Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

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ThreelittleBakers: Call your Wish Granters. You should not hesitate to contact them. I'm a wish granter (haven't granted a Disney trip yet though) and my current Wish Child's mom sends me e-mails at least once or twice a week. I don't mind at all.
 
We were told that our wish granters would come for Allison's send off party, when it was getting closer and hadn't heard anything we called. Actually, we emailed our contact. That helped get things rolling. I would get in touch with them!! How exciting, not too much longer!:thumbsup2

Ditto this! We didn't hear for months from our Wish Granters and I started to get really worried about 1 month before our trip so I called and emailed and then we started getting things done. Call them! :)
 
Me and my husband emailed them. one of our wish granters is on vacation and so they have had a hard time finding a volunteer to replace her. We get to meet up with them on Thursday. So excited. We are debating if you are going to have the party at my sons class or at a kids play place. Our wish granter is bringing a cake but the problem is the kids place doesn't allow cakes in the place unless you book a party. expensive. especially if it just for us 3 and the wish granters. thats why i am trying to have it at school during matts class. the teacher won't mind the only problem is they are going on a field trip that day. i would have it at home but matt and emmy like to run around, argue, and pester me so i really don't get a chance to talk to our wish granters. I figure if their at either places that they be busy playing around that i get a chance to talk and ask questions. I also was thinking the daycare matt us to be at. I was being take care of a lot of nurses through out his life. i thought it would fitting that they all were there to celebrate. I will have it figured out by monday night. i have to call around and ask permission. :idea:
 
i just looking at all the reservations that i placed months ago. i have been debating on cancelling a couple of them. i just don't know which ones. the day we were going to magic kingdom and i had reserve bbb, pirate league, and 1900 par fare but then doing all of those takes us away from going on more rides and seeing more things.
 
Hello Everyone, I am not sure if I am doing this right but here goes.....

We will be going to Disney sometime this year with MAW, we just had our preliminary meeting with our Wish Granter, and we are just waiting for some more details, which I will post as I know more....

A little about us My name is John and I father to four wonderful Children, Lexie (7) ABiagael (5) Cameron (4) John (2)(Wish Child), I am married to Angelina, we are from a small town in Pennsylvania...

A little about John, He was born a full term healthy baby (or so we thought) He kept getting ear infections and our pediatrician would prescribe antibiotics and they would clear up, but as soon as they were done they would come back, and the doctors did not want or believe that more tests were nescessary. So we switched pediatricians and that is when our journey began.

After the first appointment with the Geisinger Physician and some blood work , John was admitted to the hospital with blood counts that mimicked mal -nutrition, HIV, or some other viruses that they were not sure of. They did several bone marrow aspirations as well as blood tests x rays and the such, it finally took sending a test to CHOP, to get the answer we were looking for, it was a mutation in the ELA gene, which meant that John had Severe Congenital Neutropenia.

John was then transfered to CHOP after about a 4 month stay at GMC, his immunologist suggested a Bone Marrow Transplant, which was still experimental for this disease. On April 27th John will be a year post transplant, after his brother was a 100% HLA match. John Has developed Graft versus Host Disease which has baffled doctors since they were a hundred percent match (it isnt supposed to happen that way).

John is still on alot of anti rejection medicines including a ton of steroids, his skin is very red, and he is itchy all the time, he has to avoid sun light because of the GVHD, which means long sleeve shirts, long pants, hat and sunscreen, we are not sure if he will be able to swim, and there is still a chance that his body will reject the transplant. He is stable right now, but even the slightest cold could cause him to be admitted to the hospital. This has been a tough time for all of us, including his siblings, since he has gotten sink.

John is a very big Mickey mouse fan, as he carries two stuffed Mickeys around with him all the time. So when it came time to figure out his wish Disney was the Logical choice.

Tuseday we where at chop and the drs will let us john what restrictions he will have when we are there . The only one that we need to ask about is if he can go to the pool. Since he needs to keep his skin covered and use lots of sun block we may have found a way to make it work we ill let every one know what the drs say later .

The Dr said yes John can go in the pool when we go but !!!! Lost of sun block and a special UV Reflective swim suite will keep him safer as he must avoid as much sun as he can . How do i explain this one to a all most 3 year old . Oh well just another stepping stone for him some day he will under stand .
 
We picked are dates and now just need to here back on what one they can do.
We picked the First week in Oct
Second Choice is Christmas Week
Choice 3 is the second week of Jan

Its only been about 2 weeks since we sat down with the MAW person they sent out . So he said we should know the date soon :) Once we have the date we start to plan .
 


