Delaney21
Mouseketeer
- Joined
- Jul 10, 2010
Hi Everyone! Welcome to our Pre Trip Report! This report is dedicated to all of the planning going into Mitchell’s wish trip!
Preliminary:
In October I received the call that Mitchell was going to be granted a wish from Make a Wish. At first I was ecstatic, smiling from ear to ear, telling everyone around me and so excited for him. Then reality set in….if he was granted a wish, that means he’s really bad…oh no, this can’t be true….really, are they sure he qualifies?? I don’t know if other wish families go through this, but despite being so happy for him, it brought me down for a couple of weeks. I’m back at being very happy for him and ready to plan the best trip ever!
The Wish:
Mitchell made his official wish on Tuesday. We had decided that we wouldn’t talk to him about his wish prior to the wish grantors coming out because we didn’t want to influence his wish. That totally backfired on us!! His first wish was to go on a Disney Cruise. Unfortunately, it would be impossible for us or MAW to make this safe for him so he had to come up with a new wish. He was bummed because “he wanted to see Captain Mickey and sleep on the boat for 7 nights.”
Thankfully, he quickly switched it and his official wish is - to go to Disney World, go on the Safari and meet Flynn Rider. He thinks Flynn Rider is the coolest thing ever and he is the first character Mitchell has ever idolized.
Mitchel has a list of additional things he would like to do and I’m going to try to make sure they all happen. The past few years have been pretty rough for him and it sounds like they are only going to become worse in the next year, so we have been setting money aside to make this trip extra special for him.
About Mitchell:
Mitchell is an amazing 5 year old, who is all boy! He loves playing baseball, playing in the mud and running around the house screaming….all while driving us crazy! He’s smart as a whip and loves to show it off. He is in a pre-K class, but is already reading at a 1st grade level, can navigate a computer better than most and has been known to give tutorials on smart phones for new users...ok, let me brag please, it doesn’t happen often!
The medical side: Mitchell has a severe form of Eosinophilic Gastroenteritis, a rare auto-immune disorder which causes life threatening consequences for him any time foreign substances (food, drink, medicine, etc.) are introduced into his body. His reactions to these substances range from anaphylaxis, GI distress (debilitating pain, bleeding and tissue damage leading to malnourishment and dehydration), and respiratory illnesses such as pneumonia. Mitchell’s primary source of nutrition is an amino acid formula, which he gets through a g-tube. His reactions are still not typical for this disorder and much more severe than the typical case. It is presumed he has yet another disorder that we haven’t discovered yet. At this point, he is doing very well so we don’t want to rock the boat trying to find that missing piece. More on Mitchell below…
The other wish trippers:
A couple years ago, we decided Mitchell needed a sibling. There is a genetic component to Mitchell’s disorder so we had to consider that. After speaking with all of his doctors and weighing the risks, we decided to move ahead and….SURPRISE, it’s TWINS!!
Mason and Mallory were born in April of this year and they totally complete our family! Mitchell is totally in love with his little brother and sister. He is seriously the best big brother ever. He will do what ever is necessary to keep his brother and sister happy! I had asked the question in a another thread on here as to whether we should take them with us on our trip and someone recommended we ask Mitchell what he thought. When we asked him, he looked at us like we were crazy to even consider leaving them home and he insisted they needed to come with us. We asked our wish grantors if we could bring along someone to help care for the babies and we were told it was probably not possible. I think either way, we’re going to have to find a way to make it work because at this point, the babies are only 8 months old and still a lot of work.
Mom, Jessica (me) and DH Kyle, who is seriously the best husband and father ever!!! We are the typical parents who love their kids more than life it self. Ok, sorry I have an issue with talking about myself….so we’re going to skip that part.
Preliminary:
In October I received the call that Mitchell was going to be granted a wish from Make a Wish. At first I was ecstatic, smiling from ear to ear, telling everyone around me and so excited for him. Then reality set in….if he was granted a wish, that means he’s really bad…oh no, this can’t be true….really, are they sure he qualifies?? I don’t know if other wish families go through this, but despite being so happy for him, it brought me down for a couple of weeks. I’m back at being very happy for him and ready to plan the best trip ever!
The Wish:
Mitchell made his official wish on Tuesday. We had decided that we wouldn’t talk to him about his wish prior to the wish grantors coming out because we didn’t want to influence his wish. That totally backfired on us!! His first wish was to go on a Disney Cruise. Unfortunately, it would be impossible for us or MAW to make this safe for him so he had to come up with a new wish. He was bummed because “he wanted to see Captain Mickey and sleep on the boat for 7 nights.”
Thankfully, he quickly switched it and his official wish is - to go to Disney World, go on the Safari and meet Flynn Rider. He thinks Flynn Rider is the coolest thing ever and he is the first character Mitchell has ever idolized. Mitchel has a list of additional things he would like to do and I’m going to try to make sure they all happen. The past few years have been pretty rough for him and it sounds like they are only going to become worse in the next year, so we have been setting money aside to make this trip extra special for him.
About Mitchell:
Mitchell is an amazing 5 year old, who is all boy! He loves playing baseball, playing in the mud and running around the house screaming….all while driving us crazy! He’s smart as a whip and loves to show it off. He is in a pre-K class, but is already reading at a 1st grade level, can navigate a computer better than most and has been known to give tutorials on smart phones for new users...ok, let me brag please, it doesn’t happen often!
The medical side: Mitchell has a severe form of Eosinophilic Gastroenteritis, a rare auto-immune disorder which causes life threatening consequences for him any time foreign substances (food, drink, medicine, etc.) are introduced into his body. His reactions to these substances range from anaphylaxis, GI distress (debilitating pain, bleeding and tissue damage leading to malnourishment and dehydration), and respiratory illnesses such as pneumonia. Mitchell’s primary source of nutrition is an amino acid formula, which he gets through a g-tube. His reactions are still not typical for this disorder and much more severe than the typical case. It is presumed he has yet another disorder that we haven’t discovered yet. At this point, he is doing very well so we don’t want to rock the boat trying to find that missing piece. More on Mitchell below…
The other wish trippers:
A couple years ago, we decided Mitchell needed a sibling. There is a genetic component to Mitchell’s disorder so we had to consider that. After speaking with all of his doctors and weighing the risks, we decided to move ahead and….SURPRISE, it’s TWINS!!
Mason and Mallory were born in April of this year and they totally complete our family! Mitchell is totally in love with his little brother and sister. He is seriously the best big brother ever. He will do what ever is necessary to keep his brother and sister happy! I had asked the question in a another thread on here as to whether we should take them with us on our trip and someone recommended we ask Mitchell what he thought. When we asked him, he looked at us like we were crazy to even consider leaving them home and he insisted they needed to come with us. We asked our wish grantors if we could bring along someone to help care for the babies and we were told it was probably not possible. I think either way, we’re going to have to find a way to make it work because at this point, the babies are only 8 months old and still a lot of work.
Mom, Jessica (me) and DH Kyle, who is seriously the best husband and father ever!!! We are the typical parents who love their kids more than life it self. Ok, sorry I have an issue with talking about myself….so we’re going to skip that part.
) 
Can you send it again? Thanks.
