Sorry you had a bad experience with lunch. And sorry I missed ya today!! Julie and I shared a pumpkin funnel cake....girl, thanks a bunch, that thing was AWESOME!!!!!
It will be an ambulatory EEG. Trying to figure out what exactly the staring is. He is not sure if he is falling asleep with his eyes open, seizing or something else. He said the EEG should shed some light.
Hopefully the EEG gives you some answers. That's the kind of EEG I keep trying to get for Grace, but her neurologist doesn't like them. He'd rather her keep doing the 24 hour inpatient EEGs that never show anything because she sits on the hospital bed all day watching TV. Her seizures are brought on by fatigue and being over stimulated/frustrated which isn't going to happen in the hospital, but will happen in normal day-to-day life at school.
Catherine
I hope you can get Grace the tests she needs. I got a call yesterday from the EEG place. It's going to be a video EEG. The doc didn't tell me that. The scheduler said the cord doesn't reach far. This should be interesting. There will be a list of things he may and may not do. The only things the scheduler told me was that he can't talk on a cell phone or get wet. She said the technician will go over all the other details the day they do this. She said to allow 2 hours to get him hooked up and an hour to take it off. Yikes!
Then allow another couple hours for baths and hair washing afterwards! If the glue they use for this test is anything like what they use for the 24 hour inpatient ones, it will take a lot of shampoo and several washings and then a lot of brushing to get the glue out of his hair. The first time Grace had the 24 hour EEG I had the girls scheduled for Christmas pictures the next day. I'd made that appointment long before I had the EEG date. Good thing I had Santa hats for them to wear or it would have looked like Grace had a lot of "snow" in her hair in those photos!
Catherine
Miss you too! Sorry we couldn't get together today. Appreciate all the prayers and good thoughts!
It will be an ambulatory EEG. Trying to figure out what exactly the staring is. He is not sure if he is falling asleep with his eyes open, seizing or something else. He said the EEG should shed some light.
It didn't feel like homework. Actually it felt better keeping an eye on our spending. I think we spent less than what we normally do because we were aware of it.
I hope so too! The diary isn't a souvenir. We have to mail it back to Disney. We have never really paid attention to our spending at Disney. I kept it with us and wrote as we went along. It's crazy that a QS meal for a family of 4 is hard to do under $55. The only meals that were under was the one where Grumpy and I ate soup instead of a meal or shared an entree. We love clam chowder and Fri night they had clam chowder. He and I shared a muffeleta because we didn't know if we'd like it. It was filling, even eating only half. And we had plenty of room left for dessert!
The lunch buffet at the Pepper Market at CSR on Friday was disappointing compared to our first experience with it on Monday. On Monday, the food was covered with lids. On Friday, the lids were off and much of the hot food looked dried out, especially the chicken at the grill station.
I had chicken quesadillas, seasoned red potatoes, ceasar salad, and icecream. The quesadillas were excellent! The guacamole is my favorite, so the two together were heaven to me.
I really wish they would have churros at lunch time. I love vanilla icecream, a churro and honey. Instead, I had vanilla icecream with honey. The cinnamon gives it that extra umph making it incredible.
Alba was our server. She was ok. David, the server we had on Monday, was much more attentive.
We paid by credit card. The bill was $72 with the tip for the 4 of us. The register receipt for credit card payment listed the recommended tip for 18% or 20%. Dh felt obligated to tip.
We went into Panchitos window shopping. Anakin wanted to look at their pin book. He made one pin trade.
The sun was shining bright and based on the weather forcast this was our best day to swim so we headed back to the resort. Anakin was so excited to go back to the room and put on his swim suit and try the water slide!
Up next, will we be able to get in the room?
Oh okay. More of an adventure than a chore. I hope they figure out what is causing this and are able to solve it.
Oh that's sad about your lunch. I am not really fond of the buffets at DLR and WBG loves them. It's the little things like the peanut butter and jelly pizza that he loves. Silly man.
sorry your lunch wasn't the same as the first time!
and for all the issues with your keys!
your room was different than ours....we had the double sinks with shelf underneath and the closet rod, must be due to the bathroom part being bigger...no armoire or those cut out shelfs, but looks like everything else was the same....i don't like the wdw coffee, so bring my own instant, splenda and liquid creamers...our cups weren't wrapped either
Is it me or does the furniture look like grandma's house?
Kinda looks like you were put in a part HC room, normally there aren't rails by the toilet like that. That's interesting!! Glad things got fixed with the room keys, that has to be quite a pain waiting on THEM!
Ahh, bless his heart. Thanks for the idea about the hall light switch. It's right outside the bathroom!! That's the next habit we will have to work on!
When he was going to a psychologist, she did more harm than good. She gave him homework of trying to desensitize him by having him flush the toilet multiple times a day. All it did was stress him out more and he began to have accidents, which he hadn't done since potty training days.
But it was during that time that we discovered the light switches were just as much a problem as the toilet flushing. I drew him a diagram of the lights and fan so he'd know which light to turn on. Unfortunately, from bathroom to bathroom (we have 3) it's not the same. It was too hard to remember, and he was too anxious to think clearly at the switch when we left the diagram there.
What he is doing now, is coming to get us when he has to go to the bathroom. He will walk behind us, until WE turn on the light. Then once the light is on, he wants his privacy! It's reduced his stress and there are no accidents.
Toilet flushing is another biggie. He will not flush the toilet. He is too scared. Even if I am in the bathroom with him and I flush the toilet he will run. He has hit his head twice on the door knob because of fleeing and not being aware of his surroundings. There is a rug at the bath tub. If he stand on that with bare feet, he can handle the toilet flush. But not standing on the ceramic tile. I don't understand that. But if I am going to flush and he is still in the bathroom, I tell him to stand on the rug because I'm going to flush. I guess the feel of the rug on his bare feet distracts him enough to handle the flush?
Bathrooms at Disney can be a disaster. We carry post-it notes to keep the toilet from flushing on him. Companion bathrooms work much better since there are no neighboring toilets flushing.
For the vaccuum cleaner and the garbage disposal, we have to tell him when we are turning it on. He will go sit on the couch (his refuge) until we stop using it. Again, maybe the feel of the couch fabric on his skin distracts him?
Airplanes and helicopters send him under the kitchen table.
I'm open to any advice that will help him to tolerate these noises better! So keep it coming.
Lurkers, you too. If something has worked for you or your child, please let me know.
I could be wrong, but I think the decor is to reflect that old southern charm.