Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[Momtokcc]

We are going but this is because our chapter does the 1 special extra thing and this was ours. My son has never actually been trick or treating so this is why we wanted it for him. Gavin in mentally disabled and when we have tried to do the door to door thing or even trunk or treating he wanted to go and explore. It would make him mad when we would go to doors and then just leave. This doesnt make sense to him and if you think about it the whole concept is kind of is crazy if you look at it from his concrete perspective We are excited because I think this will be the perfect thing for him. We are also excited at all of the extra character visits. However, I think in your situation there is no way that I would pay that much money and possibly put my son through some extra stress. If you think he might just like the characters you could check out the Spooktacular at Sea World on Fridays. It is free with admission and I read that they have some special things going on. I hope this helps and I am sure whatever you decide you will have a great time.

Thanks for your input - the more I think about it, the more I think it would just be a bad idea for him.

 

[aym4Him]

we tye dyed mickey head shirts today. I will have a hard time letting them sit for a couple days!!! I really am anxious to see how they turned out.

OOOH!! I wanna see pics and did you follow a particular tutorial? I kind of want to try although DH likely won't wear tye dye. My FIL will be all over it, however (60's kid!).

 

[Momtokcc]

Honestly - I think the party, for the price, may not be worth it for you guys... Disney is so energy intensive that I would definitely not delay any feeds.

Really...nothing trumps the "Mommy gut"...whatever you gut tells you, go for it!

And anyone else reading this - always go with your "Mommy gut" for any advice I give... Nothing trumps that!

There is a TON of things to do at GKTW - so I don't think you will be "missing" anything if you skip it. It is a very expensive party and probably not worth it if you can only go for a couple of hours. To get back to your room by 9:00 pm - you would really have to leave the MK at 8ish because of the time it takes to travel to and from MK - so I would skip it!

Spend the money on something else special!

Lauren wants me to "stop ignoring her" now...says no one wants to know "THAT MUCH" about Disney trip planning!

So I guess I better go!

Thanks for your input Maroo. I think I am going back to my original plan of not going. I do think it would be too much for him, and we would see that the next day and that really would not be worth it.

 

[Momtokcc]

I am very excited! My mom ordered Kyra a lanyard with pins for pin trading! My mom and my aunts will also be joining us on our trip. We are all very excited! For those of you that have pin traded in the past, how many pins did you have to start with?

I know nothing about pin trading, I just hope Kyra has fun with it!

 

[Momtokcc]

Please say a little prayer for us. Our wish kid has had a cold and last night he woke up because he was having trouble breathing and was having some "stuff" (don't want to disgust anyone) come up. We were able to get it under control with an albuterol treatment but he has to see his doctor today. They think it might be another round of pneumonia.

Praying for your sweet boy!

 

[Threeboysandachickie]

I thought I had already replied to you, but I hope Gavin is feeling better. This weird weather pattern up here has all the doctors scrambling! Prayers for a fast recovery and that mon, dad, and sis stay healthy.

 

[GavandGraciesMommy]

Thank you to everyone for your prayers and concerns! It worked!! He does have bronchitis so he was placed on antibiotics and back on the albuteral treatments at least three times per day (more if we feel it is needed the doc said). They think he will be able to fight it off now that his heart is in better condition. Things like simple colds can turn scary for our kids but I am thinking we are going to be okay Thanks again everyone!

 

[onceagain1]

If you go to the locked sticky Everything About WDW Tickets in the TPA&S Forum, especially Post #16, you can get a lot more information about MVMCP. An easy way to get to the sticky is by clicking on the link in my signature. The ticket sticky is your friend!

Oooh thanks for the tip, and link, shall check it out asap

Please say a little prayer for us. Our wish kid has had a cold and last night he woke up because he was having trouble breathing and was having some "stuff" (don't want to disgust anyone) come up. We were able to get it under control with an albuterol treatment but he has to see his doctor today. They think it might be another round of pneumonia.

Oh no!!!

