Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[mommy2girlswv]

See, what you're saying makes complete sense to me. I don't understand how they can do this. MAW says everything else is done, they only thing they need is the Dr's sign off and according to our social worker they won't be signing it since it is their policy. We're trying to see if our primary care can sign off. DH just got a job in another county and we were going to stay behind because he'll transfer back in the future. We're thinking of just switching hospitals. But then we'd be with a different MAW chapter and I'm worried it will mess up our DS's wish to see DW with Christmas lights. I don't know what I should do.



Well, it's the hospital social worker we're talking with, but she says it's hospital policy since I guess a family at one point sued the hospital when something happened on their trip and it wasn't covered. So it left a bad taste in their mouth or something. We asked MAW if we could get his primary care to sign off on it(the ped left the practice so he sees a family practice now) and they're checking into it. I just can't believe this is happening. I wonder who I should talk with at the hospital? A patient advocate or some type of management. After a bad experience with them refusing to see him a few months ago we have a 'bad taste' in our mouths at this point. If they ruin his wish I'm going to be furious! MAW said they don't know what the social worker is talking about, he's not losing his wish.

He has til he turns 18yrs to make a wish!

 

[MissJen]

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

 

[LindaBabe]

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

Hope you and your family have a WONDERFUL trip, MissJen!

 

[Owensheart]

NeWbie here....
We just had my daughters wish party yesterday and received all our travel documents. We leave at 4am Friday. So excited (and anxious?) I can't sleep.
It's a first cruise for us and the first time traveling by air(and sea, I guess) since my daughters diagnosis 5 years to the day we are leaving.
It's still so surreal to me.
We were nominated by a very sweet nurse when my daughter was hospitalized last December.
Just found this site again 2hours ago and can't read enough helpful info.

I hope you have a fantastic trip!! Which cruise ship are you sailing on??

 

[angcmom]

I have posted our "tentative" itinerary over on Abigail's pre-trip report! Let me know what you think.

http://www.disboards.com/showthread.php?t=2814511

Our time is getting so much closer...we leave two weeks from tomorrow.

 

[casper_jj11]

Oh my! A new thread! This explains why I haven't gotten any emails from the group lately. I lurk more than anything right now. I tried to finish my trip report and asked that they reopen it (yet again) but for some reason, the msg system wouldn't let me paste in the link to the report and the moderator couldn't find it. I'll try again when things calm down a bit.

Sydney is doing fantastic. She's in Senior Kindergarten now and loving it. She still talks about her trip. We're taking my parents next May so it'll be nice to revisit places. I've already touched base with GKTW and even tho we didn't stay there, as others have said, once a GKTW kid, always a GKTW kids and they've told us we're more than welcome to visit, to play and to see Sydney's star. They're so amazing. We're really looking forward to it.

 

[MissJen]

I hope you have a fantastic trip!! Which cruise ship are you sailing on??

We are on the Disney Dream for Halloween going to the Bahamas. Lily is swimming with the dolphins at Atlantis in the Bahamas.

 

[M28]

Our daughter is meeting with her wish coordinators tonight. Assuming she doesn't change her wish last minute how quickly could a trip be taken? For work and a few other reasons mid Dec. would be best for us. Thoughts?

Faye's PTR:
http://www.disboards.com/showthread.php?t=2819470

 

[Synovial]

I'm pulling my hair out trying to think of everything to pack and get everything done we need to finish before we go on our trip. We have been making matching shirts all day. We are going Thursday to pick up our rental van to pack and have ready to leave early Friday morning!!! We have 3 days until we leave!!!!! I still can't believe it. We have been working on this trip for a year! Synovial

 

[Owensheart]

We are on the Disney Dream for Halloween going to the Bahamas. Lily is swimming with the dolphins at Atlantis in the Bahamas.

Oh my goodness.. that sounds amazing!!! You are going to have a great time!!

Our daughter is meeting with her wish coordinators tonight. Assuming she doesn't change her wish last minute how quickly could a trip be taken? For work and a few other reasons mid Dec. would be best for us. Thoughts?

Faye's PTR:
http://www.disboards.com/showthread.php?t=2819470

We are going in early December.. the 4th thru the 14th. I hear it's a great time to go!! Nothing beat the holiday lights around!! Let us know how it goes!!

