The THYROID Thread

I just found this thread. I'm going for a FNA on Tuesday (weather-permitting, most likely... darn Massachusetts snowstorms). I had an appointment with my PA about a month ago (she is fantastic) because I had been feeling a bit overwhelmed (my job was stressing me out, I was in a car accident in November and miraculously just got some scratches and bruises, almost lost my 18-year-old cat (yup, she's made a miraculous recovery - she was just being a brat while my parents were on vacation and stopped eating for over a week despite a two-day stay at the emergency vet) and am seeing my grandparents deteriorate very quickly) and VERY tired - sleeping 8+ hours a night, drinking lots of water, getting ample exercise (I go to the gym just about every other day and have lost 80 pounds since I graduated college 3 and a half years ago) and still wanting to do nothing more than lay on the couch at night/on the weekends.

Anyway, my PA found a lump, ordered some blood work (all of which came back normal, apparently - even my vitamin D which was 54, up from about 12 four years ago) and an ultrasound. I went for the ultrasound two weeks ago and I have an enlarged thyroid, multiple cysts and a 3.5 cm nodule. I know there is absolutely something going on so naturally I am a bit freaked out. I am also incredibly freaked out at the thought of multiple needles in my throat (I don't particularly do well with needles anyway - I'm better if I can't see them, but I have a feeling there will be no looking away from these needles. I also don't know anything about the endocrinologist I've been referred to - only that my mother's endocrinologist is in the same office - and that is also making me quite nervous.
 
Allison just wondering if you are the same Allison who posted a few years back about kerataconus and driving to Hofstra? Is that you or maybe I have you mixed up with another Allison.

The fna is not all that bad. Just try to stay as still as you can.

Its good you are having this taken care of. Treat yourself to starbucks etc. after your fna.

The worst part is waiting for the results. It should be about a week and if its more than that I would def. start calling whoever did your biopsy.

Can you go to your mom's endo if it is someone she likes and trusts if you are concerned about the one you have been referred to?

Its great that you lost all that weight. Congrats!

Wishing you all the best and let us know how it goes.
 
luvmarypoppins said:
Allison just wondering if you are the same Allison who posted a few years back about kerataconus and driving to Hofstra? Is that you or maybe I have you mixed up with another Allison.

The fna is not all that bad. Just try to stay as still as you can.

Its good you are having this taken care of. Treat yourself to starbucks etc. after your fna.

The worst part is waiting for the results. It should be about a week and if its more than that I would def. start calling whoever did your biopsy.

Can you go to your mom's endo if it is someone she likes and trusts if you are concerned about the one you have been referred to?

Its great that you lost all that weight. Congrats!

Wishing you all the best and let us know how it goes.
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Yes, that's me! I graduated from Hofstra back in 2011 with a degree in print journalism (ha..) and am still managing the keratoconus very well with hard contacts. Thanks for the kind words! I will definitely be treating myself afterwards (I have to head to the Apple Store after to get my laptop looked at - it won't turn on - so I will be stopping by the Pinkberry in the mall for a frozen yogurt!) and hopefully the waiting won't be too terrible.
 
Well I went for my blood work Hmm, I guess I was the only one with an appt. I even got there 10 minutes late. The place was packed. Dh said when I went in some older lady said - why did they take her first, I have been sitting here a long time, what do they want me to do, cry? I need to get these tests done etc. Gheesh, I guess no one knows that the appts are available on line.

Then I got the bone scan. I was the only one in the place. This is a new co, who bought out the old one. Somehow I dont think this place will be in business soon. I can go somewhere else but the other place is always crowded and terrible parking. My tech was nice.

Now today the endos office called and wants to know where my test results are. I will call them back tomm. Oh and I a sure they wont be happy that I didnt get the sono, well she said she only wants it every year when I wanted it at 6 months and I had one in August. I will get it soon depending on when someone can take me.

I am getting butterfly . Always happens before the visit.

Alison - My ds is gong to a new dr. for the kerataconus. He needs to make a recheck appt. He does not do well with contacts. He had a corneal abrasion from the last ones so he refuses to try them again. Hope you are able to get the fna tomm. despite this terrible weather you are all having up there. Wishing you all the best.
 


luvmarypoppins said:
Alison - My ds is gong to a new dr. for the kerataconus. He needs to make a recheck appt. He does not do well with contacts. He had a corneal abrasion from the last ones so he refuses to try them again. Hope you are able to get the fna tomm. despite this terrible weather you are all having up there. Wishing you all the best.
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Thanks! I shouldn't have much of an issue getting there - the roads are pretty decent in my city and they didn't close or delay schools, so it shouldn't be horrible. Unfortunately we got the call at 6:30 this morning that my grandfather passed - it wasn't unexpected, but it was sudden - and so that's just adding to my anxiety this morning.
 