Thank you to everyone for your prayers and concerns! It worked!! He does have bronchitis so he was placed on antibiotics and back on the albuteral treatments at least three times per day (more if we feel it is needed the doc said). They think he will be able to fight it off now that his heart is in better condition. Things like simple colds can turn scary for our kids but I am thinking we are going to be okay Thanks again everyone!

But now, oh yay!!! I'm a heart mom too, I know what you mean. Really hoping that mine can manage to stay healthy on our lead up as well. Hope the meds do the trick and it's all good from here on in!!

 

[Abcam]

I need to make sure my daughter has her bath chair, formula, oxygen, diapers and wipes...do you pack these things (minus the oxygen) in an extra suitcase. Or can you ship it to GKTW?

 

[aym4Him]

I need to make sure my daughter has her bath chair, formula, oxygen, diapers and wipes...do you pack these things (minus the oxygen) in an extra suitcase. Or can you ship it to GKTW?

Is the home health agency you use in FL as well? If so, they might deliver those things for you. Then, you could just carry what you need for the flight (& maybe a lil extra, just in case of delays).

If not, then I would definitely contact your Wish chapter & see what they can go (GKTW, too).

 

[aym4Him]

Is the home health agency you use in FL as well? If so, they might deliver those things for you. Then, you could just carry what you need for the flight (& maybe a lil extra, just in case of delays).

If not, then I would definitely contact your Wish chapter & see what they can go (GKTW, too).

Can do..not go. Sorry. I'm typing on my phone!

 

[Lilfoot93]

We are fortunate enough to be in Florida right now, thanks to my BIL giving us a week at his timeshare. Today we spent at GKTW...VOLUNTEERING!! We had a great time. (Lisa's Wish Trip was October, 2011). All of my children worked in the Ice Cream Parlor, including our WISH Princess. DH and I worked the pool... it felt good to give back!

David, Rachel, Christian and Lisa​

That is wonderful you are able to go back and volunteer!

Please say a little prayer for us. Our wish kid has had a cold and last night he woke up because he was having trouble breathing and was having some "stuff" (don't want to disgust anyone) come up. We were able to get it under control with an albuterol treatment but he has to see his doctor today. They think it might be another round of pneumonia.

Praying for Gavin. Hopefully he gets better quickly!

Jackie

 

[blessedmom4]

Wow!! That's great!! That's definately something that we would like to do sometime in the future, if we ever had that opportunity. Must be so neat to experience it from both sides of the ice cream bar!!
It was amazing and we are so happy to give a little back to the place that was so kind to us.
I have another question about MVMCP. I'm getting set to possibly buy our tickets for MVMCP, but am nervous about spending the money. What if our trip gets cancelled, say if my daughter got sick? Is there a refund on the MVMCP tickets? I can't seem to find anything about refunds. And I'd like to buy them in advance to save a bit of money, but perhaps I should wait until say the week before or something.

Sadly, the party tickets ARE non refundable, even due to illness or bad weather...we experienced that first hand last year and that is all I will say on the subject since I detailed it in our PTR.

Please say a little prayer for us. Our wish kid has had a cold and last night he woke up because he was having trouble breathing and was having some "stuff" (don't want to disgust anyone) come up. We were able to get it under control with an albuterol treatment but he has to see his doctor today. They think it might be another round of pneumonia.

Prayers for your son and a speedy recovery. Another heart Mom here who fully understands.

That is wonderful you are able to go back and volunteer!

We are INCREDIBLY BLESSED for the opportunity and we know it! My BIL made it possible with his timeshare (that used to belong to my husband's parents and they gave it to my BIL). It was nice of him to share with us!

 

[Emmaswishtrip]

I need to make sure my daughter has her bath chair, formula, oxygen, diapers and wipes...do you pack these things (minus the oxygen) in an extra suitcase. Or can you ship it to GKTW?