I'm pulling my hair out trying to think of everything to pack and get everything done we need to finish before we go on our trip. We have been making matching shirts all day. We are going Thursday to pick up our rental van to pack and have ready to leave early Friday morning!!! We have 3 days until we leave!!!!! I still can't believe it. We have been working on this trip for a year! Synovial

You are going to have a great time!! I know.. time seems to drag until a month or so before and then it flies by!!

 

[mom2pixies]

Finally, updated the rest of Day 1 on the trip report! Check it out!

Hope everyone is well....

 

[M28]

Our daughter made her wish last night with the volunteers at our house. They were super nice ladies. We asked about going as soon as mid Dec. but they weren't sure it could happen that fast. No big deal. We will just wait and be happy with whenever they can send her. She is so excited!

Faye's PTR:
http://www.disboards.com/showthread.php?t=2819470

 

[angcmom]

For those of you who have stayed at GKTW, how much food (including snacks and beverages) did you purchase at the store for your stay?

From what I've read, you get three meals at the village during the course of the day but I can't decipher if other snacks/beverages are readily available. I know the Ice Cream Palace is an option....do they have other snacks there besides ice cream?

Thanks!!

 

[newdrama12]

From what I've read, you get three meals at the village during the course of the day but I can't decipher if other snacks/beverages are readily available. I know the Ice Cream Palace is an option....do they have other snacks there besides ice cream?

Thanks!!

Sadly, there are no other snack option available other than the ICP. Drinks are available at the ICP as well.

 

[LindaBabe]

They *used* to have hot dogs and premade sandwiches at the ICP. Has that stopped since the new place next door opened?

 

[Synovial]

We leave in the morning for Disney!!! After some confusion, we are just now getting our check today! Nothing like waiting until the last minute! We are still packing, but I did a lot of it last night. We are going to try to leave around 5:30 in the morning. Synovial

 

[BuzznWoodysMom]

Hi All, Well, we leave next week !!!! But I need some advice. My son's wish was for Animal Kingdom, and Christmas Lights in Disney World. As many Make-a-Wish families we are dealing with so much extra stuff right now, that my planning and research fell behind (were also dealing with immediate family members, 1 with stage 4 cancer, and 1 just scheduled for double bypass surgery , while we're on the wish trip) anyway, I know Osborne lights start 11-10, but is that something that runs throughout the day or only in the evenings? We did not opt for the MVMCP, as it wasn't in our budget, plus with sensory and stamina issues wasn't sure if it would be worth the cost.

Are there any fun Christmas plans during regular hours at Disney? We arrive at GKTW on 11-6 and leave 11-12, Will the Disney parks be decorated for Christmas by then?

And another thing, and maybe it's just me, We are all so excited for this trip, and it's been so nice to have something to look forward to, but were coming back to some not so good stuff, and some hard medical decisions, as are many families. But while I can't wait to go, I almost can......I know that no matter what, were gonna have the time of our lives, but it's going to be so hard to come back. I wish I was better at living in the moment lol.

Thanks for listening to me ramble, or if I lost you already, well I don't blame you , and Thanks to all who have shared their journey for the rest of us. It's been nice not to feel alone!

 

[newdrama12]

They *used* to have hot dogs and premade sandwiches at the ICP. Has that stopped since the new place next door opened?

Yep, that is no longer an option with the addition of Katie's Kitchen. (The only lunch option other than ice cream)

 

[newdrama12]

I know Osborne lights start 11-10, but is that something that runs throughout the day or only in the evenings? We did not opt for the MVMCP, as it wasn't in our budget, plus with sensory and stamina issues wasn't sure if it would be worth the cost.

Are there any fun Christmas plans during regular hours at Disney? We arrive at GKTW on 11-6 and leave 11-12, Will the Disney parks be decorated for Christmas by then?

Yes, the parks will de decorated for Christmas by then. The Christmas parties start on 11-8. The Osborne lights just run in the evening, but I think is fun to see.

 

[billwendy]

What about the ordering pizza at GKTW? They did that in 4/10 when we were there....also, at some parties they had cookies and popcorn. Also had popcorn at the movie theater back then, but maybe it has changed? We werent really there much during the day, but bought some snacky things and drinks at the walmart down the street ( :