Allison - so sorry about your grandfather and I hope you were able to get the fna and that it went ok for you.

squeegee and Angie - hope you are both doing ok.

Well this will be lots of :yay::yay:news. Dh took me to my endo visit today. She said my bp was good, I lost more weight again, that was strange because I was not even trying. My cancer numbers are undetectable. I think she said .2. Right where she wants the tsh. The bone scan showed that the osteoporosis did not change in 2 years so she will not give me a new med. She does want me to see the gastro because of the one med I am on that causes cancerous tumors of the stomach. She still wants me to get the sono of my neck - told her that is coming up. So I dont have to go back till Sept. because she is taking the whole month of August off and going to visit her family in Greece. She always does that.

And in other happy news...ds2 got a job offer. Its the only job he applied for and he went for his 2nd call back interview yest and they made him an offer. He starts tues. Ds3 is doing well in nursing orientation. Its just classroom stuff for 2 weeks. He really wants to get on the floor. Ds 1 still is looking for a job. Its been a long time. Some teams appealed about some bad refs, so now ds team is in the playoffs. So he will be doing that for a little while longer.

Thinking of you all. Check in when you can.
 
Got my surgical pathology report yesterday - they took out 60+ lymph nodes and only three were positive, from levels 2b and 3. I feel like I finally got some good news in this process. ::yes::

I see my endo the 26th to get going on the RAI, and orchestrating all of that, ensuring there's someone to watch my three year old daughter while I go through withdrawal and isolation, is the next headache.

Here's hoping everyone has as good a valentines day as possible! :love:
 


squeegee - that is a really good count! But wowsa that was alot of lymph nodes for sure! Love your count down ticker for your dds first trip. I have never stayed at PO, but it looks lovely. I hope your endo visit goes well. Did you have really strict radiation precautions and diet the last time? I am guessing you are doing the total withdrawl. I have seen the others post here and I couldnt imagine doing that. My rad. onc. is thyrogen only now. I think she said she is like the 4th or 5th biggest user of it in the US so they always have a supply on hand. We will be here to give you some LID encouragement if you need it for sure!!

Angie - thinking of you. Hope all is going well and miss you posting.

Allison - I am sure you are getting anxious waiting for your results and dealing with the bad weather up there. Sending you my sympathy too.

Christine - did you have to go to work in the snow?? I havent been reading alot lately.

Yest. I had a terrible virus or something. I felt so nauseous and had chills, aches etc. Its getting better today. I felt miserable. Dont know where I got it from. I only went to the grocery store and out to eat for dh b day. Maybe there? Not food poisoning but viral type.

Ds3 wants to leave the snow and go to Disney. Oh good my new travel buddy with a nurse discount at the Dolphin to boot! I am sure we will work something out sometime depending on his schedule. Also nurses get paid very well, gheesh!
 
luvmarypoppins said:
squeegee - that is a really good count! But wowsa that was alot of lymph nodes for sure! Love your count down ticker for your dds first trip. I have never stayed at PO, but it looks lovely. I hope your endo visit goes well. Did you have really strict radiation precautions and diet the last time? I am guessing you are doing the total withdrawl. I have seen the others post here and I couldnt imagine doing that. My rad. onc. is thyrogen only now. I think she said she is like the 4th or 5th biggest user of it in the US so they always have a supply on hand. We will be here to give you some LID encouragement if you need it for sure!!
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This doc made an offhand mention that he does thyrogen if the insurance will cover it. I don't know if mine will or not. I did the whole LID and withdrawal last time, yep. It sucked, but I can do it again if I have to. Do you have to do LID with thyrogen?
The part I'm dreading is the isolation. I know my DD is going to try pounding the door down to get to me, and it's going to be heartbreaking. At least my parents will be here - she loves grandma - so hopefully they can keep her occupied for 10 days+.
 
LMP - During the snow day, the government closed; however, anyone under a telework agreement has to work (so the government never really closes anymore). So I teleworked. But honestly, it was an "easy" snow this time. Very powdery and cleared off the roads quickly with one swipe of the plow!!

squeegee-- You have to do the the LID anytime use are using RAI. So if you using Thyrogen but going to have a scan, then you have to do the LID. If you are using Thyrogen but only have a thyroglobulin blood test, then you should not have to do the LID.
 
squeegee - yes I had to do the lid with the thyrogen. My lid was a combo of nih guidelines, thyca guidelines and my rad. onc. own guideline. I couldnt even have tap water, only distilled. And all I can say is than heavens I wasnt at MSK Cancer Center in NYC because they say no bananas and that is all I lived on for breakfast for 2 weeks , I actually only ate oatmeal once or twice, yuck!! The worst part was cooking for my family. It was ok for the first week, but by the second week I actually had them get more take out stuff and eat by themselves in the kitchen because it was psych. getting to me that I couldnt eat the regular food etc.

