Oh Blue, I am so sorry! Please feel free to PM me directly. It is actually my ex, the E's dad, (GBMIV multiforme to be specific) and then a family friend (who's wife has been battling breast cancer for 12 years which now appears to have metastasized to her lungs). I am more than happy to share what we did with my ex, I do truly believe in his case that supplements made all the difference in the world. My approach at the time was, what could it hurt? There is such a challenge with the blood/brain barrier and chemo that it was like, why not. I did a ton of research (shocker I know
) and was pretty active in the American Brain Tumor forum boards (though they can be super depressing) and really came up with a program that for whatever reason, worked. He was given 2 years tops with surgery, radiation and chemo. One year without the chemo. He had one surgery, the tumor was fully encapsulated (which is good) followed by radiation. 4 months later it was back. One more surgery, tumor also fully encapsulated but they took a lot more around it out. He refused to do more radiation and didn't do chemo at all but agreed to do the supplements.
He's still around, it's been I guess 15-16 years now? I'd have to do the math. Sadly he's not made good use of the gift he was given and that's it's own long ugly story but he has definitely beat the odds on the cancer itself. Our friends GBM is much different, with multiple tumors, not encapsulated so they couldn't quite get everything. I don't know what level his is at (III-VI)We are really praying that the radiation and chemo do their thing.
No matter what, there is always hope, and odds are just that. It is possible to be in that small percentage that beats it and attitude, faith and support make all the difference in the world. Doctors jobs are to tell you the statistics. That is all they are, numbers. They are not your mom and don't define her or her situation. Never lose sight of that and it will help you all get through it.