We are in the same boat. We are getting o2 from our DME here at home and MAW is setting up o2 in the room, also we need a compressor and nebulizer. For the smaller things we are shipping a box of supplies ahead of time. Also we are going to ask our DME for formula to be shipped but if not it's going in our fedex box! We are going to pack enough in our bag for a 2 day supply (just in case!) Please let me know if you hear any other ideas!

 

[GavandGraciesMommy]

Oooh thanks for the tip, and link, shall check it out asap



Oh no!!!



But now, oh yay!!! I'm a heart mom too, I know what you mean. Really hoping that mine can manage to stay healthy on our lead up as well. Hope the meds do the trick and it's all good from here on in!!

Yes I was a little worried to say the least yesterday morning. Gavin was hospitalized 5 times for pnuemonia last year before they did the heart surgery so I am always scared it is coming back. Since his surgery he has only had it once and it was a couple months after surgery. The docs still hold out hope that if he is not pumping that extra "dirty" blood to the lungs we can avoid more pnuemonia. However, immune system= sucky! So yeah I am babbling but to say the least I was freaking out yesterday and just hoping he gets better quickly today. Thanks again for everyones thoughts. That is one thing I love about this place. It is the only time I dont feel alone with some of Gavin's "Stuff"

 

[Momtokcc]

Thank you to everyone for your prayers and concerns! It worked!! He does have bronchitis so he was placed on antibiotics and back on the albuteral treatments at least three times per day (more if we feel it is needed the doc said). They think he will be able to fight it off now that his heart is in better condition. Things like simple colds can turn scary for our kids but I am thinking we are going to be okay Thanks again everyone!

So happy to hear this!! Hoping he continues to get better!!

 

[onceagain1]

Yes I was a little worried to say the least yesterday morning. Gavin was hospitalized 5 times for pnuemonia last year before they did the heart surgery so I am always scared it is coming back. Since his surgery he has only had it once and it was a couple months after surgery. The docs still hold out hope that if he is not pumping that extra "dirty" blood to the lungs we can avoid more pnuemonia. However, immune system= sucky! So yeah I am babbling but to say the least I was freaking out yesterday and just hoping he gets better quickly today. Thanks again for everyones thoughts. That is one thing I love about this place. It is the only time I dont feel alone with some of Gavin's "Stuff"

Is he a post Fontan also? That's what Chatterbox is. Never heard it called extra 'dirty' blood to the lungs (Chatterbox has unbalanced AVSD, lots of blood mixing), but it makes sense. I hope he does well over the next while. And I also agree about this place, I think it was one of my first observations. You know everyone on this thread has a solid a appreciation about the little things, and also has wonderful empathy. Both characteristics that I find to be quite lacking in many other areas, unfortunately.

heart hugs to you

 

[GavandGraciesMommy]

Is he a post Fontan also? That's what Chatterbox is. Never heard it called extra 'dirty' blood to the lungs (Chatterbox has unbalanced AVSD, lots of blood mixing), but it makes sense. I hope he does well over the next while. And I also agree about this place, I think it was one of my first observations. You know everyone on this thread has a solid a appreciation about the little things, and also has wonderful empathy. Both characteristics that I find to be quite lacking in many other areas, unfortunately.

heart hugs to you

Sent you a PM

 

[yeti5353]

not posting much because my lap top is dying and well, its busy time of year. Glad G is feeling better.

big sis is sick so hoping she keeps it to her self and get well fast.

If you have questions on supply delivery and such I would for sure call or email GKTW because I had just minor questions and they were great, I bet they have seen it all and know the best way to work stuff out.

cool on the give back to GKTW. doubt I can ever do that but want to look into doing something for them.

It is great to see a list where people get it, and understand too our fears of not making this trip happen.

deb

 

[Emmaswishtrip]

So my planning mind makes me crazy sometimes and then I start to worry! So my kidlets are 4 and I'm thinking car seats and rental cars! Did you gate check your car seat? Did you get one from the rental company? We have so much equipment to lug (daughter has a trach) I can't picture carrying two huge car seats! Advise please!!!