression hose?
Vein stripping is very rarely done anymore, at least at our practice, and really only on superficial system veins, from what I understand.
It's a lot of information to absorb, and there are so many variables. I'm glad to hear they're getting you to a vascular specialist, LMP, though, instead of a cardiologist. They should stick to hearts. LOL.
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