I did ok with the salads for lunch. For dinners I like to mix up the colors on the plate to make it look more appealing. I would alternate the meat with mashed potatoes, basmati rice and no yolk noodles. Also I used alot of steamfresh vegetables from birdseye with no sauce because they are safe they told me. Desserts and snacks were PB on matzoh, PB (lid safe) with carrots and celery, popcorn in the microwave (plain), I tried christines banana in the oven I think too. Also apple in the microwave with cinnamon, tasted like apple pie. etc.

How strict was your radiation isolation? I cant imagine it with your little one. My dh has a background with it so they were happy and fine. I think he was telling the rad. onc. a thing or two, lol. She said, I dont think scientifically about it like you, I think medically. He was calculating the half lifes and when I would be less radioactive etc. Dh slept on the couch for a week and used our 2nd bathroom. I just had to keep 15 feet away from everyone. I even stayed in the same room as dh. They told me to use the same plate,cup, and silverware for week. I had to wash it in the bathroom sink. Double flush the toilet, let the shower run for 10 minutes etc. She told me if I used a computer keyboard or tv controller to use rubber glove so the sweat wont get on it.
I guess you could actually get out when your dd is sleeping. Glad we didint have any pets too.

I know you will get a good plan in place. Maybe a little countdown thing for your dd would be fun to do to help her understand more.

Thinking of you and we will be here for emotional support!!
 
luvmarypoppins said:
squeegee - yes I had to do the lid with the thyrogen. My lid was a combo of nih guidelines, thyca guidelines and my rad. onc. own guideline. I couldnt even have tap water, only distilled. And all I can say is than heavens I wasnt at MSK Cancer Center in NYC because they say no bananas and that is all I lived on for breakfast for 2 weeks , I actually only ate oatmeal once or twice, yuck!! The worst part was cooking for my family. It was ok for the first week, but by the second week I actually had them get more take out stuff and eat by themselves in the kitchen because it was psych. getting to me that I couldnt eat the regular food etc.

I did ok with the salads for lunch. For dinners I like to mix up the colors on the plate to make it look more appealing. I would alternate the meat with mashed potatoes, basmati rice and no yolk noodles. Also I used alot of steamfresh vegetables from birdseye with no sauce because they are safe they told me. Desserts and snacks were PB on matzoh, PB (lid safe) with carrots and celery, popcorn in the microwave (plain), I tried christines banana in the oven I think too. Also apple in the microwave with cinnamon, tasted like apple pie. etc.

How strict was your radiation isolation? I cant imagine it with your little one. My dh has a background with it so they were happy and fine. I think he was telling the rad. onc. a thing or two, lol. She said, I dont think scientifically about it like you, I think medically. He was calculating the half lifes and when I would be less radioactive etc. Dh slept on the couch for a week and used our 2nd bathroom. I just had to keep 15 feet away from everyone. I even stayed in the same room as dh. They told me to use the same plate,cup, and silverware for week. I had to wash it in the bathroom sink. Double flush the toilet, let the shower run for 10 minutes etc. She told me if I used a computer keyboard or tv controller to use rubber glove so the sweat wont get on it.
I guess you could actually get out when your dd is sleeping. Glad we didint have any pets too.

I know you will get a good plan in place. Maybe a little countdown thing for your dd would be fun to do to help her understand more.

Thinking of you and we will be here for emotional support!!
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I think the thing I missed most during the diet was dairy - butter, cream, milk - all of those are such an important part of my cooking. I can't imagine mashed potatoes with no butter or cream in them. :( I tried that "earth balance" vegan, no sea-salt, no soy "buttery flavored spread", and thought it was one of the foulest things ever. "No butter" means that most veggies are not something I want to eat - except maybe carrots. Plain, raw carrots.
I figure I'll just be eating a lot of fruits and smoothies. LOL. I love oatmeal, too, but it's gotta have half-n-half. Mmmmm.

Isolation was pretty strict last time because DD was 18 months. I imagine it'll be much the same this time. 3 days inpatient, 7 days in my bedroom at home, and then another month or so of sleeping alone (she usually sleeps with me, so this will be the hard part) and trying to maintain a little distance. I am already nervous that she's going to have this cancer in the future, because I must've had it while I was pregnant with her (but didn't know). I will err on the side of caution when it comes to possible exposure for her.

We have a dog, but she's already about 8 years old, so I'm not worried that any exposure to her would cause a problem. I love my doggie, but she'll cross the rainbow bridge before this kind of exposure could cause any problems.