Please Check John's Pre trip report which is still in it's beginning stages.....:wizard:

We picked are dates and now just need to here back on what one they can do.
We picked the First week in Oct
Second Choice is Christmas Week
Choice 3 is the second week of Jan

Its only been about 2 weeks since we sat down with the MAW person they sent out . So he said we should know the date soon :) Once we have the date we start to plan .

:welcome: WELCOME :welcome: to the Boards and the Wishtripper's thread!!! LOTS of good information on the first page of this thread.

You are in for the time of your life! We LOVE CHOP, they saved our daughters life. Who is jmerchlinsky and who is Amerch? Your family is in for the most AMAZING time, savor the moments!!! :goodvibes:goodvibes
 
They do! If you haven't already gotten that answer. When we inquired they said they had a warehouse to hold things in. We had about 10 boxes waiting for us in our villa when we arrived. They just said to label it with our wish child's name and arrival date.

Have a great trip!!!!!!!:)


Hom much did u need to pay for shipping ?
 
:welcome: WELCOME :welcome: to the Boards and the Wishtripper's thread!!! LOTS of good information on the first page of this thread.

You are in for the time of your life! We LOVE CHOP, they saved our daughters life. Who is jmerchlinsky and who is Amerch? Your family is in for the most AMAZING time, savor the moments!!! :goodvibes:goodvibes

We love Chop as well they are a god send .. Amerch is me Angie Merchlinsky Jmerch is my husband John Merchlinsky III Are little man is also John but hes the 4th :) We are still at chop at least once a month for care at the cancer center . We just had a scare that he was readmitted for a few days but home again .
 
Hom much did u need to pay for shipping ?

It depends on what you ship. If it is medical supplies your MAW chapter may be able to help organize that with your home care agency. Just talk to your wish granters about all of your needs. We shipped some things, including bottled water from Amazon (free shipping for us on those items).
 
We love Chop as well they are a god send .. Amerch is me Angie Merchlinsky Jmerch is my husband John Merchlinsky III Are little man is also John but hes the 4th :) We are still at chop at least once a month for care at the cancer center . We just had a scare that he was readmitted for a few days but home again .

Hi Angie, Nice to "meet" you and Welcome again! You are so blessed to have CHOP so close, it is a ten plus hour drive for us...but worth it! SO glad you are home and this trip will help take your mind off of some of that things you all endure, it sure was a distraction for us, that is why I say SAVOR IT, the anticipation was such a day brightener! I am off to a few MD appts now, and I will think of our amazing trip! :goodvibes
 

Hi Angie, Nice to "meet" you and Welcome again! You are so blessed to have CHOP so close, it is a ten plus hour drive for us...but worth it! SO glad you are home and this trip will help take your mind off of some of that things you all endure, it sure was a distraction for us, that is why I say SAVOR IT, the anticipation was such a day brightener! I am off to a few MD appts now, and I will think of our amazing trip! :goodvibes

Chop is 3 1/2 hrs for us but can but 4 with city trafick. We have 8 am appts so we are up and on the rode at 3 / 330 so we know we are not late . Some times i wish we could move out to Philly just to be closer to his drs but theres no way i can afford that right now.

Thank you for the war welcome . Is there any thing that is really cool that we shuld try to do with the kids there ?
 
we were on grandson's MAW trip last Dec. i would rethink Christmas week. parks are very packed that week. we were there week before leaving on 22. ps are you guy going to be at Mother's day convoy in Lancaster?
 
we were on grandson's MAW trip last Dec. i would rethink Christmas week. parks are very packed that week. we were there week before leaving on 22. ps are you guy going to be at Mother's day convoy in Lancaster?

What is the mothers day convoy did not know any thing about it and thanks i will re think that one for shure :)
 
Ok i sat here for about 2 hrs looking at old posts what is The Big Give stuff?
All about . It seams very interesting .
 
We met with Alyssa's MAW granters and are waiting on dates! We chose Nov 10-18, and we hope to do CRT, BBB, and MVMCP. Does anyone know if MAW will schedule CRT and BBB for us, or do they just include money for this in the expense check and I have to book it? Thanks for any info!!
 
:wizard: hello all I have just posted the beginning of Ona's MAW PTR. It is coming up quick and I will most likely have some questions and such soon, if I can ever get the iPad back from Ona!
There is a link in my signature, hopefully I did it right.
 
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