And in case I haven't said it lately, thank you all for your thoughts and prayers. :)
 
just a quick :car: drive by to see how everyone is doing.

i won't mention weather/snow as we all know what it is like at this point.........:sad2:


wish the best for all here, hope all are staying well.
 
Quick hello to let you know DD21 was accepted to Disney College Program! She graduates in May and moves to Florida in August!! We are so happy for her but will really miss her!!! It is her dream to stay after the internship as a full time Disney employee, so I guess we will end up in Florida before long! Lol
 
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SingingMom said:
Quick hello to let you know DD21 was accepted to Disney College Program! She graduates in May and moves to Florida in August!! We are do happy for her but will really miss her!!! It is her dream to stay after the internship as a full time Disney employee, so I guess we will end up in Florida before long! Lol
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WooHoo! I wish I'd been a Disney fan when I was young - all of those opportunities wasted. LOL.
 
singing mom - congrats to your dd!! That is so wonderful. I am sure she will have a great experience. You will def. have to visit her alot!! I see many trips in your Disney future!

Allison - any news on the fna??? Wishing you all the best.

squeegee - hope your visit goes well today and you get a good plan in place.

Christine - reading anything good. I am still reading my cont romance. But I just won 3 books and all the authors contacted me themselves. Awesome! Just got one and she signed it, not my name but best wishes! Its a historical romance so that is next on the list.

macraven - is your avatar health related?

I have 3 meetings this week - thurs, fri and sat, ugh! My dh is off to chicago thurs. and ds1 is going on a job interview, yeah for that and ds2 and ds3 are exhausted from their new jobs.

Thinking of you all. Check in when you can.
 
luvmarypoppins said:
singing mom - congrats to your dd!! That is so wonderful. I am sure she will have a great experience. You will def. have to visit her alot!! I see many trips in your Disney future!

Allison - any news on the fna??? Wishing you all the best.

squeegee - hope your visit goes well today and you get a good plan in place.

Christine - reading anything good. I am still reading my cont romance. But I just won 3 books and all the authors contacted me themselves. Awesome! Just got one and she signed it, not my name but best wishes! Its a historical romance so that is next on the list.

macraven - is your avatar health related?

I have 3 meetings this week - thurs, fri and sat, ugh! My dh is off to chicago thurs. and ds1 is going on a job interview, yeah for that and ds2 and ds3 are exhausted from their new jobs.

Thinking of you all. Check in when you can.
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Thank you! Nothing yet - I have my appointment with my endocrinologist on Thursday. The doctor is very nice, but if it turns out I will need surgery I have the name of a doctor up at Mass Eye and Ear in Boston who specializes in thyroid removal. He is my voice teacher's endocrinologist and he takes extra care of singers. I am already a patient at Mass Eye for my eyes, so I've been going up there for the past 8 years and the doctors are wonderful. I'm pretty nervous about my appointment on Thursday but keeping focused on auditions of a production of Legally Blonde tonight. It's my favorite show and I've been working so hard for these auditions!
 
Saw my endo today. He is planning on radiation, just like last time, but says I have to wait three to four months because I had two CT's with contrast in January. So, am looking at end of May for radiation. Why, oh why, can nothing be simple? LOL.

He was concerned that I am still having pain in my shoulder and wants me to return to the surgeon ASAP. Am trying now to get an appointment with them. Their scheduler is saying they have nothing available until the 17th, and she has to get approval from the Dr and/or his PA to squeeze me in earlier. Grrrrrr. My leave from work expires on the sixth, and I'm still having enough pain I can barely make it through a grocery trip without paying for it dearly later.

I had anticipated the extra healing time from hopping straight into radiation/isolation, but now I've got to get this handled. So fun.

At least they released MVMCP dates, so I can go play with my spreadsheet for a little distraction while I wait for the surgeon's office to call back. :)
 
LMP, well, my avatar is a picture of David in a hospital bed .....but it's not really a health related picture.
it was taken in one of the darkside hhn houses while i was on a tour.
american werewolf in london was the house theme.
i am standing with a gentleman that has done some creative work with the event.

i've had some health issues and i thought it was my thyroid causing it.
after another MRI, i was sent to a surgeon.

found out, even though i have thyroid (hashimoto) disease, my problem this time isn't the thyroid but my salivary glands.
my neck started to swell last month and have a bulge in the neck.
with the bulge in the neck, the endo redid my labs and said the thyroid is not the problem.
sent me to an ENT surgeon and now i am having salivary gland surgery next thursday.

in a matter of 14 days, i have seen two specialist, had the MRI, had the pre op exam yesterday, labs drawn today
and in the home stretch for surgery next week.

don't laugh but the hardest part of all of this has been going to the doctors and hospital when it has been frigid temps.....
in and out of the car, in and out of a medical building, during the coldest and windy periods in the day. :cold:
 
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